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That sucks.. Yes you can get ginger in pill form.

BoscoPiko, Thank you for the quick response. Yes I am on the D3 program. I hope that this is a short lived change.

Hey Mit, Sorry to hear this is happening to you. It's always scary when pain changes. Not that cluster pain is ever something that we get used to, I think it's more that we come to know what to expect. I have had occasional spikes on the wrong side and it always scares the heck out of me. I have a bad habit of associating everything that has happened prior to an attack as being a pre-curser for the next but normally it's just the bunny thumping about to shake things up I guess. I wonder if your lingering pain after a CH attack is sorta like severe shadows which I suppose could feel like a migraine? Are you on the D3 regimen? I'm sure you have read about it on here but if your not on on it you may want to give it a go and add some curcumin (ginger +turmeric) to help with the lingering pain. I know my response isn't much help but it's all I got on this one. I hope you get past this sooner than later!!

To All, I'm in the loop with Daisy and there's nothing wrong with a vitamin D3 maintenance dose of 40,000 IU/day as long as you drink 2.5 liters of water/day, avoid calcium rich foods like al dairy products and see your PCP lab tests regularly to ensure serum calcium and PTH remain within their respective normal reference rang limits. Take care V/R, Batch or XXX.

My first thought reading the first paragraphs was hemicrania continua (HC). https://my.clevelandclinic.org/health/diseases/21538-hemicrania-continua It's a characteristic of HC, in contrast to CH, that oxygen doesn't work the way it does with CH (which I would say is true of what you are describing). Also, triptans typically don't work, either. But sometimes they work a little. There are several types of hemicrania. The good news, if you have a hemicrania, is that it is treatable with a medication, indomenthacin. In fact, that is the diagnostic test for hemicrania -- whether indomethacin successfully treats it. If you do have reason/opportunity to test Indo, be sure to look around the web for proper dosage. There are a lot of recommendations about that.

Peter Batcheller does reply to posts on the site but now goes by the name of XXX. you can also DM him and he will reply to you. He is a very helpful and well known man in this community. You send him your number and I am confident he would call you and help the best he can. He may be slow to reply because he does go to a remote location on a fishing trip every year. I know this from experience and speaking with him on a few occasions myself.

As most of you know I suffer from both migraines and Clusters. For the second time in my life things have changed. The first change was when both my migraines and Clusters changed from being behind the left eye to going to behind my right eye. Typically the pain feels like a rod is being pushed through my eye and it comes out behind my ear. For the last few days it has changed to being both eyes! Although the pain is slightly less in each eye it is in both which is not only very painful but scary. They are coming on like clusters meaning they get real bad for a short time and let up to like a migraine behind both eyes for a short time and another hit and so on for most of the day. My question is have any of you heard of this or have had this kind of thing? The beast is forever changing, the fight goes on! Thanks guys for listening, I am looking forward to your comments.