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Juss, you are referring to a FB Group that is well known by many here. They are not 'us' and push/prefer Pharma for money reasons. You click, they make money. That group, is not any part of our group here and we were around for about a decade before they formed. And they will throw you out for mentioning MM. Please, take a step back, reread some of our responses to your posts and think about it. We, as a group, have tried to understand you, help you, and support you. For BPD, Dialectical Behavior Therapy has proven highly effective. It was developed for BPD. My child, with this disorder, has had only one meltdown in 8 months since she finished BPD Therapy. Normally, she would have had at minimum 10-12 meltdowns. Her IQ, is above 150. As I suspect yours is. Which makes the disorder even more difficult. I have seen it for decades now. It is horrid. My heart hurts for you. I wish you health and happiness. I wish you peace. I know that peace might be the most difficult thing to attain. For your posts on the board, please be kind and positive, or just scroll on by the post. spiny

Baclofen is not a NSAID it is a GABA antagonist. Most commonly it is used as a muscle relaxant. It has a tendency to make people feel dopey and dysphoric. A one off report of curing something as complex as alcoholism is problematic . Most of the research in this area is inconsistent. The use and withdrawal of baclofen can have serious consequences. For our purposes there has been limited reports of baclofen use in treating cluster headaches. An optomistic report of a case series in 2001 shoed promise but no follow up seems available. Dealing with uncommon conditions like ours is problematic. In the end it would be hard to argue against proper nutrition, balanced vitamin levels and a healthy lifestyle. Easy to say, hard to execute.

....naw, that's the other forum... .....nope, and i got proof: "jon's a smart-ass" ...yup! ....."we don't know a millionth of one percent about anything" T. Edison but if ya wanna talk about mooshies, yur in the right place ...used to volunteer for Lifelong....among other things they feed folks shunned by society. their motto: "food is medicine"...i like that, i believe that... MERRY CHRISTMAS ! Juss

spiny isn't a crapper-onner, and I don't think she was doing that here. I think she was just observing that doing all the right dietary/nutritional things is tough. In general, I think your posts receive more thought and respect than you think they do. I read and re-read your long hypothalamus post, for example, and I often follow your links, but I really have had nothing to add. Sometimes I disagree with things you say (your high regard for Dr. Amen comes to mind), but I figure people can read, research if they choose, and come to their own conclusions, and I prefer to use my time here on the most basic, practical kinds of help (get O2, do the D3, bust according to the protocols, etc.). It's been said a thousand times here -- this awful condition inspires all kinds of searches, and each person's should be respected. This place was founded by people whose idea, busting, was mercilessly crapped on, and the D3 regimen was ridiculed when it was first put forward and for a long time after. (As jon' said, if you want to see crapping, take a look at the board from which this one was spun off, clusterheadaches.com.)

That news warms my holidays so much! Wow.

Thank you @jon019i did state if I thought who it was and edited accordingly. But I can understand your guy's side. The person that I won't mention would report you if you so much as farted Vitamin M. You think I am joking? Anyway, I am grateful you guys allow open discussions, people don't understand (I think) how some close the door on that. I wasn't kidding, this guy even made it known.

Merry Christmas @jon019.

Hey Cast Iron, Sorry to be so slow coming to the party. As long as your serum calcium assay remains within its normal reference range there's no hypercalcemia, a.k.a., vitamin D3 intoxication/toxicity. I've kept my 25(OH)D3 up around 450 nmol/L (180 ng/mL) for quite a while as you can see in the 5-year chart of my lab assays for 25(OH)D3, calcium and PTH.. It's presently up around 680 nmol/L (270 ng/mL) due to Fall/Winter leaf mold spores that trigger allergic rhinitis. After many years watching my assays for serum 25(HO)D3, calcium and PTH, my PCP looks at my 25(OH)D3 assay, smiles and then says, "I have no problem with your 25(OH)D3 this high as long as it helps prevent your CH and your serum calcium remains within its normal reference range." Mast cells, part of our immune system's family of white blood cells, release large quantities of histamine and other proinflammatory mediators when insulted by allergens. The histamine in turn, triggers neurons and glia within our trigeminal ganglia to express Calcitonin Gene-Related Peptides (CGRP) and other neuropeptides. Neurologists tell us the CGRP expressed within neurons and glia is responsible for the neurogenic inflammation and the pain we know as cluster headache. The bottom line is histamine to a CHer is like Kryptonite to Superman - Bad News. None of the prevents including vitamin D3 work very well during an allergic reaction. Many CHers, me included, have found a combination of 3,000 mg/day Tumeric (Curcumin), 3,000 mg/day Resveratrol, 6 to 8 grams/day vitamin C (taken in divided doses throughout the day), double the Omega-3 dose and Benadryl (Diphenhydramine HCL) at 25 mg 4 times a day all help block histamine effects and this lets the genetically active vitamin D3 metabolite 1,25(OH)2D3 down-regulate the expression of CGRP, other neuropeptides and proinflammatory mediators. This cocktail of extra supplements can take as little as a day and up to a week to take effect for some CHers. Others will find it makes their CH less severe and more controllable, like easily aborted with oxygen therapy. I also use a combination of 100,000 IU/day of Bio-Tech D3-50 and 0.5 mL/day (40,000 IU/day) of the Nutrasal Micro D3 taken sublingual as a loading dose. The Atkins-Ketogenic Diet can help. Avoid all sugars and fruit juices high in fructose. Avoiding all wheat and grain products can also help. If you do eat grain products, make sure they are Non-GMO. Most wheat and grain products are contaminated with glyphosate, the herbicide in RoundUp.. Ir causes all kinds of problems. As a herbicide it kills off the friendly colonies of bacteria living in our GI tract called the microbiome. A unique aspect of glyphosate’s insidious cumulative toxicity is its ability to get inserted into proteins by mistake in place of the coding amino acid glycine. Glycine is the smallest amino acid – one of the twenty or so building blocks of proteins according to the DNA code. Glyphosate is a complete glycine molecule, except that it has an extra methylphosphonate unit attached to its nitrogen atom. Hope this helps. Take care and please keep us posted. V/R, Batch

Just a small thing to add here. Most of our Serotonin is in our gut, not our head. And we do target Serotonin. So that seems to say that there is some connection between the head and gut. As do all the foods many exclude when in cycle. It appears that what goes on in our gut affects our head to some extent. Or vice versa. It is a very interesting topic.