weezey Posted August 12, 2014 Share Posted August 12, 2014 Just registered my hubby. It is going to be great for him and Adam. His nick name is papa smurf. That should tell you something, hehe. Can't wait to share this time with all of you. We are arriving on the 17th, hoping to find some music that night. Hugs to all. Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted August 14, 2014 Share Posted August 14, 2014 My wife, my son and I will be there. Looking forward to meeting all of you. Quote Link to comment Share on other sites More sharing options...
Psiloscribe Posted August 15, 2014 Share Posted August 15, 2014 Looking forward to seeing a lot of old friends and meeting a lot of new friends. It's already guaranteed to be larger than last year and we have a month to go!! If anyone is thinking about driving and maybe wants to meet up and drive with other CBers, please post here. It's not a bad drive from the Chicago area. BobW Quote Link to comment Share on other sites More sharing options...
Lee Posted August 18, 2014 Share Posted August 18, 2014 having trouble registering on line for the conference, but Diane and I will be there. Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted August 18, 2014 Share Posted August 18, 2014 having trouble registering on line for the conference, but Diane and I will be there. There goes the neighborhood. . . . . . . . . . <Cool beans....glad you two are coming!> Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted September 14, 2014 Share Posted September 14, 2014 Regrettably, we have been forced to cancel our Nashville trip.... will miss seeing old friends and meeting new ones....safe travel wishes to all! DD Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 14, 2014 Share Posted September 14, 2014 forced to cancel our Nashville trip Oh no no no no NOOOOOO! :o Quote Link to comment Share on other sites More sharing options...
GeorgiaLamar Posted September 16, 2014 Share Posted September 16, 2014 This will be my first conference, Going to grab up Mr. Bowling Thursday morning and headed to Nashville. Cant wait to meet everyone!!!! Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 16, 2014 Share Posted September 16, 2014 Can someone inform lil' 'ol ignoramio bumpkin me what exactly a president's reception is in the case of this conference? Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted September 17, 2014 Share Posted September 17, 2014 Sadly like DD and a few others, I have to cancel as something has come up last minute. I have a hotel reservation I think I need to cancel today unless Alleyoop wants it since he was going to stay with me. (BIG sorry on that). Sometimes life gets away from us. If Alleyoop doesn't want it I can xfer to someone else, or cancel if needed. I have been looking forward to the conference all year and am seriously bummed I have to cancel. J Quote Link to comment Share on other sites More sharing options...
BostonHeadacheDoc Posted September 18, 2014 Share Posted September 18, 2014 Looking forward to the conference! Sorry that I will not see some folks who cannot make it, but sounds like it will be a big meeting. All going to plan will be at the reception on Thursday evening 8-) BostonHeadacheDoc Quote Link to comment Share on other sites More sharing options...
FunGuy Posted September 18, 2014 Author Share Posted September 18, 2014 Jeebs: The Bellevue room at the the Inn at Opryland. 6pm. Doc: Always a pleasure catching up with you and benefiting from your presentations. BTW, new agenda is up at this link for downloading: https://clusterbusters.org/2014-conference-agenda/ FG Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 18, 2014 Share Posted September 18, 2014 Thanks FG, I'm also interested in what a president's reception is, but knowing where and when is definitely good info too! Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted September 20, 2014 Share Posted September 20, 2014 Damn! Guess everyone is too busy havin fun to post any pics!!! DD Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted September 20, 2014 Share Posted September 20, 2014 Damn! Guess everyone is too busy havin fun to post any pics!!! DD DD..... I had to cancel at the last minute for family reasons. I usually would post up more pics than people wanted to look at. I hate I can't do that this year. Hopefully next year I'll be able to once again post a few for those that can't attend. B Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 20, 2014 Share Posted September 20, 2014 OK, well let's add Racer1 onto the long list of luminaries who've had to cancel at the last minute, DANG. Fortunately it's still record attendance, and day 1 has been great and energizing. Well it was for those not on the receiving end of some CH hits, as THREE people in close proximity to me were as I sat during presentations. Dr. McGeeney says the potential new treatment for CH he's most excited about is the anti-CGRP antibodies that pharma is racing to develop. Well that's the way I remember that part anyway - anyone please correct anything I may have mangled there. BB subbed for Bill on the O2 breakout and did a fantastic job. Here's one idea I got from it - staying on 4-6 LPM with a nasal canula, and sleeping with it on, after a high flow abort of a high cycle wakeup hit, can potentially keep that next hit from coming back an hour or so later. I didn't notice anyone stepping in for Racer1 in the photo snapping dept. This up to the minute update from your conference correspondent BloggerMcJeebs. Quote Link to comment Share on other sites More sharing options...
FramCire Posted September 20, 2014 Share Posted September 20, 2014 I see some pics on Facebook. Maybe those people could share them here too. Quote Link to comment Share on other sites More sharing options...
CHfather Posted September 20, 2014 Share Posted September 20, 2014 Dr. McGeeney says the potential new treatment for CH he's most excited about is the anti-CGRP antibodies that pharma is racing to develop.  Here's some info about that. I assume that if our good friend Dr. McGeeney is excited about it, it's because it might work for CH too. http://migraine.com/pro/calcitonin-gene-related-peptide-cgrp-prevention-migraine-positive-phase-ii-results-two-new-studies/ Since these are both Stage II trials, it might be helpful to have a sense of the trial process. That is described here: http://www.pfizer.com/research/clinical_trials/phases_of_development (I know there are also subsets within the stages (IIa, IIb, etc.).) I am totally just guessing here based on a little experience, and I know others will correct me, but I am estimating that the time from where those drugs are now to the time they come to market (assuming that the tests continue to show effectiveness and safety) would be 18 months - two years. I suppose people with CH would not be eligible to participate in the trials (only people with only migraines). Looking forward to learning more. Thanks, Jeebs! Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted September 20, 2014 Share Posted September 20, 2014 Sorry to hear you were unable to attend as well Bill!! Guess well just have to wait....Bob usually starts a pic thread after the conference. DD Quote Link to comment Share on other sites More sharing options...
birdman Posted September 20, 2014 Share Posted September 20, 2014 As you mention sleeping with low levels of o2 I thought back to my previous wish. O2 pumping into the house like they say the casinos do. Set up in my bedroom would be great. Sorry, rambling. Enjoy the conference and please keep updating. Thanks jeebs Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 21, 2014 Share Posted September 21, 2014 Day 2: LORDY, 'twas as inspiring as all git out! Bob Wold mentioned in closing 4 of his favorite things that had transpired. 2 of those that I remember are these announcements: Personal note: I was fortunate to connect with a whole lotta CH'ers and supporters and am beyond grateful for that experience. Undoubtedly there are rowdy headbanging conference folk doing it up with some saturday night revelry as I type this. 8-) Quote Link to comment Share on other sites More sharing options...
mff181 Posted September 22, 2014 Share Posted September 22, 2014 If anyone missed out check out my twitter account I live tweeted the whole thing except the second half of Day 2 I got hit hard and passed out. https://twitter.com/mff181 (My tweets got a lot of coverage well over 300 notifications when I got home from people who interacted with me about CBNash14!) I will also be posting about each day of the event already done 2 articles on it for my blog which you can find a link to below. I will have another article out on Day 3 later today and that will be the final one wto wrap up my coverage of #CBNash14! Quote Link to comment Share on other sites More sharing options...
Tony Only Posted September 22, 2014 Share Posted September 22, 2014 Thank you so much for updating us who have been following eagerly. Good news on Bol & psilo ! Yay ! Quote Link to comment Share on other sites More sharing options...
mff181 Posted September 22, 2014 Share Posted September 22, 2014 No problem Tony I'm glad to contribute in some small way with donations and coverage of CH related events. I really enjoyed hearing from Dr McGeeney he was an inspiration as well as Dr. Fadiman both of whom I will be in contact with as I delve into the world of busting and how it affects my vasculitides/migraines/neuropathy as well. Quote Link to comment Share on other sites More sharing options...
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