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Everything posted by xBoss

  1. xBoss

    does your pain start from the back of your eye?

    My ch starts in the rear left teeth then the eye. There is nothing for the eye doc to fix, its a ch side effect.
  2. xBoss

    If Oxygen and triptans work is it 100% CH?

    There are many levels to CH pain, I usually get off easy in the early stage of a cycle then it tops out.
  3. xBoss

    Computer help....

    I used to build websites. Had to pretty much retire due to the eye pain and triggers. Breaks def. help.
  4. I did not want to start a whole new thread so I'll mention here since it was funky. The most painful CH I ever has was Summer 2017 and during that moment I heard dancing queen playing in my head perfectly clear like I was playing it. The funny thing is that I heard all the lyrics play and I don't know them. Brain was accessing old memories or something.
  5. xBoss

    'Symptoms' Only - No Pain?

    I never say beast or demon but years ago before I knew anything about them I would say it's what burning in hell must be like. Good luck Claudia!
  6. xBoss

    Doctor vs Patient

    Busting is stopping a cluster cycle and being pain free! We do that here! I may seem new but I'm a long time lurker.
  7. xBoss

    Doctor vs Patient

    Doctors can suck sometimes. I'm actually self diagnosed. I went through the first 8 years thinking I had either migraines or something wrong with my teeth since I started having CH around the time my wisdom teeth came in. Doctors were of little help. I'm on year 21 now so there is no way it's a tumor or anything like that or I would not be around to post this. Once the internet had enough CH info out there about 12 years ago I finally figured it out because I have the exact symptoms as any of us here.
  8. Funny you say that moxie because I always read about how CH makes it so you cannot sit still but I like to press my head into the bed or floor and sit very still in the dark and I also used the term hide from the pain by trying to get into portions of my head that kinda hide from it. Yeah, the self inflicted pain stuff, hitting, stabbing etc. is pretty normal IMO. We gotta do what we gotta do!
  9. Heh, i forgot the orajel. I gotta try the push ups. I had to quit the monsters, love them but my health cant handle them very well anymore. I know what u mean chels
  10. xBoss

    Pre Episode symptoms: do you have them?

    I get worried and scared of the impending doom but not too depressed. I know they are coming when my muscles start to knot up which is usually a sign that the cycle is coming within 2-8 weeks.
  11. xBoss

    strange changes to my clusters

    Standard drug tests do not look for mushrooms. I never heard of anybody failing a drug test over mushrooms. They saved my life last year.
  12. xBoss

    CH, Marijuana and Me

    I had the same revelation. I only suffer once a year for 3-12 weeks because I smoke weed all year. However, smoking weed during the cycle sucks as you stated, makes it worse. Last year I stopped the cycle with mushrooms, I hope to do it again this year.
  13. xBoss

    Cluster rules

    I used to think that but after about 21 years of them and im nearing 50 i think they can. I now go onto shock and sweat bullets then i get a wet freeze that gives me a cold seizure. So although they cant kill you all by themselves, they can trigger other things and stress the heck out of any other weakness you may have.