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Highly amusing and approved forum name @DoesMyEyeLookSmall! Constantly waking up 3-4 times a night for no reason? I've been experiencing the same thing for a little while - here lemme figure out for a minute how long it's been.......OK, got it: 42 years. Roughly coinciding (or maybe exactly coinciding, I dunno) with the onset of my episodic CH. My deal may be more accurately described as waking 4-5 times a night, and pretty much always in the middle of dreams, so there's a difference there. Annoying, and certainly not a good thing, but hasn't killed me yet. There was a short time when a supplement named "Relax'n Sleep" that contained the usual suspects such as magnesium, valerian, etc., seemed to help a bit, same for just plain magnesium citrate, but then no. I'm not one who is helped by the melatonin or benadryl that the helpful @kat_92 mentioned, but some certainly are, so I figure worth a try. I personally wouldn't be trying taking a drug like amitriptyline for it, but I try to avoid regular use of the pharmaceuticals in general. I believe CH'ers are pretty notorious for tendencies to not be the greatest sleepers, whether in cycle or not.

Indica seems to be the downer more pain killing and knock you out type. Sativa used to give me stay up all night energy but not since I was about 45. The last five years any weed will knock me out. As for strains, I never really pay attention lol. Michigan has been a weed free for all for a while now and from an old dudes perspective it's all cush :p It really helps with the restless legs and the restless hips (same feeling in the hips). Those can be horrible but weed is 100% working on those issues as well.

Thank you guys so much. Very informative. I'm so glad I found this site. I been dealing with these monsters for almost 15 years now and felt like I was in the dark and almost felt ashamed to look for help/answers outside of my Dr. Thank you.

Also I should note that I have changed my normal habits of random sleep time to a more strict sleep time even if I'm not as tired. Don't know if that makes a difference but I know I wake up with less shadow pain and just feel better overall.

I think your rt. I never had a problem sleeping and don't (knock on wood get night CH) but I have noticed that I wake several times in the dark hours. I don't understand it but it is real. I have found that the Melatonin gummy and pills don't work for me (just recently tried) but Melatonin sleep soak by Dr. Teal's prior to bed helps. I also wear sleep buds with the sound of rain or a storm that really seems to help.

.....Hi DMELS....welcome... ....we got us a wonky hypothalamus, which also controls sleep, so abnormalities there not unexpected. mine the opposite, and uncontrolled when young could/would easily sleep 20 hrs straight. might wanna consult a sleep specialist for your issue and/or sleep apnea, which seems prevalent in clusterville. many have been helped with cpap machines (much less intrusive models now available)... ....not surprised re the Amytriptyline...many yrs ago prescibed that for CH, for which it proved worthless, but, i note that the side effect was a deep sleep and getting up in the morning was like climbing out of quicksand with lead weights on (amused me i considered it an accomplishment to just get out of bed).. ....Benadryl is an old line antihistamine which tends to make folks sleepy...which is what we are looking for, Flonase does not..hope it works for your allergies which can make CH worse... ....ps i like the handle too....and my eye DOES look small...seems permanent but eye docs just shrug... best jonathan

All the usual questions seem to be in order. Do you have oxygen? Have you started the D3 regimen? Do you know about busting? What are you using to prevent, and what to abort? Do you know what your triggers are (if you have any)? Have you tried any of the new meds (Emgality, Aimovig...)? . . . Those kinds of things. For a big overview that might have some helpful stuff in it, I will refer you here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ There's a section on busting at the end of that file, so if you get tired of reading, be sure to look at that.

Have you tried Benadryl or melatonin? Do you normally struggle with Ch at night? Chronic or episodic? I take Benadryl every night for allergies and it helps me sleep.

@BoscoPiko This seemed to be all too common in my life (long story)

Hi new here. First post. I deal with my CH on the regular in the evening but I been having struggles staying asleep at night. Constantly waking up 3-4 times a night for no reason. No CH through the night, no dreams just waking up. Doctor prescribed Amitriptyline but other than that didn't give me any answers. I'm now napping in the afternoon for about an hour but my doctor says to avoid that. Anyone else have the same struggles.

I can't get a good nights sleep without a joint before bedtime. It's been that way for many years like bejeeber, I think it's been about 37 years for me. The weed works for me but yeah, another medicine...

Oh and ...

I would also say from I've read and experienced, an hour is too long for a nap - more like 15 minutes is supposed to be better for you. Of course naps are practically guaranteed triggers for many CH'ers when in cycle, so are a total no go just on that account, but it sounds like you can get away with them.

I am a bit skeptical about the info this company touts. It is incredibly hard and time consuming to do this research (how long has the Yale study been recruiting) and yet looking at what they report, there are no references to scientific journals to support their claims. A search or govermenttrial.gov yields only one LSD and CH study underway since 2019 and still recruiting 30 patients. The D3 study Batch is part of a cluster headache search and still recruiting. It is unlikely to claim expertise and therapeutic results (LSD/Mescaline/psilocybin/etc) in all of these areas. MDMA has been studied by a large group worldwide (led by MAPS) and they are still at least a year away from final results. The time frame is so accelerated and the lack of references is concerning. A slick website, lots of unsubstantiated claims and improbable timelines would suggest great caution. This seems like a financially motivated group trying to piss on every bush in the psychedelic world to claim patent rights

Just wanted to come back to this forum after 5 years of being pain free from clusters. I have taken 5-10,000 IU of D3 daily and have not suffered from a single Cluster. It may not work for everyone but if you have yet to try this you might be missing out on something wonderful. Thanks an best of luck!