Bejeeber

You have some captivating stories b.g. [smiley=thumbup.gif] 8-)

Well I see that one of the most important words - bust - needs no translation. ;D

Best of luck to you and your girl, Sam!

My impression has been that there's no problem here with talking about real stuff including when thoughts of suicide have cropped up during intense bouts. Especially since that's so common with CH'ers. So it seems to me you're fine broaching that subject b.g. Heck, Bob Wold's video talk is titled "Suicide or Psychedelics" and Dan made a strong point in the Nat Geo episode of "a bullet or a mushroom". I'm just glad, really glad we have the survivors that we do still here, and besides the breakthrough of busting that has helped so many, hoping big time for a breakthrough (BOL-148?) for those not getting enough relief yet, so the "s" word will be a distant, foggy memory for more CH'ers.

LOL at the jugulars, bathrooms and show offs. ;D

Abdomen, just to the side of the navel. After seeing it recommended by several CH'ers I tried it and I too find it to be preferable to arm or thigh. For one thing I find it hurts less. Not to get all semantic on ya b.g. - I know you're just using a casual figure of speech (something I tend to do at least once in almost every post), but just so nobody gets the wrong idea, "shooting up" ordinarily refers to mainline injecting a drug right into a vein (doesn't it?) and of course that's something that should never be done with trex, which should only be injected subcutaneously. Also I figure you don't use the auto injector anymore b.g., you use the conventional syringe in order to be able to inject partial doses and conserve supply / lessen side effect risk..?

If info in France is negative about BOL then I'd say it is very wrong indeed. I know there is some crazy suppression of information regarding busting in some places. Incredibly and very ironically in this world gone mad there are examples where this is (or at least was) carried out by horrifically misinformed and misguided CH'ers themselves. Bans on any discussion of busting at all were enforced at the OUCH UK message board and at least one prominent CH Facebook site based in the USA. OUCH USA on the other hand supported clusterbusters enthusiastically as does clusterheadaches.com. I'm sure glad to see CHfather responded to you Sam - THIS GUY REALLY KNOWS HIS STUFF - and is a very reliable source of info and advice.Â

Hi Sam. While waiting for BOL-148 many CH'ers such as myself have been able to beat back the beast very effectively with busting as a preventative and high flow 100% O2 for aborts. I bet others will respond with informative links, etc. that will get your girlfriend on the fast track to significant relief via busting, meanwhile here are a couple of my favorites: A Newsweek (USA News Magazine) article on busting for CH: http://www.thedailybeast.com/newsweek/2009/10/14/the-psychedelic-solution.html A talk by clusterbuster founder Bob Wold: http://vimeo.com/10918637 And the National Geographic episode featuring Dan/Hipshot who is active on the message board here (starts at around 30:40): http://www.youtube.com/watch?v=LjteSZu_JqM

Agreed. Fortunately a bunch of us have found that busting is a super effective preventative - the most effective preventative out there - so we don't all have to be in a lotta pain anymore. 8-) There are still a smaller percentage of CH'ers for whom nothing works so great yet, and that I will admit truly sucks. Maybe BOL-148 will help them if/when it becomes a prescription med.

Yep Hipshot/Dan as you know him here on the message board is the bravest headbanger in the land and plenty of CH'ers who saw that episode found their way here as a result and got relief through busting. He's really a swell guy and his wife Lee Ann is a heckuva gal (note when the Nat Geo narrator says "Lee Ann made a life saving discovery"). I bet you'll meet them at the conference. 8-) And thanks for that Nat Geo link FunGuy - the one I had went defunct.

Jammy dodger AKA Roger, and Oscar are HEROS. 8-) Marilyn, there has been discussion here among those who have tried botox, and unfortunately it appears to me to be largely ineffective for CH - more of a migraine treatment that the docs wish would also work for CH. I wonder if your dad's docs are planning more injections than usual in different spots on the noggin or something? I bet those truffles (or mushrooms or Rivea Corymbosa seeds) will be more likely to bring some real relief. Here's a very recent botox discussion: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1361744852/4

Un-freaking-believable. > If anyone has ever been justified in making a scene, it was you at that moment.Â

From what I recall seeing others report here on the subject, the imitrex likely did not ruin your bust. 8-) It does seem to me like your hit today could be a rebound. Did you feel other (side) effects from these RC seeds that would lead you to believe they had their usual potency? Lots of us believe we have run into potency issues, so it can be tuff to figure out for sure. :-? [Edit: I now see that CHfather beat me to the post again - listen to him, he's paid more attention and is remembering more on the subject than I am ]

Although it took me a sec to realize you were referring to O2, I must say that is quite the snazzy slogan BB. ;D 8-)

A big, jumbo sized, emphatic NO. From my experience, and what from I've seen lots and lots of others report about their experience when this topic has come up, your doc is actually right on this one. I've successfully used imitrex injections that were 9 years old , and they weren't kept in a cool place! Not suggesting anyone else try that sorta stunt, but you know how the *desperate times call for desperate measures* thingy can kick in on occasion. "Expired" in 2011? Man that is some really fresh imitrex in my book. 8-)

Hi P. Ivy, So you got the night visits from the beast huh? That sux REAL bad. BUT *busting* has fortunately proven to be more a more effective preventative than the RX's (not to mention more affordable for those of us in the USA). 8-) PLUS most find they can afford welding high flow 100% O2 for aborting their attacks. Heck I should just say please read CHfather's post above, and follow every word and link relating to O2, busting and D3 very carefully, as it is indeed the condensed CH bible! In fact I'm starting to think we should call him CH Heavenly Father. Oh LORDY, how could it have taken me so long to think of that one? ;D And in hopes of helping to motivate you to turn this thing around, here are 2 links - a genuinely riveting Newsweek article on busting for CH, and a video talk by Cluster Busters founder Bob Wold on his CH experience. These can get you up to speed and inspired in a jiffy, and I mean toot sweet. http://www.thedailybeast.com/newsweek/2009/10/14/the-psychedelic-solution.html http://vimeo.com/10918637

Spiny listens to industrial metal music when cleaning the house, so she still qualifies as very young in several ways at least.Â

Hi Marilyn, That's horrible about your dad having CH - especially with it getting worse. The fact that you're asking about truffles leads me me to guess you may be in the Netherlands or thereabouts, since we've seen that psilocybe truffles are available and legal there, and CH'ers have had success busting wth them. Sorry I don't know how much to take (I know it can depend on the type of truffle though). If you don't get an answer in this thread, you'd probably be able to get your question more readily seen and answered if you were to start a new topic and include a summary of your question right in the title. Also, one of our members here, Oscar, is from the Netherlands and is familiar with truffles - he's a good guy who has advised many others in this regard, and I imagine he'd welcome a private message from you. Here's where you can do that: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?action=viewprofile;username=566A7A786B190 Finally, searching for "truffles" and such in the top left corner google message board search box may yield some results (I briefly tried, and found some discussion of truffles but wasn't immediately finding guidelines on how much to take). Best luck to you and your dad - you're an angel for helping him, and I bet you'll be successful.Â

I remember seeing that too - it was a massive LSD overdose given to an elephant for a little "experiment", and I see now there was an ensuing controversy over whether the LSD or the barbituate/thorazine administered afterwards caused the death. http://www.erowid.org/chemicals/lsd/lsd_history4.shtml In any case injecting an elephant with LSD is crimminal and extreme cruelty in my book.

That's right neighborly of ya b.g., thanks! I hope to not be needing those numbers for awhile though as I am in the LHZ (Lucky Headbanger Zone) with vit M currently keeping the 'ol McBeasty down for the count. I bet the positive experiences b.g. and weatherman have had with Apria are much more typical indeed, and my persnickety local rep was just an anomaly.

Man that's fantastic that Apria has been so good to you b.g.! Unfortunately they weren't bending over backwards for me so much here in Nashville - I guess the service and value can vary according to local management. It was a few hundred dollars for O2 from them over the course of 2-3 months or so, and I had one of their gals calling me and threatening to cut me off because she calculated that I was using more than my low flow prescription called for (I was of course going for the 'ol high flow action). I found myself reflexively LYING and saying the doc approved high flow to which she responded she would call the doc and confirm that, so the whole deal was getting mighty creepy very quickly. Technically she was justified, but I guess you can see why I wasn't as thrilled with Apria as you. Also, at the outset a rep said they'd deliver O2 7 days a week. Imagine my delight when I called late on a Friday when in the middle of a whole lotta high cycle CH aborts and they said "Whaaaa? No we don't deliver on weekends and our last delivery has gone out today! Now you go have fun with your CH attacks and empty tanks - have a nice weekend".Â

Nope. Yep. Congrats on knocking that beast down with the Vit M nofear! [smiley=thumbup.gif]

Hi Kristi, Sorry, not sure about the O2/mask issue - hopefully someone will be along to help sort that out. :-? Regarding the other preventative options - The RC seeds CHfather mentioned can be (legally) ordered for next day delivery, though I suppose that'd be sooner than you'd actually need them since you'd first need to detox from the imitrex for 5 days.

Hey There LeftEye, I like what CHfather and BlueB said. A lot. Ya came to the right place. 8-) I doubt you have to be concerned about quality controls when ordering spores for growing, since they are legal to order in most states (assuming for now that you're in the USA). It's not like a black market thing. We've seen legions upon legions of CH'ers report ordering spores, and other than some that didn't produce fungi for whatever reason (likely due to growing conditions), I don't recall anyone having other problems with what they've received.

Hi Kristi, I think Ajax mentioned something there that pertains to the "if it's my only choice" issue, which is there are a whole lotta CH'ers (not to mention medical researchers) who've found that busting is indeed a more effective preventative choice than any med out there. Prednisone is horrifically dangerous in sustained high doses beyond the conventional burst/taper dosage. And the likelihood of hip replacement surgery for anyone who goes there is just the beginning of the risked permanent side effects. So yep pred is just a transitional med, commonly used while buying time for the verap to kick in. You might find the video of the talk by the founder of this site, Bob Wold, on his long journey with all the meds and eventually busting, to be very pertinent. It has a happy ending. Here's the link: http://vimeo.com/10918637