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Showing content with the highest reputation on 08/11/2023 in all areas

  1. It is lonely at the top. That is why we have this place.
    4 points
  2. +1 for the cluster gallows humor.
    3 points
  3. Hey there CE, The pain can certainly be isolating which can lend a helping hand to allow loneliness to creep in. Having supportive family like you do is so important (as you realize). Lot's of us on here to talk with so no need to allow yourself to feel so lonely prior to popping on here. Sometime just reading on here and talking to others that understand what your going through can really help keep the spirts lifted. I see by this comment that you have a wonderful sense of humor Trust me laughing at this sh*t show can be a saving grace of sorts. I hope you get your o2 and find your way out of this cycle sooner than later.
    3 points
  4. I know just what your feeling. I have had so many people in my family do so many things to try to and succeed in helping me out in different ways. Still I have times I have that same lonely feeling. Comes and goes once or twice a year for me but it does go. It sucks almost as much as the clusters themselves but just keep positive and make sure you tell your family you appreciate the help and love them, explain your feelings and im sure they will try to understand. Stock up on as much of that oxygen you can and try not to let it run out and you will pull through this. I am sure you know from poking around on this site that we have all had issues like this at one point of another and we are all here to support each other. For me reading, asking questions and not being afraid to try new things has kept me from going nuts.
    2 points
  5. A few weeks ago I started a new YouTube channel (and TikTok) all about Headaches, Migraines and Cluster Headaches. YouTube Channel: Another Headache TikTok: @Another.Headache For the last 16 years, I have averaged 400 headaches, migraines and clusters a year. I'm a chronic clusterhead, and this forum quite literally saved my life. I had 257 cluster attacks in 2011 and was at the end of my rope. I joined Cluster Busters, made friends and figured out how to reduce them to a very manageable level. I'm technically diagnosed with Chronic Daily Headaches, Chronic Migraines and Chronic Cluster Headaches. I figured that as I had SO MUCH experience dealing with various types of headaches, and there didn't seem to be any other channel out there churning out videos, that maybe I should start one. Here is my latest video about my story and an introduction to the subject of cluster headaches. I would love it if you'd check out the videos, subscribe, share, like, yada, yada. But also, I'd love your feedback and ideas on subjects to cover. I have a list of 20-30 videos and topics I want to cover in the coming weeks and months, and am going to do several deep dives specifically on Cluster Headaches and Migraines. All constructive feedback is welcome. I also have a Patreon page, but haven't started promoting it too much yet, will do in the coming weeks. I wanted to get some good content out there before I started asking for support. Anyway, let me know what you think. xx Mox
    1 point
  6. Watched that latest video. It's brilliant and clear and moving. What a wonderful job! "No, seriously -- it's a medicine." CB should take those couple of minutes and post them prominently here.
    1 point
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