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This is one of those things I believe I have learned from personal experience, as opposed to extensive research, so as always am open to anyone's differing take on the subject: Some of the nutrients in the D3 regimen, such as B vitamins found in a multi-vitamin, are heat sensitive, and anyone like me who orders them online is risking receiving some killed dead pills if they are delivered in a roasting oven of a delivery van (last I checked some of the D3 regimen moving parts such as minerals like magnesium are more impervious to heat though). Here in Austin I've been waiting pretty much all of April to get a not-too-hot opening in the forecast for having my entire spring-summer-early-fall's worth of of D3 regimen components delivered alive and well, and have just pushed that button. I suppose my urging can be summarized thusly: Order 3 to 5 months worth (depending on your local climate) of your heat sensitive D3 components while there is still some cool weather, or risk purchasing some dead krap, and worst case scenario: The Beast catches you with cluster-pants halfway down.

Whoa, your own greenhouse? So KOOL. I recall @spiny having been involved in some truly heavyweight gardening - like I think for the supply of ALL of the plant foods consumed by the family year round?? So you two are the clusterbuster farmers on steroids (which in our case I guess would be prednisone ).

This was a great heads up.. I'm in the land of fairytale so I order often and regularly I am somewhat of a horder when it comes to supplements. Yes mindful of expiration dates but not a denier of possible issues with delivery . The environment we once became familiar with is changing in deed. I'm excited about my greenhouse in which I have ready a multitude of plants that produce the needed vitamins (not as much as I need but better than noda).

What a beautiful view you have from your decking

Here is what I have ready for the greenhouse so far. Cucumbers, celery, jalapeno peppers, ancho peppers, serrano peppers, bell peppers, brussel sprouts, broccoli, zucchini, tomatillos, strawberry's, tomatoes, egg plant, onions and cucamelon. I'm sure I'm leaving out some things. I cant attach the greenhouse location in this one because of file size. Will have to post separately.

That unreasonable size limit issue is one of the things be addressed during forum maintenance tomorrow [Edit: No wait, that maintenance occurs today]..........fingers crossed.

So..oops

OOH - that is one fantastically wide assortment of crops.

That would be great if they can fix that issue!

I believe you

I will try and post some picks on here later if I can manage to downsize them enough

Lol Shaun.. It's the phones fault I swear!

Their you go again Bosco lol

I'm do excited jeeb!

I think there is much truth in some of the points and other points are borderline absurd. It is true that nutrition is a very small part of traditional medical school curriculum. Most medical schools (US at least) have adopted a systems type approach to learning. What this means is after getting core training in anatomy, physiology, biochemistry, histology and other basic science subjects the curriculum moves on to an approach based on body system. For instance, in the cardiovascular system module includes the pharmacology, anatomy, pathophysiology and basic treatment of that system. Obviously the depth of knowledge required to actually treat and diagnose a cardiovascular problem exceeds anything a person can learn in a few weeks. Post medical training takes years even to recognize and treat common problems. So its easy to understand how nutritional supplemental information can get lost, dismissed and misunderstood. The other issue becomes how litttle most individuals are willing to be responsible for their own care. Imagine how few health problems the system would have to deal with if people were fit, drank in moderation, avoided harmful drugs, didn’t smoke and modulated sexual behavior. Not trying to make excuses but adding perspective. Very few clinically active physicians have an interest in people not getting well. Little to no personal revenue is generated by physicians from writing a prescription. Sure some collect consulting fees from pharma but generating any substantial earnings from this is negligible and the money’s assigned are less than a day in the office generates. In the last decade or two most physicians do not even see drug representatives and are legally required not to benefit from prescription writing. Indeed physicians are trained to write prescriptions and usually prescribe based on treatment protocols, familiarity or formulary restrictions. There are so many folks who need to see a doctor for a variety of problems thinking they would not act in what is believed to be a patients best interest approaches silly. Do you really think a Neurologist wants a 4-12 month waiting list? Most caregivers want people to get better quickly and easily. Because of the overburdens and limitations of an office practice many primary care providers have to “punt” to a specialist just because they have no time to study a non responding problem or want to streamline a diagnosis and plan. Of course they might also be motivated to move a person with a difficult personality along too. In our situation we have a debilitating, life crushing condition which is uncommon, poorly understood, and multi factorial. It is also non lethal on the surface. Because providers fail to see how this condition kills it gets a lower priority and folks like us suffer. Forums like this are essential because it allows a free exchange of experiences and allows us to work out what works, what is said to work but does not and how to fine tune interventions to gain maximum relief. Cluster headaches have certainly been given a low medical priority, under appreciated suffering and downright criminal treatment especially how long the fight to get O2 recognized and covered. Again forums like this and organizations like Clusterbusters help where the “system” never would. The legal system does create limit some provider hesitancy for novel, new or out of normal recommendation treatments. Also when you are treated outside of normal protocols services attached to those treatments are not covered. This creates conflict between patient and provider because imaging, lab tests and procedures can go uncovered thus generating financial obligations few can meet without insurance (again a mostly US problem). Trust me, if you got a kidney stone after being prescribed high dose vitamin D beyond standard recommendations a motivated patient could find a lawyer to help sue the provider despite the strength of evidence to the contrary. It would likely be settled out of court and you would never hear about it. So we take our Vitamin D, ingest illegal substances and try whatever crazy sounding thing we hear about to relieve this indescribable pain. We own it and don’t need the traditional medical systems approval.

I'm not sure who your question is addressed to but I'll chime in and say yes. I think most of us have and it has no effect on ch..

An excellent State of the Art Review of the Cluster Headache syndrome. For members who didn't attend the Clusterbusters 14th Annual Cluster Headache Conference - Dallas, Texas in 2019, neurologists Emmanuelle Schindler and Mark Burish, the authors of this review, were among the featured speakers. Both are dedicated to finding effective treatments for CH. Emmanuelle is the PI for an RCT using psilocybin as the intervention for CH. Mark was impressed enough with the results from my study of CHers following the anti-inflammatory regimen and treatment protocol with 10,000 IU/day of vitamin D3 plus the cofactors, to initiate an RCT of his own using a similar treatment protocol. That RCT started recruiting earlier this year. Take care, V/R, Batch

Awesome post! Thank you!

Excellent!!! Thanks.

Good to keep our situation top of mind. Especially good in a widely read journal. One author looking at psilocybin, the other Vit D. Hopefully it will help recruitment for their projects. Thanks for sharing

Brilliant!!!!

Wow, this is thorough!! Thank you, Max'!

I am getting the very frustrating "Internal Server Error," so I'm hoping that breaking my message into two parts will help. You could set up an oxygen system using welding oxygen pretty quickly. Maybe check with your doctor's office and see whether she is willing to give you a prescription for medical oxygen (which should have been done in the first place). If not, get started on a welding O2-based system while you look for a better doctor. Start the D3 regimen. It helps some people quickly. Not all people or even most people, but you never know, and you want to start it for the future in any event.

OXYGEN. Read all about it here and get it as soon as you can.

Annett, triptans are both a blessing and a curse, they work great but cause rebound headaches. I would suggest trying to figure out something else to controll the headaches and only use triptans for emergencies. I know this is easier said than done, I have been suffering with these for the last 40 plus years.