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Dawn, Thank you for the post. I was on travel all day yesterday and have had problems getting my laptop back on line until a few minutes ago.. You've done nothing wrong and have followed the protocol correctly. You've loaded vitamin D3 aggressively, experienced a favorable drop in CH frequency, (just not the complete cessation of your CH that you and I wanted), you've seem your GP, obtained the assays for serum 25(OH)D3, calcium and PTH and stopped taking vitamin D3. These were all correct actions. It's the followup course of action that's important now. Stay off the vitamin D3 for 10 days to two weeks then see your GP for another set of assays for your serum 25(OH)D3, calcium and PTH. Be sure to ask your GP for the high sensitive C-Reactive Protein (hs-CRP) assay. It's likely you've inflammation and/or an immune system response to allergens cooking away. Either of these conditions make it difficult for vitamin D3 to do its thing preventing your CH. If your hs-CRP is elevated, you and your GP need to look for the cause. Be sure to drink 2.5 liters of water in the 24 hours prior to the blood draw for these labs. In the meantime, you need to drink 2.5 liters of water a day and avoid calcium rich foods like all dairy products and any calcium supplements. I would take as many of the Antihistamine Full Monty supplements you can get. They're listed in the email I sent you. If you can't find all of them, ask your GP for an Rx for a first-generation antihistamine like Diphenhydramine HCL and take as directed. I would also ask for an Rx for oxygen as a CH abortive at 15 liters/minute if you've not already done so. As an immune system response to allergens in your environment or diet is likely, starting the Atkins-Ketogenic diet is a good idea. Start it with a 24-hr fast drinking 2.5 liters of water a day and taking all the supplements less the vitamin D3 daily. The fast will burn through the glycogen (blood starch) stored in the liver and this will help push you into mild ketosis. Our bodies metabolize ketones just fine. Exercise is also important. I'm 78 and have found 10 minutes fast walking makes a big difference. CH attacks during airline travel is an interesting phenomenon experienced by most CHers. Airliner cabins are pressurized to an altitude of 7,000 to 8,000 feet while the jet is flying at 30,000 to 37,000 feet. This results in a drop in alveolar oxygen of up to 7%. As the CH syndrome is sensitive to variations in oxygen, a drop of 5% to 7% is sufficient to trigger CH. Bottom line, you're on the right track. Following the course of action above will bring your serum calcium back into its normal reference range and when that happens, your parathyroids will respond with more PTH and that will bring it back into its normal reference range. The hard part is getting inflammation and allergic reactions under control. Once you've done that, you've sufficient vitamin D3 and 25(OH)D3 in your system to help prevent your CH. Once your serum calcium and PTH are back in their respective normal reference ranges, you can resume vitamin D3 at a maintenance dose of 50,000 to 100,000 IU/week. Take care, hang in there and please keep us posted. V/R, Batch

@xxx, thank you so much for responding, I will do what I need to do to keep the doctor happy and press on with the regimen once my bloods have been done after Xmas. I’m on day four of the prednisone taper and feeling much better but I would rather control my CH with the supplements not steroids. I’ll let you know my progress and Happy Christmas to you and your family.

One day to go Shaun!! You all must be bursting at the seams now! Especially her kiddo!! Congrats to your daughter and very well done too!

.....this is a wonderful gift for ALL of us.....and the timing is exquisite!!

Could say that @spiny

12 minutes ago, kat_92 said: nothing gross coming from my eye). Well that's a positive in this dreadful mess your unfortunately dealing with! Wishing you a merry busting and happy clear year!

@CHfather thank you so much for the response. I have turmeric pills on hand that I can start using ASAP. I won’t increase my verap I don’t think it’s a good idea. I also recall a higher dose a few months ago making me so tired. I wouldn’t want it to interfere with my busy. I also have melatonin and Benadryl. Should probably take either one at bedtime. I have been so sick for a week now so it’s just hard to tell if it’s clusters or headache from covid. The red eye has me very concerned. It’s lasted over 24 hours now. @BoscoPikoi also read that online. But I do not have any other conjunctivitis symptoms (nothing gross coming from my eye). Feeling mostly tired today because I didn’t sleep much. Looking forward to busting on Tuesday.

Dawn, It's good to hear the prednisone taper is helping. It is also a good diagnostic indicating inflammation. Take care and have a Very Merry Christmas and a Happy CH pain free New Year. V/R, Batch

GOBSMACKED in ALL CAPS, bold font, and underlined!! Both of those 'home permanently' and 'walking with just a stick' are such mind blowers at this point - I may have to pause here before I tear up, knowing this has to by far be the greatest holiday development ever!!

YES YES YES . She's coming home on Tuesday permanently , and walking with just a stick

@Shaun brearleyYes I used Red Bull on holiday as I had no oxygen, I was desperate to try anything! My O2 set up is set to 15 with non rebreathable mask and that’s a god save!

@kat_92Got it thank you! ❤️

@Dawn French any time I feel shadows coming I up my d3. But that also means upping magnesium, don’t forget! Yeah, flying may have put a kink in your progress. That’s okay, you’ll get back on track soon

Thanks Shaun, I didn’t realise that!

@Dawn FrenchHave you tried an energy shot b4 hitting the 02 as it really helps , and what's your o2 set up . Non rebreathable mask 15 lpm flow rate minimum

.....there's no telling Shaun...i always carried a script just in case. injectables never got a glance, regulator and mask got a "what's these?" like spiny...but my explanation accepted. my only hassle was from a can of salmon!...which got a supervisor and 4 agents in deep discussion. it was hilarious but i stifled so as not to appear crazier than the cracked head clusterhead i am. they let me go when i offered to eat it in front of them....

If I was gonna fly and party like a rock star I would probably take some prednisone with me. Ya I hate it but it keeps the beast away.