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Showing content with the highest reputation on 01/22/2022 in all areas

  1. Hi Billy, I always get (even more) sensitive to light during cluster, and has been an occasional trigger. I have the brightness down and night modes on devices/TVs and tend not to watch the screen often during clusters. A few years back I was given lithium to stop a cluster which (I believe) made me even more ill and super sensitive to any light - I could only go out after dark. I got some FL41 glasses (pink lenses that block blue light for migraine/stroke/concussion) and they made a huge difference in reducing the bruised/stinging feeling even after the cluster ended. I wear them less often now, but more when I'm under bright lights in offices, supermarkets or if it's overcast. I was lucky that a local optometrist let me trial them before buying. I think axonoptics do similar and may be cheaper. Good luck
    3 points
  2. I know we are talking about visual input being a trigger but I do believe that the EMF from phones can be a possible trigger as well. Not sure if you are running straight 5g or wifi on the thing but cellular service can affect our nervous system. I am very sensitive to it and I get a numb face and hands when I'm on a long phone call. I hate it and feel that it has a negative effect to us CH folks.
    3 points
  3. Thanks Jon, I will talk to my neurologist about optha-neuro. Thanks Chfather, for the useful links. I have change some of my laptop and phone settings which has seemed to help. Thank you both.
    3 points
  4. Classic! ^^^ - and indeed a real world example of how sometimes a strategically placed woosie admonition by the right person really can end up being helpful.
    1 point
  5. Did the botox. For abt 18 months. Gave me satanic cult eyebrows. Hated the look. Minimal relief - but cha? Ya take what ya can get.blast time was hell = no more. Also did B12 shots. I was exact same as u, Jon. now i drink the amazing Monster.. for my B vitamins. Cld i have a part time job promoting their product? LoL
    1 point
  6. Now THAT is the best kinda MIA! Attack free for 6-7 weeks!? Here's to the O2 tank continuing to collect all manner of dust!
    1 point
  7. That is pretty wretched Cast Iron!!! Have you tried hitting an Energy drink when your hit first starts? Like on your way to the O2? Many do that and it helps a lot. I use plain cold coffee personally and it works for me. It often helps with the O2 aborting the hit. I will let someone with experience chime in on the triptans. I never could take them. I can see why you avoid the D too since your value has not dropped. Drat.
    1 point
  8. There have been more than a few people here over the years who have had trouble looking at computer screens and phones. One discussion of blue light blockers and other strategies is here: https://clusterbusters.org/forums/topic/6075-computer-help/?tab=comments#comment-60389. A brief discussion of the f.lux app for reducing light emission from monitors is here: https://clusterbusters.org/forums/topic/3627-tricks-for-reducing-light-emission-from-monitor/?tab=comments#comment-41856 That discussion is here: https://clusterbusters.org/forums/topic/8739-glasses-to-treat-ch/page/2/?tab=comments#comment-78997
    1 point
  9. Hi Billy...welcome.. ....certainly sounds like your triggers are visual....i wonder if there is such a thing as an Optha-neurologist you could consult? Any thoughts from your current neuro? ....there has been discussion lately re tinted lenses of various hues as a CH treatment. if you pursue the blue screen blockers please be sure to check back in and tell us how well or if that worked. might want to try various settings on your phone...i know my PC has them as they advise "night time" setting so as not to effect sleep. best jonathan
    1 point
  10. ....and very much related....is why, besides the vulnerable feeling, i always hated being witnessed while getting hit....and why i consider our beloved supporters as having it worse than clusterheads.... .....very little to offer re needles ( i still have to keep my eyes closed). but at one point had to give myself B-12 injections. HUGE needles that have to go into muscle. the very first time took me 2 hrs sitting on the edge of the bed....for many months after it was up to one hr. eventually got it down to a couple of mins by using the admonition from a young lady doc, who told me: "don't be such a woosie!"......and the realization that sometimes there.just.aint.no.alternative.....
    1 point
  11. I've had since I was 17 yrs old. Finally got diagnosed when I was 27. I suffered immensely through those years and aquired ulcers from all the aspirin I took for the CH's.
    0 points
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