eileenbunny Posted January 11, 2017 Posted January 11, 2017 The 12th Annual Clusterbusters Patient Conference will be in Chicago, IL from September 14th - 17th, 2017. Details and registration coming shortly. 1 Quote
eileenbunny Posted January 20, 2017 Author Posted January 20, 2017 Don't Miss the 12th Clusterbusters Conference!! This year's conference will start with registration and the President's Cocktail Reception on Thursday, September 14, 2017 at 5:30 PM. The speakers and presentations will follow beginning at 9am on Friday and continue to Saturday at 6pm. A farewell dinner will follow. Registration link: http://events.constantcontact.com/register/event?llr=asfwt7iab&oeidk=a07edp1qq7m9f077a1c 2 Quote
Stump BeefKnob Posted January 20, 2017 Posted January 20, 2017 Dear God I need to change my profile picture. I'm a big fat ass now Quote
Psiloscribe Posted January 21, 2017 Posted January 21, 2017 Dear God I need to change my profile picture. I'm a big fat ass now I think you should just send your wife instead. I have some stories I'd like to tell her ;-) Bob 1 Quote
Christine Finngaard Posted February 3, 2017 Posted February 3, 2017 I spelled my last name wrong on the registration-form for the September conference in Chicago 2017... My last name is FINNGAARD. Anyone who can help me change it to my correct name?sorry!♡♡♡ Best regards Christine Finngaard Quote
Dallas Denny Posted February 4, 2017 Posted February 4, 2017 Hi Christine! I'll send a message to the conference chair and ask her to contact you and get that fixed for you Dallas Denny Quote
senstrom1 Posted February 7, 2017 Posted February 7, 2017 I am going this year, saving account be damned. I have never in the 20 years i have had CH spoke directly to another person who also had it. Such a simple thing I believe will have a profound effect for me....I need to know that you all are real people. 1 Quote
dlnmerced Posted February 11, 2017 Posted February 11, 2017 Registered and hotel reservations made 1 Quote
urs Brasil Posted February 18, 2017 Posted February 18, 2017 I'm very interested to join as I realize it will be late in this year and I possibly would be around... My question is, is there a closing date for registration? thanks Quote
clusterb Posted February 19, 2017 Posted February 19, 2017 Just signed up last night, my wife and I are looking forward to this very much....Cluster heads Unite!!! Quote
Shay Posted April 2, 2017 Posted April 2, 2017 Hey Guys, First time on the site, first time posting. I've been dating a 5 year CH sufferer for the last year and have felt him getting more and more isolated due to his condition (coupled with unemployment). I am trying to get him more connected with his fellow CH community, do you think coming out for this would be helpful or overwhelming for him? Also, is this conference for CH sufferers only, or is it open to supporters to attend as well? Many Thanks! Shay 1 Quote
Dallas Denny Posted April 2, 2017 Posted April 2, 2017 G'mornin Shay! Welcome to the community! Attending the conference will be life changing for both of you! The only thing that he might be overwhelmed by is knowledge gained and the cluster bud love! ! And, we have many, many supporters who attend as well.....we love our supporters!!! Dallas Denny 2 Quote
CHfather Posted April 2, 2017 Posted April 2, 2017 Shay, thank you for being a supporter!!!! I would suggest that you (or he!) start a thread in one of the other forums here (Share Your Busting Stories is a good one, even though you probably don't have a busting story to tell). Let us know -- as specifically as possible -- what he's doing for his CH (meds with dosages; other treatments); what seems to help and what doesn't. There are likely to be a bunch of things he can do to make his situation better. Isolation is very common, with many underlying factors, but knowing that his CH is more manageable is definitely a very good way to start changing that. 2 Quote
eileenbunny Posted April 7, 2017 Author Posted April 7, 2017 On 2/3/2017 at 6:15 PM, Christine Finngaard said: I spelled my last name wrong on the registration-form for the September conference in Chicago 2017... My last name is FINNGAARD. Anyone who can help me change it to my correct name?sorry!♡♡♡ Best regards Christine Finngaard Hey there, I'm sorry I forgot to follow up on this but I did update your registration. Sorry for the delay in getting back to you. Two months isn't so bad...right? Quote
K9LOVER Posted May 30, 2017 Posted May 30, 2017 Looking forward to attending my first conference! 1 Quote
getrdone Posted June 2, 2017 Posted June 2, 2017 this is my first conference, and with any luck, and a good day at seas I will be travelling by boat there from Toronto, should be fun, then from there down the river to the gulf of Mexico, I was thinking somewhere warm would be a nice place to dock the boat for the winter Quote
Schaan Posted July 15, 2017 Posted July 15, 2017 Bout time huh...? Jen & I will be there on the 13th. Schaan Quote
Brew Posted August 1, 2017 Posted August 1, 2017 At this year's auction, I will be donating the final piece of art by Pat Mitchell from her now finite portfolio. Simply entitled "Mushroom," it is a mosaic piece designed for the garden. It stands about two-and-a-half feet tall and is grouted with epoxy grout, designed to remain outdoors all year long. 1 Quote
Keyser Posted August 1, 2017 Posted August 1, 2017 I tried to book a room at the Embassy Suites today and the conference rate is not available for Friday the 15th only Monday 11- Thursday 14th and then for single days either the 16th or 17th. I spent 45 mins + talking with an employee there and ultimately booked at the Comfort Inn for $110/night 1 Quote
Kilroy2.0 Posted August 29, 2017 Posted August 29, 2017 OMG! I can't wait. Thomas and I are looking forward to seeing everyone again. Quote
Tim Flanigan Posted September 1, 2017 Posted September 1, 2017 On 8/1/2017 at 2:43 PM, Keyser said: I tried to book a room at the Embassy Suites today and the conference rate is not available for Friday the 15th only Monday 11- Thursday 14th and then for single days either the 16th or 17th. I spent 45 mins + talking with an employee there and ultimately booked at the Comfort Inn for $110/night I to am at the Comfort Inn Quote
Tim Flanigan Posted September 1, 2017 Posted September 1, 2017 On 8/1/2017 at 2:43 PM, Keyser said: I tried to book a room at the Embassy Suites today and the conference rate is not available for Friday the 15th only Monday 11- Thursday 14th and then for single days either the 16th or 17th. I spent 45 mins + talking with an employee there and ultimately booked at the Comfort Inn for $110/night I to am at the Comfort Inn Quote
Tim Flanigan Posted September 1, 2017 Posted September 1, 2017 On 8/1/2017 at 2:43 PM, Keyser said: I tried to book a room at the Embassy Suites today and the conference rate is not available for Friday the 15th only Monday 11- Thursday 14th and then for single days either the 16th or 17th. I spent 45 mins + talking with an employee there and ultimately booked at the Comfort Inn for $110/night I to am at the Comfort Inn Quote
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