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...might not make any difference....when i self paid it was $14/e-tank....when insurance covered it was a $14 co-pay. they got us coming and going...

Hey Spiny, I’m in NC too! In Charlotte. Where area are you located in?! I get a prescription for my O2 but I don’t think it goes through the insurnace and have to pay $15 a bottle. Side note: I’ve been suffering for 15 years and I’m currently 2 rough months into this period with 4-5 headaches a night every 1.5hrs after going to sleep and one when I get up. Interesting and tough cycle this one!

Dany, I think your getting your terminology a little mixed up here. You abort your attacks during the day with things like oxygen, energy drinks or whatever your go to is. You Bust a cycle with alternative medications that are covered on other parts of the forum. Shadow would be the feeling of a cluster attack coming on but does not fully set in and passes. The ramp up is the time that you have leading up to what you know will turn into a full blown cluster.

Good thinking, since in your case of course it sounds of critical importance that the calcium level be checked. Sometimes a different form of magnesium can be more compatible for a given individual (I know this because I respond better to magnesium citrate than glycinate, but my wife gets leg cramps from citrate).

I guess I'm using the word shadows incorrectly. I meant that I start trying to bust at the first sign of a CH. Amholla, I find that waiting just a minute too long will lead to a full-blown attack. I typically get mild symptoms for about five minutes before it ramps up to full tilt. Trying to bust instead of waiting and hoping it won't ramp up to an extreme, which rarely happens. I've read comments from others here, saying that they might have to try to bust a number of times in one day, but eventually the extreme CH happens. That's often my experience. Yesterday I had one mild, busted it with ACV in less than five minutes (ACV swish five times, chased with cold water), but an hour later I had to do it again, this time it went to moderate level, but not to full tilt. I was expecting it to come again, maybe in the middle of the night. (Mine typically happen between 3-5pm, but if I skip a day, it might happen overnight, hard to predict when the next one will be, though they're often 24 later.) But this time I didn't get one overnight.

@BoscoPiko @CHfather @Amholla3Amholla3 @xBossThank you so much. Going to check bloods tomorrow. Need to check my D3 levels. Just had an attack now. Aborted with oxygen. I can feel it starting again. I added prednisone to my regimen just to get through the nights and to deal with my brothers death. It stopped the night attacks. Just 15mg a night. I don't know if calcium is bringing on more attacks. Cos when I take 50 000iu d3, omega 3, and vitamin A, it got me through 2 years. Till now. I feel when I take the entire regimen I have more attacks. Plus the magnesium I get cramps. The boron and zinc also doesn't seem to be helping. I know, whatever works right? My D3 levels in 2019 was 18. So after loading frantically I managed to get to 80 and the cycle stopped. I guess I have to check my levels tomorrow. Completely forgot about that cos the last two years was really hectic seeing to my brother etc. Thanks everyone for the condolences.

Thank you I appreciate it very much

I'm in NC and it was covered last year. Lincare is the provider here and several offices knew of it when I called just to see how far the 'word' had traveled last year.

https://jamanetwork.com/journals/jama/fullarticle/185035 Note that O2 is also listed as a #1 treatment for CH in every article or physician's guide to CH treatment (along with triptan injections and nasal sprays).

Appeal the denial by calling the insurance co. and request a doctor to appeal on your behalf. Sending the peer reviewed O2 effectiveness studies ( links found by searching for O2 on this site) for your doctor to refer to when appealing the denial will be helpful. This process of persistence took weeks with successful results and Apria finally delivered O2 to my home to be able to battle my upcoming episode.

HI. I understand there has been serious effort put forth to get insurance companies to list Oxygen as a medical necessity for CH sufferers and to get them to cover it under their insurance plan. My husband is coming up to his cycle. I just called our health insurance company and Oxygen is still NOT covered. Is subject to our deductible. What is the latest information regarding insurance companies regarding Oxygen??