didgens

thanks Cupper ... I know this one ... my Son gave me the hand this am when he was sucking down the O's and I was trying to ask him a question.

thanks so much. CHS have you tried some of the busting methods here ? are you getting any relief from anything ? Im just kicking myself because I/we are relatively new to this (just figuring it out still) and when he doesn't have a CH for a few months I enter denial phase like (oh .. maybe they wont come back) which is totally stupid on my part. It is kinda weird though because I will not post on this site or read posts during that time .. but a few days ago I thought ,, you know I havnt really read any posts on the CH site and I hope folks here are doing ok so just about 2 days ago I came and was reading everyones posts and then he got hit this morning .. weird (sorry for the rambling). I am getting uplifted and feeling hopeful though because I do feel like others here state that success in treatment is just within grasp. At least with all your efforts here and all the good work everyone does here people are starting to pay more attention to this ! anyway .. so sorry for the rambling ,,

Danged if that isn't the same best plan of action of a whole lot of headbangers here have! If only we could just hop on the phone and say "yeah gimme some of those Bromos, and toot sweet. Is there discounted shipping if I order in bulk?". that's hysterical .. but I digress

a side note .. he was able to knock it down getting on the oxygen within 5 minutes. after 10 minutes of O's he stopped because he could feel it leaving .. then he went back to sleep. of course im sure it didn't help that he was up till 4am.

Theres NO reason to get behind the wheel after drinking these days. There are so many ride shares out there. Call a Cab,, Call your Parents (trust me they may be a little peeved at first but they will tell you how proud of you they are for calling in the end) call ANYONE !!

I know all of you here are such veterans and nothing surprises you anymore as far as patterns go. But I was looking forward to Christmas Break (my son just finished finals on Wednesday) and today Is my last day at work for 2 weeks ,,, then this morning came the knock on the door ,, and the need for oxygen. I feel crushed :'( December ????? Really ????? never before ,, what I know is this 1. Tomorrow is the Solstice 2. Monday it was 85 degrees and I was in a swimming pool 3. Yesterday it was 49 degrees and freezing raing 4. My husband had the heat up WAY to high last night and I woke up a splitting sinus headache because of it (it made me almost throw up it was that painful ) 5. My son has been having a few beers to celebrate the end of the semester with friends. :-/

Thanks so much ,, Merry Christmas to you one and all !

seems like all the answers from from natural sources .. let us know !

time to call another doctor. Maybe you can contact a good CH doctor and see if they have a recommendation in your area. ?

thanks for writing this .. I have a bottle and will approach with caution.

agreed ,,, im hoping by the descriptions here he never finds out.

Fall ? or Spring ? Summer ? or Winter ?

ok well ,, you can lead a horse to water but you can give them a beer. So my son never read these posts ( i think he really wants to not talk about the elephant in the room ) Im not sure what will make him research this on his own ?? His decision was to drink last night with the family, so that if he had a bad reaction he woud know ,, and then subsequently NOT drink on thursday night when we all go to the indian casino with his friends. So ,, he drank beer last night .. after not having a CH for a week ... no effect so he had 2 he is very a-typical for a CH sufferer, Kudrow even said so. I dont know what to think. I think im going to ask the question i have in my mind in a new post. thank you all for your input.

oh sorry ,, also ,, maybe i can convince him to wait on the alcohol until we are sure this phase has passed. Are you all able to drink when your not in the cluster phase ?

great info .. thanks all

has anyone tried to take any kind of preventative before having a drink with any success ?

thank you all for the advice .. Im going to have him read this thread and make his own decision.. you all have been a great help.

He seemed to start later this fall. His Pattern has been late September to Late October. This Year it started in late October. He Turns 21 next tuesday and doesnt know what to do. From reading here i have seen that alcohol is a no no. So I am starting this thread so that all of you can lend advice to him and he can read the pro's and con's of drinking next tuesday. Thanks.

has anyone here (and maybe i should start a new topic on this one) undergone a sleep study ?

apparently not much But even if the majority of them are on the same side, my inquiring mind wants to know why ?

I know on my sons affected side by his ear there is a little deformity. I also know he has a deformity in the bone structure of his feet, and his shoulder blade. is this structural ? if it is hypothalmus related why would it only be on one side. Are both sides affected ( as well as all people affected ) by what ever is going on but only the structurally different side is the side that reflects whats going on ?? am i making any sense here at all ?? Happy Friday

thank you all ,, i cant even imagine where we'd be without all of you !

ok sorry .. more info .. (you know how hard it can be to get a 20 year old to give you information ,, im getting better question answer texting him .. lol) He just informed me that 7 - 8 minutes of O's knocked it down.

PM'd you

oh .. adding .. we bumped the flow to 15 as recommended