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LOL nah.. You know me, gotta give everything awful a cute name

@xlrsdhi my friend . This community is going strong buddy has been for years . USA has conferences every year but due to covid had to go vitual for a couple of years . But last year in Chicago was an open conference , and this year's US conference is in Orlando. This May we are holding are first ever UK and European conference in Glasgow . Stick around my friend you will get a lot of help and support from people that have suffered with CH for years plus support from people who care for people with CH

@BoscoPikos--t did the US have a different virus than the rest of the world ,RONA virus

Thought I'd watched them all but somehow I missed this clusterbusters YouTube video.....until just a few minutes ago!! I've had the pleasure of meeting and getting to know almost everyone featured several times over the past 13 years! Be forewarned, grab a hanky or some tissues before watching as this video may result in eye leakage...

We are excited to open registration for the Clusterbusters 18th Annual U.S. Patient Conference in Disney Springs, FL. Join us for a long weekend of support, education, and family from Sept 7-10, 2023. Register today! https://386964908.planningpod.com/

It's def Rona

I'm not aware of research. It's well-known of course that caffeine helps, and many people think that the taurine in energy beverages, either alone or in some connection to the caffeine, also helps. If you're going to be relying in part or in full on caffeine, try to stay away from it at times when you're not using it for attacks. As with so many other things, it seems you can build a tolerance to caffeine that reduces its effectiveness. Depending on which Monster drink you used, you might well find that it has less caffeine than the much smaller, quicker-to-get-down energy shots, such as 5-Hour Energy. A "standard" Monster has about 80ish mg of caffeine, whereas the standard 5-Hour Energy has more than 200mg, and the extra strength 5-Hour has close to 250mg. Assuming that O2 has worked for you but isn't now -- some/many people find that if the pressure in the oxygen tank is low (maybe 1/3 full, or less full), O2 doesn't work as well.

Welcome to the club xlsrd. Hang around this place has helped me tremendously. I've got up to 3 yrs pain free with the knowledge from here. Not cured but found peace and hope.

Welcome to the community @xlrsd In the conference and events section you'll find info on our last conference which was in Chicago last Sept. This year we're having our inaugural European patient conference in Glasgow, Scotland and information will be posted soon in that same section on this year's US conference in Orlando. Dallas Denny

Hi XLRSD, Glad you found us! I believe some of the planned conferences were virtual due to the rona outbreak Here is a copy and paste of the most recent conference info: Registration for the first annual Clusterbusters U.K./European Patient Conference is open! Join us in Glasgow for what promises to be a memorable inaugural event. Register today. https://cbglasgow2023.planningpod.com/