Shaun brearley

I'm afraid this is so common, cycle changing when you think you have it sussed, the beast loves messing with your head

Fair play to you, I defo don't have sex on my mind when under attack but my just ask the wife to do me a favour next time I get an attack, God if this takes off,us cluster heads will be known for being druggies and sex pest, can you imagine walking down the street getting an attack and just asking a stranger to jack you off,

This place and the wonderful people on here have saved my life, simple as that, words can't say enough, But thank you everyone involved in this forum

Don't need to hang upside down, I can feel and see the vain on my cluster side

Think I may have an angle on here that is gonna help me out , thanks mox

I'm in deep know so getting smashed every day and night, can't work at moment doing my head in, fingers crossed you keep him at bay

Oh dear that's not good @BoscoPiko, hope you don't go into full cycle, I'm guessing you have everything needed to bust before the bunny clambers out from under his rock, I was stupid and let my arsenal go dry as wasn't expecting to get hit yet,

@BoscoPikoyou in cycle to?, I'm having a bit of a nightmare, but DMT helping a lot to abort,

If your gonna take antidepressants as a preventative for CH, all I can see coming from that is you will end up addicted to antidepressants ans still have CH, oxygen first and foremost to abort varapamil as a preventative and triptan injections as last resort to abort

Yes we are aware of suicide of people who have been members of CB, but again not something we like to talk about, I don't understand what you will get from people answering your questions

Don't think many people would admit to it, so not really a question needed on this forum

Agree with everything said, I was diagnosed with sinus problems first of all then wisdom tooth on right side removed, still in pain, I'd really go and see a headache specialist, best people to get diagnosed by

I stock pile SAMITRIPTAIN all through year, I don't use them but I've got them if people need them

Hi @victorp, really sorry you had to find us here, but it's the best place to learn about this sh_t disease!!!!, sorry to hear it took so long to get your diagnosis but that is usual, you should be able to buy a regulator to up your O2 to 15L/PM, as for your shadows have you tried Ginger. A lot of us use it, you can get it in lots of different forms, Candy, tea, tablet, it seems to work for a lot of use

Flash your a legend my friend

And the god himself has travelled for America again

Got to love this woman

Wish I could be there this year, but I'm working, doing what I love driving tour coach around Europe, didn't think I'd be doing this as CH f__ked up my life, but thanks to you guys and girl on clusterbusters.org I got my life back,

I will put my list together, you will just have to wait a bit, it's long!!!!!!!!

I haven't got a problem with your experiences at all , but your post states CURE !!!!!!! , your not cured simple as that !!!!!, and yes I'm know in my 27th month pain free , Have you ever thought that your CH has just switched sides

@Douglas Wardwhat gets me with your posts , is you jump in with i have the cure , then you say you still get attacks, so when people question you , you say its just my experience, so it's NOT a cure!!!!!! It's just your experience!!!!!!!!!. Then you attack the group , if you are cured from CH buddy I would just leave this group , NO need for you to be here ,

I understand that , But the word cure shouldn't be used , it give false hope

All im saying is , if it was as easy as booking a flight to south africa and visiting the miracle doctor Shevel , every CH sufferer would be banging on his door , but we're Not !!!!!!!!!

Mate I'm not saying I don't believe you , I'm just saying from my experience their i s no cure , and yes I have CH have done for 44years , and yes I've had a rope around my neck on 3 occasions , my cycles last 6 months at a time 8 to 15 attacks every day and through the night , , I've banged my head on the floor the wall I've even had my partner knock me out with a frying pan , I also stab myself in the leg with a knife just to try to put the pain somewhere else , so yes I would say I have experienced CH ant it's worst !!!!!!!!!

Sorry not having a go , just don't like people being given false hope