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Showing content with the highest reputation on 09/27/2021 in all areas

  1. ...yup, gimme shelter!
    3 points
  2. Love the term "anger sponge". I seriously need a stash of those!! I must admit that I have often thought of CH as some sort of cruel punishment for something I did wrong.. So I suppose the thought of possession is not far from that...Maybe our minds just want so badly to believe that somehow, someway it's something other than a neurological un-curable issue. I find that I prefer the worm in the nose theory I read on here while poking around...Who knows, maybe one day a cure will be just a shot away...
    3 points
  3. ...i get it...there were times when an attack/cycle seemed so malevolent, intentional, designed and implacable that the thought of the beast as "entity" was nearly overwhelming. didn't wanna go there, but it served as a convenient anger sponge. eventually learned to direct the anger toward collecting the knowledge, tools and strategies for battling "the beast".....
    3 points
  4. That is the reason the link CH with the hypothalamus and diurnal cycles, as it is in charge or a component of your sleep wake cycle and seasonal cycles. It is what informs and regulates the "alarm clock" nature of CH
    2 points
  5. The most haunting song ever created right there (IMO). Stones at their peak, with the cool, and just passed, Charlie Watts on drums. I'll admit this is something I still cling to...speaking of demons.....as a way of justifying the existence of CH for myself, that I thoroughly deserved it for past evils committed (cruel behavior as a teenager, etc.), but while ruminating on this I also I like to add in there that I've paid the piper at this point and it's OK for the piper to now leave quietly!
    2 points
  6. Yes, weird! And seemingly warranting investigation/research (?)
    1 point
  7. Denial is a bit@! Too. My parents have verbalized several times the may be a new Doc when we move will have some magic treatments that will stop my CCH or make it better. I am/was shocked they really believe that even w the caliber of Docs I’ve see. With my medical background, that when I tell them there is nothing left besides radical brain surgery (my opinion of Gamma knife), and they think a new neurologist is going to “save me”! my biggest fear is being without O2 and ketamine. I dosed recently and since then I’ve been getting worse. Probably unrelated but not slap backs. It’s been too long. I’m taking a break from dosing and sticking to Vit D, ketamine and oxygen unless another CCH vet has a suggestion...
    1 point
  8. Yea funny . Same here Bosco thought I'd come out if a rouge cycle but the demon has shown it ugly head again in the middle of busting .maybe it is for past evils committed when younger Bejeeber. I know i was a shit . We should question every CH sufferer , see if we were all little shits when younger
    1 point
  9. Ok that was flippin funny.. I've been spiking all day and depressed because I thought I was done, (out of cycle) and that just made me laugh HARD..
    1 point
  10. 1 point
  11. I don't think it's odd anymore. I couldn't see from your profile where you are located but I am in (don't dis me) CA. I have had ash reining on my truck for months from the Caldor fire and have been stuck in cycle for 2 and a half months with one week off only in between attacks. I am newly diagnosed with CH and have only been surviving them for a bit over 2 + years now but this is the longest I've ever been stuck in a cycle (I usually get around 4 months off) longest duration off was almost 6 months. I've got 4 air purifiers running day and night and again today I'm spiking out.. Exactly one week off and the smoke blew into the valley today. I can say though that the D3 has made them manageable enough that I've been able to not use any abortive medicine. To start a cycle on the exact same day of the month is somewhat interesting however...
    1 point
  12. Lol .yea got be fair i do feel possessed during attack legs jerking snot flying and people do look at you as if your mad when trying toi explain this shit . God i wish we could go get exorcism .if only that easy
    1 point
  13. I sure act like I'm possessed during an attack sometimes LOL..Curse words randomly flying out of my mouth, odd leg jerks etc. However, I'm fully aware of what's going on so I would have to say no. Wish I was then it would be simple, we could all go get an exorcism and call it good;)
    1 point
  14. Literally? No. Figuratively? Yes. Many have referred to their CH as a demon, the beast, etc.
    1 point
  15. To me belief in demonic possession is the stuff of Salem Witch Trials, Dark Ages etc., so nope I don't personally believe CHs are a form of demonic possession. If I did believe in it though, I would think prayerwould help, and O2, etc. wouldn't?
    1 point
  16. Hi everyone, https://cbconference2021.planningpod.com/ This is the site and registration for our 2021 conference in Chicago/Rosemont, IL, Sept. 23-26, 2021. I know several people have asked about a virtual option and I'm going to say I will try to do this. It's a heavy lift with an in-person event at the same time, and I don't currently have the manpower. If you would like to volunteer to help with technology (REALLY need people who are tech literate here) it will help to make this happen. As we are in close contact during our conference, the in-person conference is intended for those who have been vaccinated for Covid-19. We are looking forward to seeing real, live human beings again and hugging you all in September. -Eileen
    1 point
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