tingeling

Thank you Denny (You hit the post message button before me, fast for a person at your age, so young of course 8-))

Those words touch my heart Ron, thank you Now i had to wipe my eyes here. Isn`t it odd, how powerful this is? I turn to my family on Internet, and i get support time after time. Really amazing!! You are all highly appreciated. Thank you for being here Thousand hugs, Tingeling

Thank you Keith I`m on the move almost constantly. Even when i eat, most of the time. I use every trick i know of. My body weight is 45kg and i loose weight quickly. Today my arms don't fill my stretch sweater no more, not gonna weigh in before i gain weight again now i think. You gave me a very constructive answer here. Also you kind of resumed what i said, without the rant part ;D Very important. Because i have no problems, i`m just feeling sorry for myself, and i don`t like those sneaky thoughts. "When the amount of idiots pile up, look at yourself". Have no clue how this quote is in English, direct translation from Norwegian ;D Well, now i gonna go outside in the rain and get wet. Hopefully this will give me a "cold shock" shivering. Never underestimate the power of sharing!! That helped!! Hope you`re good, wish you well :-* Tingeling

Hi Had a longer period now where i can`t really do much with CH. It affects me many ways. I kept up with my routines. Eat, sleep, exercise and all that. Now i am at that point where i don`t care. I know i have to do it and i do it. But i don`t care about it. I don`t care about anything. Usually i find almost everything fun in one way or another. Very childish that way. Not now. Been baby sitting today. This person, she always feel sorry for herself. Always complaining about how tired she is can`t get enough sleep. Only around 7 h.... When she asked me if i could look after her child from 7.30 this morning, i answered yes i can. BUT, my daughter is sick, she`s home from school having a fever at 39. And i`m not on top either, but if it`s important i can do it. It`s up to you. She came 8.30, she was so tired this morning. I received a text later on, telling she was finished, but went home to relax. As her child was afraid of the O2, i told her after one h to come because i really needed to do something about it. She came, sat down and complained again. So tired, before she could sleep whenever she wanted, around 12 h, now only maybe nine or seven. And now the trolley was wet, standing under a roof on the terrace, then she couldn`t roll it trough my house. Well, you need to get out and roll it to the car i told her. She wanted me to do it, she didn`t want to around the house. After awhile of this ranting i just felt like i had to leave or something. When stuff like this irritates me, i don`t like to be me. I feel embarrassed complaining like i do now, but i just had to get it out. I feel depressed actually. Have no apetite, weight is going down, that stuff. And i don`t know what to do when i can`t use LSD, shrooms or seeds. If i just could stop feeling so sad. Sometimes i wonder why i always keep searching for new options. Now i have to do it for my daughter of course, it just feel so difficult sometimes. Thank you for being here Tingeling

I simply love Pinky`s tea, just check the name, Pinky`s kick ass tea recipe Good luck!!

I been ok, a bit bored without you folks Missed you folks as well!! Good to be back

Never use spray anymore. It`s just a sinus thing, CH related. Can be very annoying though. But, well well

Hi there LOOOL, i think we all can relate to this. As kaboom says, sometimes i barely can stand myself. Sometimes i get irritated, because i get irritated and that irritates me. Irritating, or what?! ;D Actually, i noticed Red Bull gives me this mood change. I think it`s from the blood sugar rollercoaster i get from all the sugar. After starting with Taurin capsules, problem solved. So i tried again with the Red Bull, same thing happened. That said, i`m not used to high sugar intake, so maybe that`s part of the reason. Who knows. Just thought i would mention it. Positive thoughts to all

Hello:-) online on my phone. Writing takes forever. Mac, i would have a Mac or iPad if i had some money. Really miss you folks, so just wanted to read a little around and say hello:-) See you soon!! Tingeling;-)

Hi Just wanted to say i`m not gonna be around for awhile. I gonna have my computer to service today, as i stared into an almost black screen for months, and getting a bit tired of doing so ;D See you in awhile!! Tingeling

Yep. I do. And Red Bull takes the rest of it. I used the Taurin tablets now, it works better for me, as i can`t take the sugar in Red Bull, and not the artificial sweeteners in the non sugar version. Taurin helps blood sugar levels stable, so i guess it affects apetite, like fibre f ex do as well. But to me, imitrex just "melted" me into nothing. With Taurin there`s positive effects, besides helping CH. But again, that`s me, we`re all different

How long since you started treatment now? when i started busting, i got great changes. but i had a struggle in the beginning dosing first every 3 day, even if it was rec the 5 days. But at the time, i was very worn out. I was very very skinny and suicidal. I had been experiencing between 4-9 attacks a day, lasting for aprox 3h each. Without O2, without Imitrex not anything. Because doc`s said it was migraine... After 6 years of this hell, i was very tired. In six years i had 23 days with less than 4 attacks. That\s just awful, as you know. I got the right diagnose and was given Imitrex, i got a Imitrex junkie, and that medicine was very bad news for me, it speeded up everything so i got even more skinny, and then i got suicidal. Then i came here I stretched it from 3 days to 5, 7, 9 etc etc. It took me around six months before i got PF for a bit longer period. But life changed to the better overall, so it was ok anyway. I was happy. This was last summer.Then it started treat the other side, i went trough a period with the same process on that side as well. Then i got double cycles, or what you could call it. then all of the sudden there was change. I found i had to maintenance bust once a month, but in high cycle i had to do a two in a row bust, maybe. But you can "tell". What i want to say is, this can take time. And sometimes we just can`t go off meds "over night". I couldn`t, i was too tired. But as i got better i did. It`s a process, ongoing process for longer time, as i experienced it at least. Now i found peace of mind. I live in balance, "controlling" CH in my daily life that way, and do my monthly bust. Med free. Exercise almost everyday and enjoy life to it`s full. After seeds i even waited for 8 weeks once. Some fuzz in between, but i do have this condition, so there`s nothing else to expect really. It`s ok So don`t give up, you will get there if you want. Just give it time, your body needs time to adjust and repair. your mind as well i think, sometimes we "get Cluster", instead of having Cluster. It does that to us in the end, this nasty beast. It takes a little time to "get out from there" in our minds as well. Keep it up Chris PFW Tingeling

Hi Welcome when i tried to get O2 first time, neuro didn`t answer me. I tried several times, everyone i asked just "talked it away". I have been told it`s because of the deals with pharmacy companies, they offer meds first. don`t know if it+s true, but... What is very important in my opinion, is how you eat, sleep and live. Eat non refined food, drink lots of water, exercise make a huge difference. Keep blood sugar level stable, stay away from sweets and fast carbs. Sleep in a more sitting postion and get up the same time everyday, weekends as well. Things like that improve the situation more than you can imagine. I know it`s hard in the beginning, but it`s worth the effort. Keep the balance right Just ask, if you have questions. Pain Free Wishes from me Tingeling

I had them in the frigde for three days before drinking it. Worked well

How are you doing now? You had some trouble with detox from a med.

Hi Angel Been wondering about you and your hubby, thanks for the update. This was the best news to get early in the morning Just wonderful!! Maybe the treatment broke off most off his cycle, so preventives could work. Same same, as long as he`s doing good. Enjoy life to it`s full My best wishes to the hole family, gonna be a great year Tingeling

About the stress, or more relaxation. If i stay on my feets i dp allot better then sitting down and "relax". Some days i need to be in constant movement. Like driving car, it takes about three to five min, and i feel some shadow or whatever. On bad days driving a car is not my best choice. It helps to keep window or windows open, drink some Red Bull, things like that. But in general, relaxing is not the best for me. Listen to your body what it tells you

I know the word Ron, just kidding. Reminded me about Austin Powers ;D

BTW You keep coming up with this new words all the time. From what you write, could a person be spunkalicious? ;D

I actually got the licorice thing. I got hit right away. After Tried two times today, same thing happened both times. Maybe i just don`t tolerate licorice. Mushrooms sometimes give me bp drop, same with imitrex. Seems this does the same. I know it`s not supposed to, but it does. Maybe just a reaction in the beginning. Dan, if your into droopy eyes, that`s just how it is. In here, hard to take a pick, just too many choices

Sounds as a plan to me, except i want to be the one who make dinner

Ron, can i order this from where you ordered it? you have a link?

Beauty has no age. Have a wondeful birthday

Good one to share

Is this yours? Nice one