Spoinka Posted September 17, 2021 Share Posted September 17, 2021 Wanted to share that I did a ketamine breathing treatment during my last CH episode and it worked initially (for 2 days) and then got a slap back reaction that resulted in the worst pain in my 54 years of life. The CH pain landed me in the ER. So wanted to share for those considering ketamine. Question on triggers (having given up on many things that I believe trigger me such as massage, chiropractor...) - I believe that wearing these face coverings during Covid lockdowns is a trigger. We have recently began to have to wear them again in my city and the beast is stirring on the side of my head now after about two weeks. Not full blown and hopefully the busting protocol keeps them away. Anyone else have input on face coverings as a trigger? Quote Link to comment Share on other sites More sharing options...
vincent Posted September 18, 2021 Share Posted September 18, 2021 I am supposed to wear one at work. That fxxxing pulling at my ears, I can just feel one coming every time. I'll take getting yelled by the boss. Quote Link to comment Share on other sites More sharing options...
jon019 Posted September 18, 2021 Share Posted September 18, 2021 (edited) ...ima big guy and all those ear-hook styles hurt...any reason ya can't do one of these vincent? Edited September 18, 2021 by jon019 Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted September 18, 2021 Share Posted September 18, 2021 15 minutes ago, jon019 said: ...ima big guy and all those ear-hook styles hurt...any reason ya can't do one of these vincent? Uff.. I'm Sorry. I'm here in the land of enforcement and I do not ever wear one as the heat from my own breath has put me into a banger or two. I,however do not work for someone else, that being said I am able to get away with it. I've been kicked out of Best buy, Costco, Lamps Plus along with various other retailers (even if I tell them that I have a condition that requires I get max o2). Sorta silly as no one can site the effectiveness behind a cloth face covering? But then again ask a GP about CH? Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted September 18, 2021 Share Posted September 18, 2021 Maybe see if you can get away with a face shield? At least that way your not having your air ways blocked and breathing used up o2? I refuse both but I'm a mega jerk face ... 1 Quote Link to comment Share on other sites More sharing options...
spiny Posted September 18, 2021 Share Posted September 18, 2021 Face shield is a good idea Bosco! CHers are allowed to go maskless in some places. Scotland being one! I shop online to save the hassle 1 Quote Link to comment Share on other sites More sharing options...
Ganuchi Posted September 18, 2021 Share Posted September 18, 2021 I wear hair bandeaus as a mask when I need to cover my face. That way it just sits around my neck and I can pull it up when necessary and it’s not nearly as irritating as those around the ears (at least for me). Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 18, 2021 Share Posted September 18, 2021 12 hours ago, BoscoPiko said: I've been kicked out of Best buy, Costco, Lamps Plus along with various other retailers 2 hours ago, spiny said: I shop online to save the hassle I've gone the online shopping route too, for every single thing, even groceries, not that I'm imagining having groceries delivered is feasible for everyone. 1 Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted September 19, 2021 Share Posted September 19, 2021 On 9/18/2021 at 7:55 AM, Bejeeber said: I've gone the online shopping route too, for every single thing, even groceries, not that I'm imagining having groceries delivered is feasible for everyone. Now days it is pretty doable. With access to amazon, doordash and a plethora of other online shopping options. I do use them sometimes, however I don't like supporting amazon and I often find that produce from an online shopper is often not selected well (squishy/over ripe/under ripe etc.). So I prefer to shop for those things myself. I also like to shop for things for my home in-person as I find it hard to really get a good idea of what something really looks like from viewing online. Anyhoo here is a picture of a face shield that can be worn without messing with ones ears and or touching the mouth... Might be an option? Oh and it's just down rt sexy!! 1 2 Quote Link to comment Share on other sites More sharing options...
Cast Iron Posted September 24, 2021 Share Posted September 24, 2021 @Spoinka Returning to your original question, CHFather has posted some time ago an excellent overview of different triggers, ranging from foods to environmental factors that people experience. The link is below. But a trigger does not generally apply to everybody. Some experience a trigger with high pressure atmosphere, some with low, while a third person reacts on the change in pressure. The same with foods, some down a redbull on the onset of an attack, were I am completely avoiding any sugars in my diet as it will trigger an attack. I can not do a afternoon nap where others can. So, different people, different triggers. However, there is common ground on one: alcohol. People also do the 'alcohol test' to see if they are in remission: drink a beer and if an attack is there you are still in cycle. If not...well drink another one or two The overview of CHFather may give you pointers you can use on your own situation and try to see what provokes an attack and what not. Noted by many people is that CH can morph over time, the same for triggers. Quote Link to comment Share on other sites More sharing options...
Myhedhrts Posted October 2, 2021 Share Posted October 2, 2021 Alcohol was a big one. I also feel like when I’m doing research or reading about my headaches then I can feel one coming on. I have also gotten triggered by the smell of a slaughter house. Strong burnet hair smell. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted October 2, 2021 Share Posted October 2, 2021 On 9/24/2021 at 1:43 AM, Cast Iron said: I can not do a afternoon nap where others can Some can do an afternoon nap??!! Wow that's practically an unfathomable concept to me (when in cycle). And while beer at least may the closest thing to a universal trigger (I unwittingly experienced its power once - never again), some find that a drink like vodka doesn't trigger them. I personally have no intention of 'trying it out' to find out, I'm just not that kind of risk taker - I guess since CH isn't just f**king around here, neither am I. 1 Quote Link to comment Share on other sites More sharing options...
spiny Posted October 2, 2021 Share Posted October 2, 2021 Yep, I can manage a bit of potato vodka during cycle. Nothing else though!! So, it was my go-to during the holidays for years. Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted October 2, 2021 Share Posted October 2, 2021 Sorry im with you Bejeeber. Won't touch alcohol until I've been pain free for 3 weeks was on holiday nov 2016 in porta Vallarta Mexico . I had been pain free for 6 days whilst on holidays so thought great must be out of cycle im gonna risk a beer . Worst mistake i ever made . The attack was worst pain id ever experienced. Id only drank half a glass the speed it hit me was so fast . Me and alcohol know don't mix till 3 weeks pain free Quote Link to comment Share on other sites More sharing options...
Axel_B Posted October 27, 2021 Share Posted October 27, 2021 The more yeast in the beer, the quicker and harder the trigger. Axel_B Quote Link to comment Share on other sites More sharing options...
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