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ClusterBusters

dmlonghorn

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Everything posted by dmlonghorn

  1. dmlonghorn

    Anyone need a Zoom Chat?

    It was great, would be cool to do more.
  2. dmlonghorn

    Beast wants to come back

    @Luis Sorry to hear that. It seems we're in the same boat, mine are ramping up as well.
  3. dmlonghorn

    Permanent cure

    Agreed. This thread can drift away.
  4. dmlonghorn

    Oxygen help

    15 LPM wasn't cutting it for me so I bought this regulator, very much recommended.
  5. dmlonghorn

    Emgality

    H-Town!
  6. dmlonghorn

    Emgality

    Hi Luis, What dosage of Emgality did you start out at?
  7. dmlonghorn

    Prednisone Not Working

    I am in a cycle and came down with a upper respiratory/sinus infection. When this happens my CH activity gets worse so I chose to do a Prednisone taper, in addition to increasing my D3 intake. While I hoped it would also end this cycle, it did not. This taper was only 5 days. My previous experience with an effective Prednisone taper started at 60mg over 5 weeks.
  8. dmlonghorn

    What if there WAS a CURE?

    Forward this post to 10 of your friends or the "cure" will disappear forever.
  9. dmlonghorn

    Update

    Freud!!! It's good to see you back in the mix !
  10. dmlonghorn

    introducing my friend who just registered for the board

    Hey Spike, Come on in, have a look around.
  11. dmlonghorn

    Chronic Cluster a Year OR Longer?

    Hey Elrik, My neurologist refers to us as "Tic-Tacs"... I'm familiar with what you've described. Episodic CH diagnosed in March 2018 and my TN was confirmed earlier this year, experienced both TN1 and TN2... Fortunately my TN flare ups are infrequent and my CH is under control with treatments found here on the forum. Feel free to shoot me a private message, I'll be happy to help where I can.
  12. dmlonghorn

    Here's a beer to avoid

    Hey BoF, As funny as that would have been, I didn't see any.
  13. dmlonghorn

    The alcohol test

    I tried and failed with white wine at the conference Friday night. I got hit and learned that my low level constant shadows are an indicator of still being in a cycle.
  14. dmlonghorn

    Do you know they're coming?

    My tinnitus is pretty good indicator for me. When the ringing in my ears is really ramped up, I know I'm in the "danger zone". I also noticed that my heart rate will jump up before a series of attacks start.
  15. dmlonghorn

    Quick update

    Dude! Scoreboard!!
  16. dmlonghorn

    Shame?

    @jon019 agreed! Start with your family and communicate... And then communicate some more. In my home, our own form of sign language is evolving. It helps when I'm about to get hit, getting hit, etc. Things like thumbs up, down, hat on backward, sunglasses on inside. I downplayed the hell outta CH at work, things only got worse at work. Try to get a mini plan at home that works and implement variants of the plan throughout other portions of your day to day life. Shame on CH, not you. Ya hippie!
  17. I found this article interesting, I hope you do too. https://www.iflscience.com/brain/magic-mushroom-chemical-hyper-connects-brain/
  18. dmlonghorn

    Exercise / Running while in Cycle

    I've been experimenting with this for the past week. Body weight exercises, running, walking, etc. For me, CH does not discriminate against physical activity. But on the flip side, physical activity helps prevent complete CH attack manifestation.
  19. dmlonghorn

    Age? Altitude? Verapamil? Zomig? Exercise?

    Hey Andy, You're not alone here. I experience relief when I go running, but if I don't run long enough, it will continue build... 30 minutes is generally my sweet spot. If you have an oxygen tank, you can inhale enough oxygen to abort the attack within minutes and you won't even have to turn on the treadmill. Pain Free Wishes!
  20. https://www.biospace.com/article/teva-scraps-chronic-cluster-headache-study/
  21. dmlonghorn

    My latest Vitamin D Results

    In Feb of this year, my vitamin D levels were at 74.6 ng/mL. I started @Batch's D3 regimen roughly two months ago. I just had my D3 levels checked earlier this week and I'm now down to 70.0 ng/mL... craziness!
  22. dmlonghorn

    My latest Vitamin D Results

    10,500 IU / day
  23. dmlonghorn

    This helped me- hopefully will help others

    Indeed!
  24. dmlonghorn

    My latest Vitamin D Results

    @Batch hasn't responded yet, lol - j/k. I just passed this info onto my neuro, awaiting to hear his thoughts.
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