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spiny

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Everything posted by spiny

  1. We've had silver fillings around for longer than you or I have been alive. No, they don't cause CH. Your dentist is right, they are a fine solution for reconstruction. Actually, they are still among the BEST fillings out there, due to thermal changes (expansion and contraction) in your mouth. Their rate of change most closely matches the change in your teeth. Sinus surgery won't get rid of CH, neither will having some teeth pulled. Lots of us have tried. Having your septum straightened won't fix it either. And no, a chiropractor can't kill them with an 'adjustment' either. It is not your neck, but CH will make your neck hurt like hell. > > You can have sleep apnea with or without CH. Doesn't matter. The same with TMJ. Your neuro should do a MRI and perhaps a MRA to make sure you don't have a physical impingement on the Trigeminal Nerve or an Aneurism (sp?). Your eyes? I've had all that done too, recently. CH will give you Horners Syndrome. Horners does not give you CH. Purple404, Sweating is common, especially on the CH side. Sweat will run down only that one side of my head and face. Just like your sinuses running or your eye dripping. And I am right there with you on the 'don't talk to me' thing. If I focus or try to, it gets worse, rapidly!!! > It seems to connect to the eye movement when trying to listen to someone. The eyes move and my head explodes in short cascades of pain. It seems to me that bringing my vision into focus sets it off. Background, only background. Some people are light sensitive. Most are not. That's my take anyway. And I have spent a helluva lot of money gathering this info too. > > spiny the indomitable!
  2. spiny

    Legal fund

    Positive, healing vibes on the way. May she come thru the surgery with flying colors and the recovery go fast and smooth! I'm with you Tucker. May take time, but ya can't get yesterday back, so start now!!!! 8-)
  3. Absolutely: GOOD LUCK!!!!! :) Keep posting. No cure out there, yet. A decent Neuro is hard to find. Hope you get one of the great ones!!!
  4. spiny

    Legal fund

    Tuckerman48, Just the guy I was suggesting! I'll see about researching the non-profit issue in the next few days. Not an attorney, but I do have some resources. Let's keep plugging to see if it is possible!
  5. Pixie, So glad you are home and your heart is fine. All the rest bites!!!! > If you have to have the nitro your heart, it makes for a tough decision. If anything else will do the trick - scream LOUDLY against it!!!! When you are young, they mistakenly think you are naive or ignorant. Put them in their place on that one. Do you have or have you considered one of those Medical ID bracelets? You might have too many no no's to put on one (I do) but you might consider something like 'Check My Medical Records before ANYTHING'. Glad you are out. Now, get better!
  6. Renee, See problem. Attack problem. Right? Keep on trucking. As you are well aware, things change. spiny who wishes you all the best in the world
  7. Ok, Since I have hounded you worse than most anyone about the O2, I will jump in again. It's been over a week I think, so NAG them. It is just something we do, right? Nagging that is. Or at least I have been told that a lot over the years. ;)
  8. spiny

    Say What!?

    I have referred to it as 'The Dragon'. Mainly because it is mythical and no one has seen a dragon! $hitstorm in my brain really is more realistic, but you get funny questioning looks from folks who really care about you. If you try to explain, they try to follow and offer to help. All of which leads me back to dragon: A firebreathing mythical creature that we have some tools to protect ourselves from, but not enough to keep it locked up safe and sound. I don't hate it, I accept that I must exercise personal power over it. Hardest, I must control my response to it. Without that, he says terrible things using my mouth. Controlling my outlook is my control. Maintaining that control is the hard part. Recently, I let the head write down what was going on. No input from me, sort of stream of consciousness writing. Then, it was a jellyfish. Spiritually, I don't feel that it gives it any power, just a name for others to recognize when I am in pain. As a spiritual being, I feel that we are given a chance to view a past life, see how we dealt with it, and then decide whether we want to tackle that issue again or another. Personally, I am sure that I will need a 'do over' on some things. I fail to see how most of us can feel ready to say our soul is 'done' - has reached its highest potential. Just as I can say that this post does not include or touch on all the points properly. Many pieces are still drifting, not formed into coherent thought that can be shared.
  9. ipain, Many times Pred. will not work once you begin to taper off. For me, at 3/day, the CH returned. Verap helps many, but it is bad if you have low PB. O2 with a non-rebreather mask at 15 to 25LPM is rocking! In a good way. Ask questions. Read. PM anytime. spiny
  10. Good luck Renee! Yes, going on the pill has set off many a migraine. I don't know that stopping will end them though. When I was first diagnosed, with migraines mind you, they said to stop the pill. I did, but my CH remained. I saw no connection between the two. Once started, the pill made no difference for me. Fingers crossed for you!
  11. spiny

    Say What!?

    Renee, Got space for another traveler? I'm afraid that when I look back at what I learned and conquered in this life, I will have to take on something more stringent the next time around. I believe it is all in how you handle adversity, the decisions you make when faced with it, that determines your spiritual growth.
  12. spiny

    Say What!?

    So, having my head pounded in a previous life did this to me too? Great. > P.S. I did read and enjoy all those dang books! Course, I read The Hitchhikers Guide to the Galaxy too. 8-) 8-) 8-) 8-) Restaurant at the End of the Universe, here I come!
  13. Mrsg, I hope you have a high flow O2 set up. At least 25LPM. Also, the non-rebreather mask. That should get you an adequate flow for aborting. What is your set-up? Less than 15LPM won't work! spiny the grump
  14. spiny

    Legal fund

    I'd get Allen Gura for defense! 8-) 8-) 8-) 8-) 8-)
  15. I'm too old to remember. :D :D
  16. Bonnie, Welcome. Glad you got here. Sorry you had to. As a nurse, I suspect you have O2 available. It won't get rid of the beast, but it will abort an attack. Read the O2 thread. It tells the whole story. Some of those 'lovely' meds really suck. They help, but they suck. Someone will help you soon with the other treatments. Look at the other New Here thread by mrsgnreyedidy. It contains links to some important threads to get you started. All the best, spiny edited to add
  17. spiny

    Back again

    didgens, How is your son today? Anymore hits? I sincerely hope not. Some 'flukes' just seem to happen, for me anyway. Fingers crossed it was one of those, just a 'stand alone' hit caused by outside stuff. Let us know, ok? spiny The Happy today ;D
  18. spiny

    Back again

    Hey Les, Why does my 'wake cycle' only hit after I go to sleep at night? Repeatedly? :-? didgens, That sucks for your son. Any stress involved in today's schedule? Stress is a trigger for many too. Two things, rolled into one may do more than add, it may be logarithmic. Put the two together and you may see the beast. Any weather fronts move thru at that time? Lower barometric pressure will be a trigger for many folks too. Try to consider all the bases leading to the home run. You will get a better answer. Hope that makes sense to someone other than me! : All the best,
  19. the bb, Thanks for the link. It says one month PF vs two weeks PF that I have read elsewhere. Also, I now know why triptans and I do not get along. I am allergic to Sulfa. Surely am glad I refused them. Took two Imitrex once a long time ago. My body just said 'No'. I didn't feel 'right' after taking the stuff. Now, they would for sure produce a violent drug rash at the minimum. Another 5-6 months and I will be chronic. > But, then again, I might get out of this hell-hole sooner. 8-) So, I will wait to post on this again in a few months, if necessary. Just wanted to say 'Thanks". spiny the sleep deprived
  20. spiny

    Legal fund

    How about investing it? In the Shitake Schroomery we have heard about!
  21. Kyle: As the 'beer judge', I don't know how this escaped you!
  22. Evo, For some of us, beer is a BIG trigger. Two sips gave me my first K9-10 about 8-9 years ago. A beer will still signal a new cycle for me. Passing the Beer Test, for me, means drinking a beer about 5-7 days after I think the current cycle has ended. If the dragon stays put, I PASSED the BEER TEST! If the cycle is not over, I will get hit before the bottle is half empty. > I use the 'Beer Test' because beer, one of my favorite beverages, is a sure fire determination of the cycle end. Hope this helps!! spiny who passed the Beer Test today :D :D Of course she was cautious and only drank ONE! :
  23. I don't know if this would work where you reside, but many over here use welders O2. You can get a proper non-rebreather mask at the sister site for about $25.00 plus shipping. Someone will post more on that most likely. The other 'nicety' is a regulator so you can dial 15LPM or more as needed. However, you can still run without the LPM regulator or mask. For quite a while, I used my regular welding set-up. Just turned on the O2 and added a wet washcloth over the welding tip. It helped to reduce the dryness of the O2 and I felt safer blocking off the tip and any residue left on it. My husband watched me a few times because he was worried I would turn on the Acetylene instead! :-[ At first, I was concerned with it being 'welder' O2 and perhaps causing problems. Then, I remembered all the guys I used to work with huffing the O2 to kill a hangover! In my reading and from what my regulator says, you will need at least 300PSI input from the tank. I still use this O2 supply, since my Dr says that O2 is too expensive! > Fools can be doctors around the world. You can also make a bag to cover the hose or tip on the tank. That way, there is plenty of O2 in the bag. Just be sure to exhale away from the O2 bag. Slit and tape the bag to the supply and make a hole to suck it out from elsewhere on the bag. If you continue in construction, I bet you might find a welding set-up on site at work! Tell them you have a 'slight' hangover! 8-) spiny
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