Bejeeber

I'll have to watch that one too - thanks. I've gotten half way through the first one and so far it is fascinating and well worth watching indeed. 8-)

Just a quick 30 more years and you should be home free. ;D

I've seen plenty of reports of CH burning out by the time a person hits elderly status. My impression is that there's no guarantee of that at all, but a decent likelihood.

CHf strikes again!! [smiley=2vrolijk_08.gif] [smiley=thumbup.gif] [smiley=thumbup.gif]

Hey Evo! It is so good to see you getting all this advice and encouragement that will put you on the fast track to relief! 8-) That's what I'd call a shadow, but as long as I've had CH (30+ years), and have been hanging around CH message boards (15 years, on and off), I hate to admit I'm forgetting exactly what the official definition of a shadow is! :-[ In a pinch I've actually been able to abort an attack with one of these, although the injectible form is known to be the very most effective, and it would have a higher likelihood of completely aborting an attack for you. You'll read that imigran shouldn't be used within 5 days of busting, which is one of the reasons we're so rabidly enthusiastic here about using high flow 100% O2 instead. 8-)

Yep them bananas sure do get a lotta acknowledgement of their potassium content. But did ya know about these under represented foods just burstin' at the seams with potassium?: - Jeebs, the part time food geek who has been reading "The Encyclopedia of Healing Foods" (recommended)

I don't know, but I believe the Hyland's homeopathic RLS formula has quinine in it. Also, some of us find taking 3 or 4 magnesium gluconate pills before bed prevents RLS. Potassium is supposed to be good for it too....

Don't worry Jon, you'll get over that! 8-) There are lotsa lotsa other CH'ers with a very similar history to yours here (me, I've "only" had CH since 1981-ish so you beat me to the punch by a good 5 years - also I've been lucky enough not to go chronic). I think of RC as especially being nothing to be concerned about the side effects with, since for myself and so many others, when taken right before bed, the main side effect is a better than usual night's sleep! So one minute you're flippin' channels and you see the Nat Geo special, the next you're talking on this forum to the formerly chronic guy who also was on verap for a long time who was featured in it (Hipshot/Dan above). Pretty COOL! 8-)

17

Hey Fester, mushrooms work for me, they're my busting substance of choice, but there are other ways to bust, and one of them, RC seeds (Rivea Corymbosa) is something you don't have to wait around to grow. I would strongly encourage you to stay with the mushroom growing, but RC, which comes with very little side effects, is something you could try in the meantime. It is legal to order online and to possess. Plus in the meantime it might be worth trying the D3 regimen that appears to work for some if you haven't tried it yet: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804 Have you tried high flow oxygen (like 25 LPM+) with a non rebreather mask? Most of us can abort attacks with it, and this can come in especially handy since we need to be off imitrex etc. for 5 days before busting. http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790 Mushrooms are such a powerful CH fighter, I think your chances are good with them, but please don't really make them your last hope.

35,600 when I just looked. Goin' viral really quickly! Dab Dan you are ROCKIN' the house!Â

Yay for the no barf McShroomsky bust!Â

You ARE sportin' a snazzy marquee there 1961mammy. 8-)

WTF!! Aughhh why is that the altruistic types who will risk it all get hit the hardest? I guess the beast just hates that kinda thing and focuses on roaring back with some retaliation. > Dan, didn't you have a relatively good, effective experience with tabs? Are you still considering that route, is it still an option? Hmmm that line of interrogation might be better suited for the Share Your Busting Stories forum. Also, under the category of "might not hurt to try?", wondering if you've run across the fairly recent thread about GABA yet?: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1324654070/0

Just watched it! Wow. GREAT job! Huge kudos to Nat Geo and Dan and family for presenting it in a really beneficial way. Of course nothing can get thru to some folks - there was a person there watching it with me who suffers from other serious pain conditions, and they just went naysayer from moment one, going back and forth between claiming they have CH (they don't), I should use Maxalt instead of mushrooms (???), and wanting to make sure that the severity of CH was discounted and they would still win the pain and suffering competition. Still, even that couldn't put a damper on the festivity - thank you Hipshot family! [smiley=thumbup.gif] LOL because I'm a sucker for CH related gallows humor. That actually turned out to be an effective moment in the film for conveying an idea of the experience.

Hey David, Your dad may be interested in RC (Rivea Corymbosa) seeds, since they are a busting agent that is legal to order and to possess. There's some talk about 'em here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1290128974

All I know is that I've seen 9 to 18 mg often recommended by fellow CH'ers as the therapeutic dosage range.

I haven't eaten meat (including Purina! ) for 31 years. Prior to that I had the only 2 migraines of my life. BUT I think I was actually migraine free for maybe a couple years before going vegetarian, so I don't know if there could really be a link. :-? I guess I mainly just wanted to slip that Purina gag in there. :

2nd time's a charm.Â

Is this the one Ting?Â

I'm right on the verge of nominating Ting for official Cluster Busters mascot! ;D On a more serious note, as much as I can relate to your description of a 3 hour long CH attack, as a luxuriously lucky episodic CH'er I simply can't imagine having several of those every single day for years on end. Thank Gosh you found clusterbusters!!!!!Â

What Mystina said. With an emphasis on this part:

Just thought I'd add, in case it's at all useful, that gabapentin is otherwise known as Neurontin. My casual, anecdotal observance of message board comments by CH'ers about neurontin is that some swear by it, probably more swear at it. Personally, when I was on prescriptions for CH, I found high doses of neurontin to be helpful as a preventative.

You bustin' today jimmys? Best o' results to ya if so!

Sorry, I can see I veered this thread back into off topic-ville. Doh! :-[ I wasn't finding the correct topic regarding the Goadsby visit, but now it's back on the radar, complete with Ron's account. Here it is: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1322612397/25#25