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Posts
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Everything posted by Shaun brearley
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Yes been pain free since January so can't complain just got flight home to get through but should be ok
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Sorry @CHfatherforgot about tanks below a third being less affective
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Was that quite well enough @BoscoPikosorry took time to replay on holiday in Bulgaria hope you well and pain free at present
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@DanPit's great that your only using once a day. but temptation is always there to use more as the relief from the pain is so fast, triptans can cause really bad rebound attacks that can be alot worse than your initial attacks, plus triptans can prolong your cycle, you only need 2mg to abort with triptans so consider splitting your injection (easily done) I've been down the dark rabbit hole with triptans, I got to a state where I was using up to 5 injections a day, prolonged my cycle by around 3months with headbanging attack day and night, my body became so weak and after each injection I'd feel like I was going to have a heart attack, so please be really careful with them, don't get me wrong I still carry them with me if I out in public or go on holiday because it's not great to get an attack in public, but I never use them at home anymore I'd rather ride the pain if my O2 doesn't work but I'm lucky at present as O2 works for me, I do change my breathing techniques know and again, have you ever tried busting? And get on D3 ragime it really help alot of use
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Triptans are a nightmare my friend, O2 works so well for many of use, what's your routine with O2?
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New Member – Looking for Insights & Support
Shaun brearley replied to elmjonathan3's topic in General Board
Sod off @jon019your mad as a hatter -
New Member – Looking for Insights & Support
Shaun brearley replied to elmjonathan3's topic in General Board
@Craigoonly speaking the true my friend, we have to be mad to put up with this -
New Member – Looking for Insights & Support
Shaun brearley replied to elmjonathan3's topic in General Board
Welcom to the CH club, we are all a bit mad in here, but we have lots of knowledge, so ask questions, tell us your experiences -
New episode leading to preventative treatment
Shaun brearley replied to Sub's topic in General Board
Hi @Subreally good that you have a neuro that understands CH, that's the first step and normal that's one of the hardest, as for verapamil really works well for chronic and episodic,but not for everyone, biggest problem with varap is the dosage needed to be affective for CH, with it being a blood pressure med it can cause serious damage ie heart block, really need to get on O2 life changer for most CH, as for samatriptain injections, just be careful can lead you down a horrible dark rabbit hole that really hard to get out of, have a look at the D3 vit ragime, again works for loads of us and your shadows may well respond to ginger, -
Question about keeping a job with Cluster Headaches
Shaun brearley replied to Seth's topic in General Board
Got a really understanding employer, I drive a coach for a living all over Europe, but when in cycle, I work local and have days off when needed, -
Managing joint pain along with chronic clusters
Shaun brearley replied to Deborah's topic in General Board
Only reason I smoke it is because of PTSD, WORK FOR THAT, -
Managing joint pain along with chronic clusters
Shaun brearley replied to Deborah's topic in General Board
INDICA IS BEST STRAIN FOR PAIN RELIEF, DOSEN't do anything for CH -
I'd say go and get some Professional Help my friend,
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Yea but you need a brain first for that to work, so I'd say that a few of us on here have got No chance, what you think @Bejeeberand @BoscoPiko? Not mentioning any names
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I've not seen rain for 29 days in UK just pure sunshine
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I'm just gonna move to a planet with no sun!!!!!!!
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Gonna be my go to snack when busting know!!!!!!
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I can make the world alot bigger if you want me to @CHfather
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I'm with you bej, spiders for breakfast dinner and tea from know on!!!!!!
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I'm afraid this is so common, cycle changing when you think you have it sussed, the beast loves messing with your head
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Fair play to you, I defo don't have sex on my mind when under attack but my just ask the wife to do me a favour next time I get an attack, God if this takes off,us cluster heads will be known for being druggies and sex pest, can you imagine walking down the street getting an attack and just asking a stranger to jack you off,
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This place and the wonderful people on here have saved my life, simple as that, words can't say enough, But thank you everyone involved in this forum
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Don't need to hang upside down, I can feel and see the vain on my cluster side
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Think I may have an angle on here that is gonna help me out , thanks mox
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I'm in deep know so getting smashed every day and night, can't work at moment doing my head in, fingers crossed you keep him at bay