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Showing content with the highest reputation on 01/03/2022 in all areas

  1. I put the official stamp of Jeebs "Like" on the Clusterheads Poem, but I do think these last two lines from it are worth qualifying: Unless you are a clusterhead You haven't got a clue I've long considered @CHfather to be an official clusterhead whether he wants to or not. This guy has consistently come to the rescue of tremendous numbers of fellow clusterheads on the forum over the decade, and while many may not realize it, all while going through the ultra severe pain/afflictions/hospitalizations wringer and them some himself - he's one individual whose severe health experiences I would actually not wish to trade for my own. Then with his own child a clusterhead, he's "got a clue" and then some. So here's a New Year's toast of infinite gratitude to one Clusterhead with a capital C who has made such a huge difference for so many of us, an individual who I shudder to think what Cluster Busters would have ever been like without, the hyper vigilant, ultra knowledgeable, incredibly empathetic dude who keeps the cluster info real, and who I find myself now building up into some kind of God-like figure, or at least a patron saint of headbangers, Chfather.
    5 points
  2. You guys on this site do ONE thing absolutely right. You try to stop the suicides. So far? I have to say thats a great accomplishement. To not become inured to others suffering? You deserve - all of you on here - a pat on the back. Not simple or easy during these days... thank you. Thanx to all of you for your kindnesses.
    5 points
  3. .....ha Jeebs, ALL so true....and when i find myself saying "only a clusterhead would understand", i end up realizing: "well, whadda bout CHf !?" and then i weasel word it. actually, i'm gonna take this as permission not to have to do that anymore....because, there is no one more eminently qualified to be a "Clusterhead" than @CHfather.... ...also, my thanks to Bob and all the other clusterheads who came together for the being of this site in the first place....and for the admins, mods, board and others who toil on or behind the scenes...and, of course, for my fellow clusterheads who make this journey through the quicksand more bearable ...THANK YOU!
    4 points
  4. 4 points
  5. Good call jeebster!! Jerry is indeed an honorary clusterhead!! DD
    3 points
  6. I can only reiterate what has been said in above quotes .This forum with you guys and girls sure have made my life all the more easier and bearable to handle THANKS A LOT
    3 points
  7. I've seen your incognito Facebook page buddy . Didn't want to put it out there but as you've asked I've had no choice
    1 point
  8. How did you know I was wearing a hot pink jumpsuit right now @Shaun brearley??!!
    1 point
  9. ...if you want or need the protein powder consider different brands and formulations....me i wouldn't touch 'em w/o a lot of research. a single like the whey protein spiny used seems best. the lower the number of ingredients the better chance of narrowing down your trigger(s). many have aspartame to "sweeten" as the powder itself is pretty yucky...known trigger for many. hydrolyzed protein is another name for MSG another known trigger, glutamic acid converts to glutamate in the body, migraineurs are advised to avoid. basically amino acids and their various forms can be or are "vasoactive" so potential triggers. the taurine in energy drinks being one....my neuro forbade it's use as being TOO vasoactive and "we don't know enough about"... ...i tried a google search...there's lots of info out there....consider reliable sources (.orgs and Mayo clinic types) for discussion....
    1 point
  10. Update: I haven’t taken the protein powder for 2 days now and I haven’t had a headache since! There must have been an ingredient in there that triggered a headache. Boy was it weird. Now I’m out $30
    1 point
  11. Brain Pain:The illumination,In advance,You reject,I'm rendered naked, and splayed,Unarmed to your un-welcome intrusion,Arsenal of prophylactics,Beaten and humbled, by your stopover.The thunder is here,No hiding now,It's gone right,Right to the righteous region of the brain.Knees suddenly relevant,I rock, back and forth,Making even a mechanical horsey look dull,Prayers fly from my lips,My mind, my soul.They seem to go unanswered forever,At certain seconds, that I am positive are years...I concede my faith...I am repentant when the thunder subsides.Left only to wonder if the reprieve,Was your handy work?I suppose I'll never know,Unless my faith,I allow to grow! I know this won't hit home with all as all are not religious but I re-read this from time to time to help me remember how far I've come in dealing. Best to you all!
    1 point
  12. Saw on newspaper online.. maybe washo or nyt? But they showed picture of lady who had brain surgery... and she now wears rose tinted glasses all the time - to mediate her headaches. Saw pic n read abt in last 10 days. So other specialists have seen, noted, and utilised it - successfully. Also? Read green light is supposed to help migraines. U r supposed to stare into the light source for few hours ata time. Tried it dec-jan 2020-3021 ot absolutely did not help me. I prefer soft lighting.. and prefer blue to green lightd. Blue did seem make my chas seem worse. Havent tried pink lightbulbs - yet. My dad who didnt have migraines? But did have timmitis bad when he was older? Swore sunglasses were important during daytime and he wire yellow glasses for night driving. My mom had occasional bad "sinus" headaches - a few when in mid 20s. Then again? My ha's r resolving... slowly but surely. So being ever hopeful? May not need anything except regular lightbulbs....
    1 point
  13. I say we should all chip in to fund a jumbo sized "CLUSTERHEAD!" tattoo for @CHfather at the soonest opportunity, at a deluxe tattoo parlor of his choice. (Of course the irreplaceable queen of the headbangers @spiny and many others who need no qualifications as clusterheads have long royally kicked royal arse too )
    1 point
  14. Wow come on juss most of us on here support you buddy . I for 1 find your posts intriguing and interesting and have learnt so much from you buddy. If you don't agree with something posted on here my friend as spiny has said just skip on by buddy it's really not worth the hassle .
    1 point
  15. Juss, you are referring to a FB Group that is well known by many here. They are not 'us' and push/prefer Pharma for money reasons. You click, they make money. That group, is not any part of our group here and we were around for about a decade before they formed. And they will throw you out for mentioning MM. Please, take a step back, reread some of our responses to your posts and think about it. We, as a group, have tried to understand you, help you, and support you. For BPD, Dialectical Behavior Therapy has proven highly effective. It was developed for BPD. My child, with this disorder, has had only one meltdown in 8 months since she finished BPD Therapy. Normally, she would have had at minimum 10-12 meltdowns. Her IQ, is above 150. As I suspect yours is. Which makes the disorder even more difficult. I have seen it for decades now. It is horrid. My heart hurts for you. I wish you health and happiness. I wish you peace. I know that peace might be the most difficult thing to attain. For your posts on the board, please be kind and positive, or just scroll on by the post. spiny
    1 point
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