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xxx

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Everything posted by xxx

  1. Hey J, Good questions... Your vitamin A is full strength Retinyl palmitate, or vitamin A palmitate, an ester of retinol (vitamin A) and palmitic acid. Take one capsule every three days... Good move on starting the anti-inflammatory regimen and calling your PCP for the 25(OH)D lab test. Don't take "No" for an answer... Remember to tell your PCP you're concerned about osteoporosis from the prednisone when you ask for the 25(OH)D lab test. Regarding the two vitamin D3 loading schedules listed below... Take either loading schedule and when you've completed it, then go back to the
  2. Hey J, Welcome to the anti-inflammatory regimen and good questions. Regarding the vitamin A... Check the lable... most vitamin A preparations are formulated with both carotinoids and retinoids... What you're looking for is the amount of retinoid or retinoid equivalents totalling 3000 IU/day. If the retinoid equvalent is 10,000 IU per capsule, take one capsule every three days and you should be good to go. Regarding the 25(OH)D lab test, in a perfect world, I'd see my PCP or neurlogist to get this test then start the anti-inflammatory regimen... However, if it looks like it will
  3. Bob, I'll second that... You've my fullest support. V/R, Batch
  4. There's a high probability this increase in CH activity is due to the spring pollen causing allergic reactions that flood our systems with histamines. When that happens nearly every form of CH intervention is less effective or not effective at all. The insidious thing about pollen allergies is they can be sub-clinical with no outward symptoms so you could be having an allergic reaction and never know it. Pollen can also lay around the house, car and workplace for months. All it takes is a little movement to send it airborne and it hits the nasal passages. When that happens, mast cell
  5. An interesting and timely thread... I may be able to contribute... You be the judge... My formerly black pickup mid March, a week into the Red Alder tree (Alnus rubra) pollen fall... It's gotten worse since then. The Red Alder pollen catkins are nearly spent, but the Bigleaf Maple (Acer macrophyllum) pollen drop is just starting... When I built the house in '82, I had a USDA Forest Service rep in to timber cruise the property. He estimated the Bigleaf Maples growing near the creek were 200 to 220 years old with 34 inch diameter trunks at that time. The Bigleaf Maple i
  6. CHfather, I agree... although the previous RCT was conducted on migraineurs... (another hand-me-down intervention)... the efficacy of this monoclonal anti-body was only slightly better than the placebo... "The mean change from baseline to week 12 in the number of migraine headache days was -4·2 (SD 3·1; 62·5% decrease) in the LY2951742 group compared with -3·0 (SD 3·0; 42·3% decrease) in the placebo group." See the following link for details: http://www.ncbi.nlm.nih.gov/pubmed/25127173 I attended the 2014 American Academy of Neurology Annual Meeting last April in Philadelphi
  7. Vickle, I'm not a doctor... but the burning sensation around the eye is likely cluster headache and not just the general description "neuropathic pain." Both Lyrica (pregabalin) and Neurontin (gabapentin) will have only a slight efficacy in lowering the frequency and severity of your CH... or burning pain around the eye... Both will give you a 2 to 3 martini buzz at around 300 mg/day and both will result in swollen ankles after a week to 10 days... There are other side effects that taken with the buzz and fat ankles coupled with less than desirable efficacy result in a poor risk r
  8. Bob, A sticky would be fantastic... Sounds like a plan (SLAP). Thanks. V/R, Batch
  9. Bob, Thanks for the kind words... I've been remiss in not posting more info on the anti-inflammatory regimen here on the boards... Lots of fascinating new data coming from the online survey of CH'ers taking this regimen to prevent their CH as well as data from some of the latest research. One of the more important topics deals with allergic reactions to pollen, mold and pollutants and how they tend to increase the frequency, severity and duration of our CH... The insidious nature of allergies is they tend be sub-clinical at first, i.e., no obvious symptoms so we're not aware we're affe
  10. Mystina, It's been too long... I've missed you too... What a jaw dropping chain of events and horror story... I'm so glad you and your mom made it through all the uncertainties and that you're both doing much better. Shoot me an email if you can find the time... There's been a lot going on over the last four years... Hugs, V/R, Batch
  11. Tangerinearmy, ThatHurtsMyHead, CHfather, Thanks for the kind words and for pointing Emdub in my direction... We'll see what happens... Remember, when you depress the flush lever on an indoor dunny down under... water spins down the drain in the opposite direction from here in the Northern hemisphere... anything can happen... I do know that Dr. Peter Lewis is a vitamin D3 expert. As an Integrative physician, he treats the whole body to right what's wrong with diet and supplements first, before resorting to a pharmaceutical intervention... Even then, that pharmaceutical solution will h
  12. Emdub27, G'Day Mate... Sorry to be so late to the party and that your wife is having such a horrible time. I just read your posts over on CH.com. With a 25(OH)D serum concentration of 35 nmol/L, your wife is clearly vitamin D3 deficient and that deficiency is almost surely contributing to her headaches. You need to get her started on vitamin D3 repletion therapy ASAP. Call her PCP or whoever ordered the 25(OH)D lab test and discus vitamin D3 repletion therapy and the contents of this post. You need to ask for at least 70 of the 10,000 IU vitamin D3 liquid softgel capsules...(NOT VI
  13. Good question. What we're looking for are any present CH medications Rx or other... and medications taken for other medical conditions. This cuts several ways... It can point out any possible interactions or contraindications that work either way as well as give us an indication of any possible medical conditions that might interfere with this regimen or the body's capacity to metabolize vitamin D3 into 25(OH)D. For example, hepatic and renal insufficiencies can easily limit the body's capacity to metabolize vitamin D3 into 25(OH)D and that could limit or restrict a favorable response
  14. Hey Bob, Please let me know if there's anything I can do to help. I've still got some contacts at NIH if you've time to drive out to Bethesda. The one of best contacts will be the Chief of Protocol. He oversees all the intermural study protocols conducted in house by the various institutes at NIH and will know who has the most grant money. If it looks like you'll have time to drive out to Bethesda ~20 minutes from downtown DC, as the trip date gets closer, I'll try to set up a meet. Take care and keep up the great work. V/R, Batch
  15. Anti-Inflammatory Regimen Survey Good people and fellow CH'ers here at ClusterBusters, the anti-inflammatory regimen containing vitamin D3 that I began posting about over a year ago at the following link, continues to prove effective as a CH preventative for many of the CH'ers who have tried it. To date, the raw data indicates an efficacy of 70% and over 25 members of this site have commented on their experience using it. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416 Rather than rely on a rough tally of responses from CH'ers who have tried this regimen any fu
  16. xxx

    D3 Update

    I've never had a bad burp from the Nature Made Omega 3 Fish Oil... but others have. Must be all that good rum that's dulled my taste buds... and smokes that have done a number on my sense of smell.... If any of you find a brand with no fish taste, please let me know. Thanks. Take care, V/R, Batch
  17. What's the link to the NatGeo site movie clip?
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