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ClusterCured

Diet and Clusters

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Hi Everyone,

I'm probably going to be the first to tell you that clusters can absolutely be cured.

As I have said in previous posts, I suffered for years with clusters and intense debilitating pain. I went to three neurologists who prescribed me Imitrex, Percocet, and Oxygen, but told me they could not figure out this problem.

I was so sick of the constant pain holding up my life, I did something drastic. I stopped eating all processed foods, meat, and dairy. My diet is fruit, vegetables, beans and rice. All I drink is tea and water. It was like a miracle. In two days they were gone, and during the summer, the worst time of year for my clusters. They've been gone for two months, and I have my life back. 

My mom had chronic migraines also. She changed up her diet. Gone. She was so upset she didn't try this when she was younger. No meds. No doctors. Are you ready to live again? 

Why is there not more research on the link between diet and clusters?

Medications have side effects and are expensive. Can we get some research on diets linked to clusters and diet that cures it?

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2 hours ago, ClusterCured said:

Hi Everyone,

I'm probably going to be the first to tell you that clusters can absolutely be cured.

No....sigh...you're not...so please allow me to "fix" that fur ya: ABSOLUTELY!

"I'm probably not going to be the first to tell you that I have found something that works for ME...it's diet...it's this diet....whadda ya think?"

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Diet?....good discussion topic. And actually... there have been reams of study and multiple publications and books re diet... which show successful management of migraine.. for some...based on diet modification....either minimal or drastic. 

Talk to a bunch of clusterheads and you will hear about 'triggers" from certain foods and food groups....for myself: alcohol, aspartame, msg, and other high glutamic acid containing foods have all been problematic. Over 35 years I've learned what to avoid...depending on where I was in cycle. Alas, massive changes in diet proved fruitless...YMMV...........

There is some correlation between migraine and CH....most if not all of the meds used for CH were actually developed for migraine.  (excepting oxygen...which seems only beneficial for clusterheads v migraineurs. Have you tried?) Though one must be FULLY cognizant that they are completely different ailments...coincidental...partly... to the head.

There isn't a single person on this list...or other lists... that don't yearn for more research on ALL aspects of CH. So far our relatively small numbers and therefore minimal economic incentive impact have stunted that. It seems to be getting better...based in no small part by the founders of this here site we are on!

Best

Jon

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Thank you for your comments, Jon019. I do get a little carried away especially after suffering for so long and finally finding what works for me. I really want others to try this and see how effective it is. It's felt like an uphill battle for years with these headaches, and I know I was willing to try anything to get them to stop. Changing the way I ate was a huge adjustment, but the shocker was how quickly it worked. I would have expected it to take much longer of a diet adjustment to effect the clusters, but they were completely gone after two days. I'm normally a very anxious person and work in a very stressful work environment. I've had some major stresses, but nothing has brought back even a slight headache in two months. You'd never believe the amount of work I get done, and how clean my house is now that I'm not crumpled up in bed with pain. My mom has also had a complete breakthrough with her migraines. Will someone else please try it and post?

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The only time I tried this type of diet my clusters came out in full force.

 I agree that if you are allergic to certain foods it will make your clusters or migraines worse, and there is a little evidence that some migraines could be connected to food allergies but as of right now there is very little evidence to connect diet with cluster headache.  Over the years I have heard a lot of people go on different diets but very few of these people ever seem to get long term success.  There have been a number of people who have thought the diet they were on was working, only to find out what really happened was that the clusters went into remission.  I hope this is not the case for you, but I hope you can understand that sometimes chronic cluster headache goes into remission and many times people can not figure out why.  Maybe the diet you went on stopped the clusters completely, maybe you went into an unrelated remission, maybe food allergies changed you from a chronic to an episodic sufferer.  Unfortunately at this point there is no way to tell and 3 months of no headache does not necessarily mean that you are "cured".  I hope so, but it could just be that you are in remission.    Keep us updated as time goes on.

-Ricardo

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Hi Rainmaker, I’m extremely happy to say that my clusters have been gone for years now. Around Thanksgiving, I overindulged a bit and had a small migraine, but nothing two Aspirins couldn’t help. I haven’t had a massive episode since my diet adjustment. No meats, no dairy, no processed foods, and no added sugars in my regular diet. I got so much better at cooking and found great recipes online that work for me. I work two jobs now, full time and one part-time, and also I’m taking college classes. It’s a lot of work, but I’m living without pain and feeling great. I hope everyone out there takes steps to find what works for them because I truly believe what you eat is the key. Thanks so much for checking back with me. 

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I'm happy to hear that has worked for you so far and I hope it continues. I have gone a similar clean eating nutrition route. Also, in September 2018 I even went all-in on intermittent fasting (no eating for 12-16 hours, then I eat a normal amount of calories in remaining hours). I lost 32 pounds in 14 months. We even experimented by reintroducing some foods back into my diet short term to see if they would trigger CH. Anything to isolate the beast.

Bottom line... My weight went down, my blood panel numbers (including micronutrients) improved dramatically across the board, and my energy went up. Unfortunately, I also went from episodic to chronic CH during that time. I feel better but can do less because of my debilitating CH condition. I had a seven-day stretch in early November when I had only four attacks. I thought for sure I was headed back into remission. That was followed by seven days with 35 attacks. There were no changes in nutrition, sleep or anything except some youthful optimism at the beginning of the second week. At least for me, CH is definitively not nutrition-related.

 

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Posted (edited)

I had to reframe the way I looked at my chronic cluster headaces to exit despair mode. Even though the next Kip 10 came only 30 minutes after the 1st, 2nd etc. ended (I was Kip 10 to Kip 0 no ramp up, no ramp down). They each had an end & 30 minutes pain free between them. I was grateful for both.

Edited by Brain on fire

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