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Showing content with the highest reputation on 05/22/2023 in all areas

  1. ...OXYGEN!!?....dump the amitriptyline, worthless
    4 points
  2. For some people, side-switching might indicate a change in the cycle. For others, it's just another thing that happens. It's not common, but not super-rare. What jon said -- you want oxygen for stopping your attacks. The more you use the injectable sumatriptan, the worse things are likely to get -- more, longer attacks, longer cycles .... And prednisone should be limited to once a year (a taper of two or three weeks). And the amitriptyline is, indeed, probably useless. Get oxygen (Read about that and other things here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/) For now, split the injections when you use them: https://clusterbusters.org/forums/topic/2446-extending-imitrex/ Start the vitamin D regimen, which has helped many hundreds, if not thousands, of people with CH: https://clusterbusters.org/forums/topic/1308-d3-regimen/ Consider busting: Read about it at the end of this file -- https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ -- or by cliclking on "New Users -- Please read here first" at the top of any page (in the blue banner).
    3 points
  3. We will kick off on Thursday evening with a cocktail reception and registration. Following will be two full days of presentations, workshops, and sessions, (Friday and Saturday), and there will be a half day of presentations and discussion on Sunday. We will finish at around noon on Sunday.
    2 points
  4. Everything that @CHfather said... I have had my CCH switch primary sides on several occasions with the first being after sinus surgery. I wouldn't say it's a good thing, just a change. Currently I am primarily right sided but there have been events that include the left side. I wish you all the best for finding PF days and nights.
    1 point
  5. Tried occipital and a spheno ganglion block, neither worked, the occipital one triggered one when it sent a jolt along that nerve into my temple, also rather unpleasant with the needles in the back of the head and even more so the one up the nose, so do not blame you for not wanting to try that, I know botox is a semi regular suggestion for migraines and have heard it attemted for cg, but again it is another of those "Oh, yeah here try something else that is basically anecdotally helpful" lol
    1 point
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