ThatHurtsMyHead

We're here for you Crystal. The O2 setup will definitely help you at home, car etc. The faster you start the O2 the quicker the attack subsides. Good to hear the ER actually helped you. Of all my visits to the ER not once did they actually do something to help. PF Wishes my friend, Jeff

Take care Chris! PFW, Jeff

Crystal, Sorry to hear you're having a bad go of it. You'll find there are many if not mostly survivors here. I'm 100% confident properly following the seeds and/or the Vitamin M path here, your attacks will significantly improve or completely go into temporary remision.! (I only say temporary, since there is no cure) PFW, Jeff

Crystal, O2 + Fungus ='d my life back in an unbelievable way. Keep on plugging away and never give in! Gotta get the beast when he's on the run. Don't let him snap back PFW, Jeff

Moxi, Jeebs, YES, CH DOES need to be changed to Cluster Attack (CA) and remove headache from the name all together. Jeff

Darkwraith, Glad you found us and hope you stick around to share your knowledge! PFW, Jeff

Slander, Sorry to hear what you've had to go through. I've learned modern doctors aren't doctors at all, they are presription writers. They really have no idea as to how to actually solve medical problems. One notch above witch doctors, and that notch is a small one.... You, like me and many others I've read about, we were able to diagnose ourselves by researching information on the internet as CH. Then brought that to our doctor. Why couldn't the doctor simply flip open his medial journal to head conditions and review the symptoms.??? Dunno, incompitence by MOST doctors I guess. I'll help any way I can, as most here will PFW my friend, Jeff

Mom!! You did great!!! Jeff

Tommyd, Actually I would suspect directly lumping CH together with migrain would lessen our chances of getting proper treatment. FACT 1: There are already a gazzilion (is that really a number?) medicines developed and used for Migraine. FACT 2: NONE of those medicines really work on clusters (ok maybe imitrex, but on label no one can take 8 shots a day for 4 months)... On label I think you can only take something like 4 shots every 3 days if I remember correctly, and then you get rebounds. Developing more treatments for migraine isn't likely to help Cluster Heads. I completely agree with awareness and (a gazillion) other efforts those on this board and elsewhere are doing to further helping those with CH.. BUT I have to say that article about MIGRAINE and 'other' headaches, struck a nerve. I've been told "oh just take a tylenol and get back to your desk" cr@p. Putting us in a SUB catagory of migraine is demeaning... I'm not trying to down play migraine here. But, let's be honest that article is similar to saying "Stomach Ache, and other stomach related issues, (sub paragraph Stomach Cancer, like the two are even related. They're only related because of the part of the body they affect). Jeff

Black... If Cluster Headache needs a color it should be BLACK. In memory of those that decided to end the pain. No doubt there are many that took that action, were never properly diagnosed nor ever told friends or family what was wrong before they did it. Purple is a happy (Rainbow) color, not at all representative of Cluster Headache... Just my 2c... PFW, Jeff

I don't want to sound crass, but a migrane is NOT a cluster headache. It's a Suicide Headache. I interpreted the article to sound like oh yea,,, and cluster headaches are like migrains... but Migrains are the worse of the head conditions represented.... I feel like we've just been further pulled into "oh you just have a headache" kind of cr@p..... CH should be completely separated from Migraine or other headaches... Colors and ALL. (ok I'll stop now) Jeff

Shades, Sorry to hear you're having such a bad time of it. I (and many others) will definitely stress O2, O2, O2... It's the only way I could detox to bust. It works about as good as trex without any of the aweful side effects and you can use it over and over and over, with no toxicicity issues like trex. PFW, Jeff

Burning leaves are an immediate trigger for me. some other strong smells like gas etc, but nothing as bad and quick as burning leaves. Monster in the blue can +++ (doesn't have sugar that makes me tired) O2 with me everywhere I go when in (or near) cycle +++ PFW, Jeff

Fireside, I don't want to sound insensitive as I can understand your position, but I would recommend NOT taking ANY legal advice from someone on an internet message board. 100% of your legal advice should come from your lawyer. I will give some friendly advice on your mary J and other drug use. If you plan on trying to get into the med field you'll need to be 110% free of any substances, no matter the reason you take them. Some companies won't even hire if prescribed presription drugs show up on a uninalisis. Again I don't mean to sound insensitive as this board has some of the most understanding people around. Many of us are walking the line to stay alive.... Jeff

Mystina, Glad you're home!!! Get well! Jeff

Kymera, Pretty sure I read somwhere that MJ increases CH attacks and frequency? Might want to look into tapering that down for a while? Dunno, someone more knowledgeable than I on the subject might chime in here. "Earth calling Ricardo.... Ricardo... Come in please..." (maybe Ricardo can shed some light on MJ and CH). PFW my friend, Jeff

Tucker, I just reread over your thread. I can't see anything you're doing wrong, other than I can only guess your seeds may be old / weak. You may need to either order from another vendor (where did you get your seeds?) and detox for another bust /or move to another substance LSD or Vitamin M (detox needed as well). PFW my friend, Jeff

Kymera, My apologies but I think I was away from the board when you came on. Are you busting? Seeds, Fungus? PFW, Jeff

Kymera, Glad you're still with us and found the website. [smiley=thumbsup.gif] My moment a few years ago was with a 9. Hotline: While I think it's a great idea even if it only saves one person with CH.., but have to say in my situation I don't think I would have called anyone even if they understood my situation. Only because I wanted the pain to stop and a phone call certainly wasn't going to help end the pain. Now a positive note. I definitely think if someone were to call a hotline they would be MUCH better off if the person on the other end had an understanding of CH and didn't try to treat the CH'er like he was doing it out of depression. 2c Jeff

Tucker, Alleyoop put it on the nose. Don't delay getting on your O2. I've personally learned that you have to get to the O2 EARLY or it won't help much, if any. As soon as you feel the beast sneaking up on you, immediately get on the 100% O2. Many times in the past I've told myself "oh this feels like a small one, It'll go away".. or.. "I need to save my oxygen for bad ones"... Don't listen to those voices. I think over 90% of CH'ers find O2 works if they get on it within the first few minutes they feel the attack coming. Don't subject yourself to anymore pain that you have to. Trust in the O2 god.. Heck it can't be bad, it's kept me alive all my life.. (ok had to weave a joke in there somewhere. PFW my freind, Jeff

PF Wishes Tucker Hope and expect you to see improvement soon my friend. JEff

Ex-Smoker (20 years) I heard another CH'er some time back mention a connection that everyone with CH he had spoken to had smoked at one point. ?? I have to agree that after dosing I don't really care to drink for some reason. Definitely have to agree on Psychedelics, they don't agree with me either. I'm learning to manage the experience better though. The one time I busted with a friend / sitter, was much easier than busting alone. (That ole set and setting thing I guess) Jeff

I'm thinking the relationship to LSD or fungus is completely disconnected from the actual issue - killing while drinking. Million dollar bet says LOTS more people kill other people while on alcohol. You can open the paper in any major city every day and read about them. Jeff

You know I've been thinking about hopping in the car and going on a yard gnome killing spree.... ahhhhhh... Here I go...... ;0

BlueBalls hit it on the nose! Coffee Griner +++ Mine only takes like a 4 second pulse. Jeff