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Everything posted by Bejeeber
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All I know is I'm from fecking Dumb-ass-cuss.
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What CHf just said, although I'd like to just add an exclamation point: ! Â Â Â Â Â Â Â Â Â Â
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I don't know if it would make a nausea difference at all, but personally I tend to think of floater seeds as spoiled food that can't do ya any good, so it's good to toss 'em. In fact I get rid of the floaters amongst my raw sunflower and pumpkin seeds before chowing down -Â I was told seed floaters in general have gone bad, are rancid, and aren't good for ya.
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Maybe you can write it off as a medical experiment in search of an effective new treatment. Lord knows I'm not the only one who has shoved capsicum (cayenne) cream up the shnoz back in the day in an effort to abort an attack. I'm sure tabasco in the eye has to be worse though.Â
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It does seem as if for some us, certain busting agents will work better than others. I'm afraid RC stopped working for me too, but mushrooms are currently doing the trick. Others have had the opposite experience. Plus I suppose we can always revisit the prep instructions to make sure we're doing everything right there - I think I'll probably try RC again at one point, but crush the seeds more gingerly, and "float" the seeds first to weed out the dead ones. Something else I'm thinking of trying is combining seeds with mushrooms mainly in hopes the seeds will mellow out the mushroom experience some (thanks for the idea, Kaboom). Kudos to you for hanging in there with us using just the phone, Buzz, you're doing a good job of proving it can be done! Yep, I do think CH'ers and their supporters do tend to become more open minded as a result of the experience. And heck the mushrooms/tabs etc. don't hurt in this regard either. A positive side effect.
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Berfday greetin's to Brad and the fabulous Spiny son! [smiley=birthdays.gif] [smiley=2vrolijk_08.gif]
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Why yes, yes it is. Because he's a fecking A-HOLE and MO changing is absolutely one of his tactics. > Still, I'm confident you'll be able to tell him "hey MO this you futher mucker!!", and show him what a little KO action is all about.
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Can see that you've been 'round the cluster block on numerous occasions, and know all about O2, busting, etc. Still I figure it might be worth asking if you think RC seeds would be something to consider if you do another bust, since for many of us there's no trip - just a good night's sleep - associated with them when they're taken right before bed....
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Anyone in California (Sacramento Area) to be exact
Bejeeber replied to damiano's topic in General Board
Just wanted to check in here to confirm that you're using high liter flow 100% O2? (Seems most doctors that will prescribe O2 are still prescribing low flows around 10 LPM with a canula or rebreather mask, and aren't aware that liter flows at 15 to 45 LPM or so with a non rebreather mask are MUCH more effective for so many of us). -
Hey Buzz, I'm also interested in finding out what you've tried as the others asked about. If that's your tattoo it looks like you're already familiarized with mushrooms and O2.... And damiano, I see you found and posted that MSNBC link you were talking about, thanks. This Newsweek one is much more focused on CH and worth it's weight in gold IMO: http://www.thedailybeast.com/newsweek/2009/10/14/the-psychedelic-solution.html
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The burnout reports I recall have mainly been from middle aged CH'ers where it runs in the family and they say their parent's CH had burnt out. I wonder if the likelihood of CH burnout depends any on how young the CH'er was when it started? I suspect it does, but I guess that falls under the category of hunch, as I have nothing resembling hard data to back it up.
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I'll have to watch that one too - thanks. I've gotten half way through the first one and so far it is fascinating and well worth watching indeed. 8-)
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Just a quick 30 more years and you should be home free. ;D
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I've seen plenty of reports of CH burning out by the time a person hits elderly status. My impression is that there's no guarantee of that at all, but a decent likelihood.
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CHf strikes again!! [smiley=2vrolijk_08.gif] [smiley=thumbup.gif] [smiley=thumbup.gif]
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Hey Evo! It is so good to see you getting all this advice and encouragement that will put you on the fast track to relief! 8-) That's what I'd call a shadow, but as long as I've had CH (30+ years), and have been hanging around CH message boards (15 years, on and off), I hate to admit I'm forgetting exactly what the official definition of a shadow is! :-[ In a pinch I've actually been able to abort an attack with one of these, although the injectible form is known to be the very most effective, and it would have a higher likelihood of completely aborting an attack for you. You'll read that imigran shouldn't be used within 5 days of busting, which is one of the reasons we're so rabidly enthusiastic here about using high flow 100% O2 instead. 8-)
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Yep them bananas sure do get a lotta acknowledgement of their potassium content. But did ya know about these under represented foods just burstin' at the seams with potassium?: - Jeebs, the part time food geek who has been reading "The Encyclopedia of Healing Foods" (recommended)
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I don't know, but I believe the Hyland's homeopathic RLS formula has quinine in it. Also, some of us find taking 3 or 4 magnesium gluconate pills before bed prevents RLS. Potassium is supposed to be good for it too....
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Don't worry Jon, you'll get over that! 8-) There are lotsa lotsa other CH'ers with a very similar history to yours here (me, I've "only" had CH since 1981-ish so you beat me to the punch by a good 5 years - also I've been lucky enough not to go chronic). I think of RC as especially being nothing to be concerned about the side effects with, since for myself and so many others, when taken right before bed, the main side effect is a better than usual night's sleep! So one minute you're flippin' channels and you see the Nat Geo special, the next you're talking on this forum to the formerly chronic guy who also was on verap for a long time who was featured in it (Hipshot/Dan above). Pretty COOL! 8-)
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Common Threads of CH Sufferers
Bejeeber replied to Tuckerman48's topic in Research & Scientific News
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Hey Fester, mushrooms work for me, they're my busting substance of choice, but there are other ways to bust, and one of them, RC seeds (Rivea Corymbosa) is something you don't have to wait around to grow. I would strongly encourage you to stay with the mushroom growing, but RC, which comes with very little side effects, is something you could try in the meantime. It is legal to order online and to possess. Plus in the meantime it might be worth trying the D3 regimen that appears to work for some if you haven't tried it yet: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804 Have you tried high flow oxygen (like 25 LPM+) with a non rebreather mask? Most of us can abort attacks with it, and this can come in especially handy since we need to be off imitrex etc. for 5 days before busting. http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790 Mushrooms are such a powerful CH fighter, I think your chances are good with them, but please don't really make them your last hope.
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35,600 when I just looked. Goin' viral really quickly! Dab Dan you are ROCKIN' the house!Â
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Yay for the no barf McShroomsky bust!Â
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Advocacy project, Wash DC.
Bejeeber replied to Psiloscribe's topic in Advocacy, Events and Conferences
You ARE sportin' a snazzy marquee there 1961mammy. 8-)