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xxx

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Everything posted by xxx

  1. Hey Sharon, Sorry I missed this yesterday. I generally buy most of my supplements at Costco per the photo below. I've recently switched from Nature's Bounty 5,000 IU vitamin D3 to Bio-Tech 50,000 IU water soluble vitamin D3 capsules as this is the least expensive form of vitamin D3 at 23 cents/capsule and it gets into the bloodstream faster than the oil based softgels. As one 50,000 IU Bio-Tech capsule of vitamin D3 is good for 5 days (An average of 10,000 IU/day) the cost per day is less than 5 cents where the Nature's bounty runs around 12 cents/day. The 50,000 IU vitamin D
  2. Hey Suzz, Data from the online survey of 257 CHers taking this regimen indicate this regimen is effective for 80% of the CHers who start it with >75% reduction in the frequency of their CH in the first 30 days. 50% of the CHers who start this regimen experience a complete cessation of CH symptom in the first 30 days. I've worked extensively with the 20% who don't respond in the first 30 days. Better than half of them started responding once they started taking Benadryl (Diphenhydramine HCL) at 25 mg every four hours throughout the day and increased their vitamin D3 dose up to 15,000
  3. Hey CoryAnn, Has your guy started back up on the anti-inflammatory regimen to control his CH? Vitamin D3 and the rest of this regimen and in particular the Omega-3 fish oil, magnesium and vitamin K2 help normalize blood clotting factors. You can download the latest version of the anti-inflammatory regimen at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care, V/R, Batch
  4. Hey MG, My all time favorite for cluster headaches comes from a group called Edgewater, Album, South of Sideways, and the 2003 cut called "Eyes Wide Shut." Listen to it and recall the last Kip-10... Take care and hugs, V/R, Batch
  5. xxx

    Gabapentin

    Hey MG, Gabapentin (Neuronitn) comes with side effects ranging from a 3 martini high to downright nasty psychotic moods depending on the dose. I tried it for two weeks then burned the bottle... It wasn't worth it. Migraineurs respond favorably to the anti-inflammatory regimen, but at higher vitamin D3 doses and higher 25(OH)D serum concentrations (15,000 to 35,000 IU/day vitamin D3 and a 25(OH)D serum concentration between 100 ng/mL and 140 ng/mL). You'll need to double the magnesium dose so split it 400 mg AM and 400 mg PM to avoid osmotic diarrhea. Taking a good vitamin B complex a
  6. The anti-inflammatory regimen CH preventative treatment protocol costs roughly 50 cents a day... Over 800 CHers have started this regimen since December of 2010. 80% of them are loving life again with a significant reduction in CH frequency (>75%) and 50% experience a complete cessation of CH symptoms all in the first 30 days. You can download a copy of this treatment protocol with a complete list of supplements and the "how to" at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep us posted
  7. Clomephine Citrate has some nasty side effects. One of the most effective and safest methods of preventing CH involves taking the anti-inflammatory regimen with 10,000 IU/day vitamin D3 and the vitamin D3 cofactors. You can download a copy of this regimen and treatment protocol from the following VitaminDWiki link http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep us posted. V/R, Batch
  8. With over 22 years of personal experience with CH and nearly 8 years working with the anti-inflammatory regimen and over 800 CHers taking it, I'm of the opinion that cluster headache is enabled by a vitamin D3 deficiency and that taking at least 10,000 IU/day vitamin D3 plus the cofactors is a very effective CH preventative. 80% of CHers who start the anti-inflammatory regimen experience >75% reduction in CH frequency in the first 30 days, some as soon as 12 hours. 50% of the CHers who start this regimen experience a complete cessation of CH symptoms in the first 30 days. The 20% wh
  9. Hey Pwrnapper, I don't think Aimovig (erenumab) has been approved by the FDA for cluster headache unless you're a participant in one of the studies. Have you tried the vitamin D3 regimen at the following link? http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Near as I can figure, over 800 CHers have started this regimen and the efficacy is not that shabby. 80% of CHers who start this regimen experience ≥70% reduction in the frequency of their CH. 50% of the CHers who start this regimen experience a complete cessation of CH symptoms... all in the first
  10. xxx

    New guy

    Hmmm... Lots of good questions so I'll start with the vitamin D3 cofactors... In simple terms, more CHers respond to this regimen if they take all the cofactors than CHers who take only vitamin D3. That some CHers experience a cessation of CH symptoms taking only vitamin D3 likely indicates they're likely eating a diet very rich in the needed vitamin D3 cofactors. To give you an idea of how much dietary sources of magnesium you would need to eat a day in order to satisfy the 400 mg/day requirement for magnesium, you would need to eat: 3/4 pound of dark chocolate or 13 ears of corn or
  11. The following may help address availability and cost. Approval for episodic cluster headache should be only a few months away. http://thehill.com/policy/healthcare/388250-fda-approves-drug-to-combat-migraines The Food and Drug Administration (FDA) approved a new medication on Thursday designed to prevent migraines. The drug, called Aimovig, produced by pharmaceutical giants Amgen and Novartis, is intended to be administered through a monthly injection, and would cost patients $6,900 annually, Amgen said. The drug blocks a protein fragment called CGRP, which is believed to
  12. xxx

    New guy

    Hey Ammo, Good question. Turmeric (Curcumin) is a natural anti-inflammatory and anti-oxydent. It adds additional pressure to down-regulate/suppress the expression of CGRP and that helps prevent CH. When combined with CoQ10, vitamin C and the rest of the anti-inflammatory regimen, it does wonders for the cardiovascular system. Take care and please keep us posted. V/R, Batch
  13. xxx

    New guy

    Hey Ammo, Excellent! As you've just finished the loading schedule, your serum 25(OH)D is still climbing. Stay at 10,000 or 15,000 IU/day vitamin D3 as your maintenance dose for at least two weeks to let your 25(OH)D stabilize then see your PCP for lab tests of your serum 25(OH)D, calcium and PTH (parathyroid hormone). As long as you're CH pain free or mostly so, your serum calcium is within range and your PTH is in the lower half to third of its normal reference range, you're good to go at the present maintenance dose... and your actual 25(OH)D doesn't really matter... even if it's o
  14. xxx

    New guy

    Hey Ammo, Be sure to take all the cofactors... They're essential. For example if you skip the magnesium, you'll have a CH pain free response as long as there's some magnesium left in your system. Without 400 mg/day magnesium Vitamin D3 will deplete it from your system and the CH beast will start jumping real ugly... Take care and please keep us posted. V/R, Batch
  15. Hey Bilal, Thanks for the update. Glad to hear you're CH pain free for the most part. Be sure to see your PCP for a lab test of your serum 25(OH)D. This is the essential lab data we need reported in the online survey that makes neurologists look at this regimen as a serious safe and effective preventative and not just a fairy tale. Take care and please keep us posted. V/R, Batch
  16. Hey Bilal, What was the frequency of your CH in hits/day or hits/week before starting the anti-inflammatory regimen? If you haven't already done so, please take the online survey of CHers taking this regimen so we can capture your response data. To start this survey, click on the following link: http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6 Take care and thanks again for the feedback. V/R, Batch
  17. xxx

    New guy

    Hey Ammo, Good Onya... If there's no joy after 3 to 4 days at the new vitamin D3 loading dose, see your local chemist/pharmacist for a first-generation antihistamine and take as directed for a week to 10 days. A sub-clinical (no obvious or outward symptoms) allergic reaction will release histamine that can cause all kind of problems for CHers. Take care, V/R, Batch
  18. xxx

    New guy

    Hey Ammo, Stick with the vitamin D3 regimen and if you haven't already done so, shift the loading schedule over to 50,000 IU/day for another 10 days. This works a bit faster than the 2-Week loading schedule and a lot faster than the 4-Week loading schedule in elevating your 25(OH)D serum concentration to 80 ng/mL and a favorable or CH pain free response. Be sure to drink 2.5 liters of water a day. Regarding the tooth, 6 to 10 grams (6,000 to 10,000 mg) per day of vitamin C is not too much for any oral infection/tooth cavity. I keep a small bowl of vitamin C tablets on the kitchen
  19. Hey Dylan, Great post and positive message. The topic of suicidal thoughts is of particular interest. As a CHer since 1994 and chronic since 2005, thoughts of "ending it" were present at times after turning chronic, particularly after starting another new preventative that didn't work. It wasn't until years later after discovering the wonders of vitamin D3 in preventing my CH that I started connecting the dots between suicides among CHers and the drugs they were prescribed to prevent their CH. The big dot to connect came from far left field, It centers on the School Shooters. Most
  20. Good question. You'll need a prescription for medical oxygen as an abortive for cluster headache here in the US. If you already have an Rx for home oxygen from a physician in Italy and an oxygen provider there, see if they have an oxygen travel program or affiliation with an oxygen provider in the US and in the states you might move to. This will solve the immediate problem of obtaining home oxygen on arrival. One of these programs is called OxyTravel at the following link. https://www.oxygenworldwide.com/help/wiki/521-oxytravel.html Work with your primary care physician (PCP) to
  21. I wouldn't hold my breath... Neurostimulation, i.e., GON, DB, SPG and VN Stimulation all suffer from the same problem. They only work ~ 40 % to 70 % of the time while the CHer is awake and able to actuate the remote controller before the pain gets too high. No joy while sleeping... In short, they only address the symptoms and not the contributing factors...
  22. Hey Tom, I'd really suggest you see one of the Coimbra Protocol trained physicians at the following link: https://www.google.com/maps/d/viewer?mid=1fATZJUEhOsYYJdBY41h48FBkLaQ&hl=en_US&ll=14.974129117547387%2C-42.780705499999954&z=2 In the mean time, starting the anti-inflammatory regimen is a great choice no matter the medical condition. You can download a copy at the following VitaminDWiki link: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Take care and please keep us posted. V/R, Batch
  23. Hey Bilal, Thanks for the feedback. It's always great to hear another CHer has responded to the anti-inflammatory regimen. Be sure to see your PCP after 30 days on this regimen to obtain lab tests of your serum 25(OH)D, calcium and PTH. As long as you are CH pain free, your serum calcium remains within its normal reference range and your PTH is in the lower third of its normal reference range, your vitamin D3 maintenance dose is good to go even if your serum 25(OH)D is over 100 ng/mL. Any time after that, if you've time, please take the online survey of CHers taking this regimen t
  24. xxx

    I'm in!

    Hey DM and AJS, I've looked over the study protocol at clinicaltrials.gov for the Will Erwin Headache Research Center - Cluster Headache Study (WEC1). This study covers the waterfront for Cluster Headache types and other TACs, or Trigeminal Neuralgias including but not limited to SUNCT, SUNA and hemicrania continua (HC) with the goal of characterizing the disease in detail. It has an excellent data collection protocol for genetic and molecular biomarkers and imagery as well as objective clinical assessment measures including HIT-6 and GAD-7 scores. As this is essentially an invest
  25. Hey Rich, What you're experiencing is called cutaneous allodynia... pain resulting from the slightest touch to the face or scalp that shouldn't cause pain. It's a common part of the cluster headache syndrome... See your PCP for a lab test of your serum 25(OH)D. The odds are high you're vitamin D3 deficient. Start the anti-inflammatory regimen with 10,000 IU/day vitamin D3 and the odds are equally high it will prevent your CH and the cutaneous allodynia... The link to down load a copy of this treatment protocol follows: http://www.vitamindwiki.com/tiki-download_wiki_attachmen
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