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Everything posted by Racer1_NC
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2018 Clusterbusters Patient Conference Denver
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
As long as the situation allows, I will be there! Looking forward to seeing you again! -
2018 Clusterbusters Patient Conference Denver
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
I second this.....come prepared!! -
2018 Clusterbusters Patient Conference Denver
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
SMH..... -
There was a gentleman around in the fledgling days of Clusterbusters who believed that the closer to the equator you lived, the better your head would be. If memory serves he moved south though I can't remember where other than he left the US. I've never tested the theory so I offer no opinion.
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2018 Clusterbusters Patient Conference Denver
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
Greetings... Personally I've never had altitude trigger an attack but I know that some have. Where I live is about 1000 ft....where I snow ski is an hour and 45 minute drive and the elevation is roughly that of Denver so I'm not worried. If flying is a trigger for you Denver could still be ok as cabin pressure is roughly equivalent to 8000 ft. Denver is roughly a 5400 average. -
I've never indulged myself but after being around many, many cluster people I've heard a range of comments....it doesn't help and it doesn't hurt being far and away the most common. I've also heard a few swear it helps....and a few swear it's a trigger. Damifino. I do know when I was a tobacco user even the thought of lighting up during an attack would make me worse....but then the first thing I wanted after the pain was gone was a smoke.
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I'd contact my supplier and ask it both the connections are controlled by the same valve. I must admit that it looks like that would be the case but one never knows.
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I don't think I'd ever call a CHFather reply unhelpful. I think what you've found is spot on. I've just never laid hands on the parts in question and as such I'm cautious about recommending something I've never had experience with.
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It looks like your tanks have built in regulators and I am unfamiliar with the PTO set up pictured. I will offer one other idea.....it you can find a "T" fitting (see picture below) and some spare tubing you can run the output from 2 tanks into one mask which will just about double your flow rate. Worth a shot if you are looking for a rate higher than 15lpm on the cheap.
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A quick Google search found several demand valves for under $300. DISS fitting regulators can be had for less than $60...and that's new equipment....not ebay which could be even cheaper. I'm not familiar with that fitting. It must be a UK thing.
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Stuff happens....No biggie.
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Social media "groups" are the fastest and easiest way to start your own fiefdom. Everybody wants to rule the world.
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2017 Clusterbusters Conference
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
Hate you aren't going to make it this year. -
Yes...that's the plan....Friday around noon if memory serves. Hope anyone that is new to O2 or just wants to talk about usage stops by for a chat.
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If it's like previous years we'll have mostly "E" tanks with a couple "M" tanks for the main room and demo's. Bring your mask and regulator.
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Much better mask to invest in......makes a world of difference. Cluster Kit And for those using welding tanks or the larger med tanks with the 540 fitting.....this gives you any flow rate you desire. It takes a few to figure out what works best but then it's off to the races. Harbor Freight to the rescue.
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Clusters better under control, now I'm getting migraines. Anyone else?
Racer1_NC replied to paulamac's topic in General Board
During the "pre-cluster headache era" oh so many years ago, I would get 2-3 bad migraines a year. I know......not many...and I was thankful. Now.....in cycle or not, I've not had but a couple midlevel migraines since clusters appeared in the late '90s. Why? Damifino. -
Propofol (for tooth surgery) - is this any bad ?
Racer1_NC replied to Archimedes's topic in General Board
They used Propofol on me yesterday for a minor procedure. Not in cycle at the moment and it in no way aggravated my head. Just like taking a nap...nothing more. Of course....your experience could be different. Bill -
I doubt you'd see much of any difference between the two under most circumstances. That being said...I treat o2 like money...I'd rather have too much than not enough.
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Does anyone know if they make Oxygen Concentrators with an LPM > 10?
Racer1_NC replied to bounty's topic in General Board
A concentrator is not able to dispense 100% o2. -
There were over a hundred there last month.....
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540 regulator....Harbor Freight. http://www.harborfreight.com/oxygen-regulator-94846.html
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Hits while sleeping generally occur when one hits REM sleep......
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I'm sorry....DJ.....the man behind the website that sold you the mask.....unless you assembled the parts and pieces yourself. I mentioned assembly errors just because it can happen.....Hell I did it once and I've put countless masks together.
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A true demand valve supplies o2 automatically as the user inhales. Kinda why it's called a demand valve...it supplies gas....on demand. Most also have the button as well. I would assume that a button only valve would be more of a resuscitation unit.....As the the OP's question about difficulty exhaling with a cluster mask...that usually happens with one that's been used a while and needs cleaning. If it's new...it could have a defective valve....be assembled incorrectly or the valve is stuck as a dirty one might be. Hard to say without examination. If it's defective DJ would undoubtedlydo what's needed to solve the problem.