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Showing content with the highest reputation on 12/12/2022 in all areas

  1. Kat, you will most likely be fine with your dosing prior. If you have MM, take a SPUT with you to the airport. You can suck on it for a long time when you get on the plane. If you are concerned about traveling with one, you are not when it is in your mouth. That, along with caffeine in any form should take up any slack. No drinking booze. I suggest having coffee before take off. Having energy shots at hand when boarding! I was terrified to attend the Dallas conference because I had to fly. Well, they really meant it when they stated 'We are only looking for explosives'. There was other stuff there if they were 'looking' for it. They were not. They did however have me open the bag to show them what was making the funny pics on x-ray! It was my Clustermask and regulator! LOL. You may not want to take any alternatives and I do understand that. Do your preventative busts before! If it goes south while you are there, go to the firestation with your mask in hand and ask for some O2? It works many places in the states, so I would try for that solution there first. We all know how bad the ER can be, so that often ranks second. That 'on landing' headache is from the increase in air pressure. I get a hit with the reduction in pressure. So, take off. The plane does not have the same atmospheric pressure as we have at sea level when it is airborne, it is lower. Like a low pressure front moving into your area. If high pressure is a trigger for you, then yes, landing would be the time to be concerned. Have your preparations in order before and your 'prevents' packed for the trip. Slap on a smile and head out! Then report back here, ok?
    4 points
  2. I've never let my CH stop me from travelling as it's 1 of my favourite things to do in life . I do try to plan trips around my CH cycles , but I know this isn't always possible for some of us . I've only ever been hit once when flying , after 11 and half hour flight to Mexico . It was a 1 off CH attack , but I always carry samitriptan injections on the flight with me just in case. So ran to the plane loo and jabbed myself 5mins later attack over . Was in Mexico for 2 weeks no more attacks . Some people do a busting session the week before they fly that seems to help . I've not done that myself yet , but will be doing that from know on , just don't let the BEAST control your life !!!!!!
    2 points
  3. ... took an e-tank to work in a cart for 25 yrs.... colleagues considered it "jon's dog". private office so none of the issues you are dealing with. also had tank in car... so that sounds like YOUR best option. doubt anybody is gonna write you an approval letter.... everybody is concerned with liability and lawsuits. however, an approach that is not personally confrontational may be through your state Labor and Industries (or similar) who can describe the "reasonable accommodations" an employer must make for worker with "disabilities" (may need docs letter for that). i'm thinking of how an employee with COPD or other lung issue must be accommodated w/o isolation in a "special room". the safety issue could be valid depending on type of business... but i really doubt would be in most cases. heck, our engineers had oxygen, acetylene, and tons of ammonia to deal with... one more tiny tank was just amusing. a retail or non industrial setting, or even segregated industrial void of open flame is incredibly safe (especially in a specifically designed holding cart). part of the argument i would have made but didn't need to was "i perform all my duties and more... if you just allow me an occasional few minutes to deal with this you will be retaining a valuable employee"... or something similar.... .... so glad you at least HAVE the O2, that is a BIG deal for some..... sorry for the hassle in using....
    1 point
  4. I believe Spiny mentioned caffeine tablets and 5 hour energy shots. Sounds to me like your really prepared with the pre dosing with M prior! Please share how it goes as it's a huge fear of mine as well and I haven't been on a plane since diagnosed. Good luck!
    1 point
  5. https://www.facebook.com/kwgnchannel2/videos/1792841174430697
    1 point
  6. He was pretty refreshing to watch. That bit about thinking he had an aneurysm and or that he was dying made me smile because I
    1 point
  7. Wow, that bold clusterhead interviewing Bob is a real personality, Bob did a great job of dispensing info, and that was overall one helluva segment - both this site and Vitamin M got called out (!!!!!). Loved it.
    1 point
  8. Haz', I remember you well, and I'm so glad for your long remission! You worked hard for that. In general, people here have reported a wide range of results from propranolol (Inderal), which was actually prescribed for CH way back when and still is sometimes these days (it seems to help prevent migraines), from seeming to reduce their attacks to having no effect to seeming to make them worse. I think only one person thought it made them worse. You can see what people have said by putting propranolol into the search box at the top right of each page (if you're going to do this, do Inderal, too). It seems highly unlikely to me that it would set off a cycle.
    1 point
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