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I hope she dosen't either but if fate is not kind, atleast she has you as a guide. It's a terrible thing to have to worry about @xBoss so for that I sympathize and send prayers. I've never met anyone in person that had CH let alone anyone that knew what it was so i would imagine it would be comforting to have someone in the know..

I recommend Mindfulness-Based Stress Reduction Therapy, MBSR, Deep Breathing, even some of the other cognitive based therapeutic treatments. They work so damn well that you can watch your pulse drop by as much as 50 BPM. Mine drops as low as a well-trained athlete, down into the 40s. Medications are useful adjuncts. Beta Blockers, and H1 Antihistamines are great. Sex works as well, to be direct about it: nothing like free-love man. Why be married when you can different women every night? I will put that out there. Anyways, walking in nature, transcendentalism type stuff helps. Surfing on uppers is a fucking rush. It is true, every big wave surfer I knew, including myself, was hopped up. What a rush man. Dropping in on a 15-foot crank, Nor Easter, snowing out (true shit), what a rush. Yes, you piss in your 5/4 suit to get it warm: that is true. I hear fishing can relax you. Writing, fire a doobie, just something to take your mind off of everything. Maybe I read it wrong, but it sounds like you need to drift away sometimes. Not high-anxiety, but as if you need an escape. We all do. My escape is reading. When not knocked out from (whatever is going on with my body) and when I can focus, I can get buried in books, sometimes for days on end without sleeping. Last, music is the easiest medium for escape. I could go on for hours about that subject. I spend hours each day listening to Waylon, Keith, Mel Street, Vern Gosdin, and Clinton Gregory. It starts there, goes to Neotraditional and Honkytonk, to Southern Rock, and God knows where it ends up. I hope that this helps. My entire point is I think you have a good chance of her being okay. It ain't common, mostly male, and I think some funny business is involved to get it. Don't want to explain.

Bacchelli et al. The Journal of Headache and Pain (2016) 17:114 DOI 10.1186/s10194-016-0705-y States, “ Cluster Headache (CH) is a severe primary headache, with a poorly understood pathophysiology. Complex genetic factors are likely to play a role in CH etiology; however, no confirmed gene associations have been identified. The aim of this study is to identify genetic variants influencing risk to CH and to explore the potential pathogenic mechanisms.” The biology of CH is poorly understood. Current hypotheses are focused on vasomotor changes, inflammation, immune changes, autonomic system imbalance, and hypothalamic dysfunction [3]. Twin and family studies have indicated the importance of genetic factors in CH [1]. Genetic predisposition seems to be complex, with the environment and genetic factors interacting together [1]. While I understand your concern, I'd be most concerned with environmental factors changing gene expression. That, and while I do realize females do have CH, it is predominantly male. There are many situations, factors, and circumstances that are out of control. Focus on what few things you can control. I’m not trying to be the asshole, but I used to wig out about what I could not control. That lead to serious anxiety, and I bet the tipping point of my heart attack at 33. Yes, all the hard drugs, Imitrex, and DHE, did not help; however, all that stressing caused a massive heart attack in my sleep. Fearing nothing, not even death, makes you powerful: dangerous. I walk the ghettos of the inner city where I live, fearing nothing. I have walked in North Philly/Kensington more than once, Pitt/Braddock and McKeesport, even SE DC over the Anacostia Bridge. Live fearless, ten feet tall and bulletproof. Don’t take no shit from your mind or nobody.

I have seen numerous journals--over 75 (not hyperbolic)--pertinent to hypothalamic activity, circadian rhythm, and CH. And, that is limited to interest: I am convinced as well of circadian rhythm issues being at fault. Someone on here said numerous times that we had a wonky hypothalamus. I reckon the amygdala is as important as the occipital front cortex, both of which are instrumental in fomenting trauma, and other bullshit. The issue is that I do not specialize in sleep disorders as a neurologist and that shit gets well above my head. To be direct I was a Presidential Scholar, among other many more of that prestigious level. I mean, I get the basics of it, but without the sciences, medical training-oh boy. Luckily my very extended network of friends includes neurosurgeons, PAs, and PMHNPs, whom I can phone for advice. That is also how I get in with the best doctors (smiling). Concerning Trauma, certainly: causation is no correlation, however. And not everyone has generalized trauma, PTSD, Complex PTSD, and cluster headache-to my knowledge. Pubmed is great if you have access to the journals that are not green (open) access; however, most are just abstracts. I have a lot of databases that I learned for research in junior college and in college. Theses were regular, research was crammed into us and was mandatory. Aside from linguistic analysis, and rhetorical analysis, which was also mandatory, I remember the research. Let me see what I can find on the topic? I can't relate to seasons: it is the mid-Atlantic we have two Bi-Polar seasons, Summer and Winter. It will go from 30 to 105 and have 95 percent humidity in a week (stay that way). There used to be seasonal changes, not anymore. We still have snow on the ground for 3 to 5 weeks a year, nowhere near the snow (3-foot blizzards) like in the past. I still, get nailed. My buddy in Texas, oh yeah. Those changes destroy him. Now, barometric pressure-oh fuck no. I am a fucking weather barometer. The light never bothered me, but my headaches, even why I can be an asshole, could be related to Huntington's, Parkinson’s, Stiff Person, or Dystonia. I'm seeing a neurophysiologist and movement disorder neurologist, at Sinia arguably the best neurology department in our state, and incontrovertibly the best neurosurgery in the state. Honestly, the light I have not heard: exemption, lack of light which would foment Seasonal Affective Disorder depression if not, which is a lack of the hormone, Vitamin D. I concur with the cortisol, have a noncardiac C-Reactive when shit gets balls deep, and it will be through the roof (CRP elevated). I forget what red meat contains, but that will exponentially elevate your homocysteine levels, and thus, elevating cortisol. I think cytokines are involved as well. Melatonin is something else that I have seen to the point of flocking the horse-it ain't personal. I don't understand how to address the issue, as regulating my sleep ain't happening. I doubt you know Waylon As The Billy World Turns, but yeah “I've been up for two damn days,” used to be life. Try 6 days, not manic. After years of getting hard drugs legally, my sleep cycle is destroyed: my D.O. quipped do you think a sleep study will discern anything? He has a point. Back to trauma, those repressed memories do have me question the psychosomatic factor. I mean, I am batshit crazy, but there used to be some research on the topic. That research is expurgated. I question how those repressed memories lead to psychological stress, which leads to headaches. There is numerous documentation, research, and trials that associate pain with trauma. If trauma were the key association it would appear as if Eye Movement Desensitization And Reprocessing Therapy (EMDR) Therapy could treat cluster headaches, I tried that theory: at $250 a session out of pocket it did not work. You can get a similar effect by insurance-covered psychotherapy, it just takes 7 years and gets inside your head. On an interesting note, EMDR therapy does work miracles in many with just classic migraine. Unless you are Rockefeller, that is an unrealistic treatment. I think my friend had the VA cover it, don't ask me how. Private insurance and CMS will tell you to piss off. I think I am supposed to compliment you or something (only two years in on psychotherapy and interpersonal communication): I don't know how to talk to most people, used to years ago. I think that you have a valid theory to expound upon and should start to conduct experiments and research, and not get the conflicts of interest involved (pharmaceutical company). While cluster headaches have textbook diagnostic criteria and standards (with some deviation)-causation, triggers, standards for onset, food allergies, I won't run the gamut are subjective. It seems impossible to pinpoint one source for everyone. Contrariwise, those damn Hypothalamus, Amygdala, and Frontal Cortex appear instrumental: in explaining why those sodium channels work so well (Lamictal, Topomax, Lithium). And, why the opioid agonist Naltrexone is instrumental as well. Oddly: Topomax, Lamictal, and Naltrexone at 100mg reduce Cluster Headaches by 95 percent. I was intractable in Migraine and Cluster Headaches. Adding Magnesium Glycinate (the equivalent of 800mg daily intake) and the hormone Vitamin D is paramount. Narc Laws are to the point of absurdity, but the schedule IV, it should not be tramadol, is also beneficial. A 50mg per day goes a long way. Our state requires a bullshit pain clinic, a monthly visit, a contract, a 6-month piss test, and thanks to junkies I can't get certain analgesics unless I have cancer. Anyways, it's just become ridiculous, and doctors limit quantities as well. I'm sorry, control your habit or get help, don't ruin it for those of us who need it.

I don’t remember who it was that told me about drinking energy drinks during my last cycle back in October but I want to say “THANK YOU”! I was skeptical of drinking a monster energy drink or red bull during an attack but after trying it and then getting on the O2 it was a game changer for me. 5-10 minutes and headache aborted. For anyone that hasn’t tried this I’d suggest giving it a try to see if it works for you. you may just be as surprised as I was

I am convinced without the dark humor gallows humor, laughing at the beast in any way, we lose one of our greatest tools to go on. Now as to the Finest of British food and drink, there was a store here, I cannot recall the name but it was a decent sized store chain that specialized in British food and other snacks from the UK my Grandma loved. Have to say, since she was a warbride from England and my mom was born there, coming over on a ship before the war was over, I picked up a taste for much of it. Also, cats all the way, hence my name, my Devon is one of the only things that can reach me in the middle of a 10, can bring a smile despite the pain. So, hold on to any and everything that brings light and humor into your world. Sorry for going a bit deep. Also, maybe if I switched my avi, I might get a better score?

You can be a hot dog!

But I'm a dog lover . Can I be a cool dog pleeease

Just my usual note that, contrary to what one might think, a small energy shot such as 5-Hour Energy has twice as much caffeine as a standard Red Bull or Monster -- and is a lot easier to get down fast. Also, as has been noted, coffee does the job for many, and some find benefit from taking a taurine pill along with the coffee. Finally, any caffeinated drink seems to work better if you have been off of caffeine for a while (e.g., before your cycle starts).

I'm lucky I get the same effect from strong black coffee as I do from drinking energy drink (red buĺl) b4 I hit o2 . So I use an energy drink for night time attacks and black coffee for daytime attacks .your rite I can abort an attack within 5 to 10 mins after coffee or energy drink ,but it takes 25 to 35 min without

Update: This has continued to be effective, but he was still having occasional less severe attacks, especially when the weather changed which has been happening a lot recently where we live. Added Quercetin twice daily to the schedule about 10 days ago, seems to have helped even more. Only one attack since then. He’s even been able to have a couple beers without a headache which has previously been unheard of.

For all you Amazon shoppers out there...and I know you are out there.... They have a program where you can designate s small percentage of your purchase to be sent to your favorite non-profit organization. Clusterbusters is registered and would appreciate it if you would take a percentage of Amazon's millions billions and have them donate to our cause. A direct link to start shopping and donating: http://smile.amazon.com/ch/43-2081926 Thanks very much, Bob Wold

I pray that my daughter will not have them. She is two years away from when mine started at age 27