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I have LITTLE, beady eyes officially classified as blue, but what I would describe as something more like grey/blue - they never were close to being in the Bradley Cooper / Paul Newman class, which come to think of it must explain why Hollywood agents have failed to pursue me all these years.

...or BOTH. 23 yrs of clockwork regularity here, cycles and hit times...then cycles and hits became (thankfully) less and generally erratic for years more. my personal belief, backed by nary a whit of scientific support so wild-ass speculation, that the "aging out" of CH that every one of us has been "promised" (and some achieve) may be due to aging changes in our circadian rhythms...or, more likely, the CONTROLLER of same...the hypothalamus.

...fixed it for ya Shaun...

Me to Jono same dates for 39 years until this years extra cycle that started end of July

No problem Bosco. I hope that it helped a bit. There is so much that we don't realize or connect till years later, you know? It took knowing that pregnancy can stop a Chronic dead in its' tracks to piece the bits together many years later. I had to fight for my diagnosis with a Neuro when I got a proper cycle too! Actually had to take my husband to get the guy off of the Migraine train! It was not encouraging! But he and I get along fine now. I go once a year and get my one script filled and push him to get patients on the D3 Regimen. He will flip over the new studies using MM!!!! I can't wait!

Sorry Spiny! Thank you for responding in such depth though!!

Full blown chronic for 6+ years, while I was technically chronic prior to 6 years, since I would have at the very least one a week, all the time. So the 'pain free' for x amount of time never fit. I have reduced sensation around the eye, temple, cheekbone. Not numb, just muted, my right eye is in a semi permanent droop, far more in an attack, but still noticeable between, pupil on the same side is also constricted, and less reactive to light. Now, correct me if I am wrong, also just did a quick google, but there is a relation between melatonin and vit D absorption, so maybe not the eyes specifically but overall melatonin could have an effect on vit d absorption? Higher melatonin, more vit d blocked, greater chance of CH? So, having brown eyes would show higher melatonin?

Not sure exactly what you’re looking for, Sue’, but I assume it’s some kind of confirmed information (“What we know”) as opposed to just ”what we think.” There have been two major large interview-based studies of people with CH: Todd Rozen’s in 2008 and one by Larry Schor and others around 2018. The first two articles here are from Schor’s work. The second two are recent studies that seem applicable to your thinking. The last three are related to Rozen’s work. https://headachejournal.onlinelibrary.wiley.com/doi/full/10.1111/head.14237 [epidemiology, 2021] https://pubmed.ncbi.nlm.nih.gov/33337540/ (pain, 2021) https://journals.sagepub.com/doi/full/10.1177/03331024211018138 [diagnosis, 2021] https://www.nature.com/articles/s41598-020-59366-9 [effects, 2020] Rozen’s big study (2008): https://pubmed.ncbi.nlm.nih.gov/22077141/ (“Eye color: the predominant eye color in cluster headache patients is brown and blue, not hazel as suggested in previous descriptions. ") Spin-offs from Rozen’s big study Women: https://jnnp.bmj.com/content/70/5/613 Tobacco: https://pubmed.ncbi.nlm.nih.gov/29536529/

I cannot find any information saying that the iris lets light into the eye and onto the retina. My understanding is it is the pupil that controls the amount of light that enters the eye and the iris controls the pupil. The cornea refracts the light into the eye via the pupil and then it is focused on the retina. Which is why Cataracts cause blurred vision. I know that in cycle, my pupil will not properly dilate. It stays constricted to some degree. The docs always look into your eyes with their bright light back and forth, but that is only to check how they react to the light. I walked over and faced corner in the exam room and had my Neuro look at my eyes there to convince him that I do indeed get Horners with my CH. My CH pupil will not dilate in the dark when I am in cycle. Now that pupil is permanently constricted to a tiny degree. I had fought so hard to lift that eyelid, that he thought I was full of it when I told him that I did have Horners. Now blue eyes contain LESS Melatonin that brown or hazel eyes, that is fact. The highest levels of Melatonin cause brown eyes. The less Melatonin in the iris, the lighter the iris. Ergo, blue comes into play. And your DNA determines your eye color. I am all up for new facts, but I don't think that I am wrong on this bit.

Sue, I had them and wore them for ~two years. After that, I was no longer in an environment with those stupid lights. I went into remission a good 3-4 years later. The drugs that I was prescribed made drinking and all that off limits, so no, no drugs or anything for the 70's. I also had a script for Thorazine for my nocturnal hits for two years. Pretty shocking today. My doctors, at that time, felt that my headaches were caused by a concussion. They did not even think they were migraines. That diagnosis came a few years later. when I moved to another state and went to the ER. It is rather complicated actually, but that should give you enough information to work with. Then came the glasses.

@charles87sf I'm betting most of us have stories about clusters coming and going when they aren't "supposed" to. As everyone on this thread has already mentioned, it's sort of a crap shoot. You hear stories about folks getting clusters on the same day, same time, on a very specific schedule. And that certainly happens. But my guess it's also almost as common for them not to follow a strict schedule. But, you are on the best site in the world for clusters and you are hearing from folks that have more collective experience and knowledge than anywhere out there, including strictly medical sites. Don't hesitate to reach out!

Spiny? U wore pink lensed glasses for migraines in the 70s (for all thru the 70s? 10 yrs straight?)....and u then after that? (When after that?) had a 10 year remission?... pls? What were, roughly, ur dates of pink glasses and ur dates of remission? Like roughly months and yeararspls? And thanx? Did u, by chance, use drugs during the 60s-70s. also? Hallucinogenics? If this is too personal we cld go private... just trying to get a better handle on the dates and firm things up a bit more. I also had a 10 year remission - if i am correct to see the headaches on a continuum? Thanx

...old ch.com JOKE..."wimmins don't get CH"...it's kinda funny in a morbid way, when talking about clueless medicos quotes...

Happy New Year ya'll! Hope everyone enjoyed the celebration......meh, I turned off the tube, put on my jammies, and went to bed at 8:30! So , I ran across this poem by our very own @Fast Eddie ....I'm fairly certain it's posted here but it's been a long time.....I first heard it at either the Portland conference in 2010 or Las Vegas in 2012 when Eddie recited it....great poem by a great guy! ‘We call each other clusterheads" by Eddie Langford There are many types of headaches I'm sure you've had your share From stress and strains and migraines To a sinus one here and there But let me tell you about one friend That puts them all to shame This headache is a demon And a cluster is it's name To see a full blown cluster Is a very scary sight It can happen in a moments time No matter day or night It is the worst pain known to man It will put us on our knees We pray someone will knock us out And give us some relief We call the start a shadow A sensation in the brain That says "the demons coming back" To taunt us once again The brain turns into cornmeal mush The eyeball starts exploding We moan and cry and rock our heads There’s no doubt how bad we're hurting We call each other clusterheads Our tiny little crew Of others who are just like us Who know what we go through So please don't say you understand Just what we're going through Unless you are a clusterhead You haven't got a clue DD

I wish that I did know something that caused it Bosco! The only thing that might have helped is that I got pregnant. I miscarried at 2+ months and the hormone change could have affected my CH, but I was too upset to notice, you know? They were gone after that event. Then that brings up 'Well, why did they return?' Also, don't know. Can't blame my move north, as I had been living here for 6-8 months when they showed up. But looking back, I can recall two short cycles before the move. I had gotten a concussion a short time before the first cycle. My first 20 years, I was a low level chronic, undiagnosed. I was on Elavil and one other med whose name escapes me at the moment. Inderal I think. So, I had no idea that I had CH or that they came in two varieties. That cycle was short, but hell none the less and the second one sent me diving into 'what is this????' Then I took the the printout of CH to my doctor. Carbemazepine was prescribed at that time. He had been on the Migraine bench till then. I had tried trex once and thrown it out due heartbeat issues bugging me. Additionally both little cycles I had then were thought to be 'other' things and were treated with Pred of all things and that killed them. Funny how that worked out. As it was, they were both about 2 weeks duration. Girl, you are making me think too darn hard for this early!!!