Bejeeber

You go Birdman! Successful busting to you. 8-)

Now those are the kind of critical details, ones that if I see them I'm prone to forgetting them, that make CHf's contributions here so vital and helpful.

Oh man that sounds like horror alright. :'( I have my doubts as to whether Vitamin D could somehow cause an extreme reversion to CH attacks like that, but there has been a CH'er or 2 who has reported a worsening of their CH coinciding with going on the Vit D. So far it looks more like coincidence to me, a major return of the attacks that would've happened anyway. I wouldn't blame you for discontinuing the D for now just to be sure though! So sorry about this unexpected return of the beast. :'( I'll be interested in seeing what the others such as Chfather, Spiny, CH-hell, Ricardo et al think about this, and speaking of Ricardo, I wonder if you could look into his earlier intranasal ketamine idea?

I think CHf really may be onto something there.

I think that is one fine *supporters maniifesto* Elly. 8-) Folks like you and CHf who get it and fully empathize with CH'ers are really like some kind of saints to me. Official sainthood nominations coming up, now where are those pesky application forms? ;D I figure when your partner has attained some extended remission, there will be an additional great side benefit to the busting treatments, which will be the likely alleviation of any PTSD he might otherwise have, allowing him to resume normal life as if the CH never happened. Sorry that it won't help with any ptsd YOU may have incurred from the experience though! He may have to share his truffles with you.

That is ENCOURAGING! [smiley=thumbup.gif]

Good advice there from CHf on ordering the non-prescription components of your beefed up for CH O2 system while awaiting the arrival of the actual O2 cylinders.

What Ricardo said, because after reading this... It appears as if Derek very well may be one of those rare unfortunates for whom O2 just doesn't work, unthinkable as that is for the vast majority of us for whom it does work. :'( I think if I was Derek I'd be investigating the Ketamine as Ricardo mentioned.

UGH. Been there, done that with high cycle hits. :-? I suppose you've tried the D3 to see if it helps the O2 work better? Since the attacks have been starting in the back of the head I suspect 'ol DanBerry McHipShot may be thinking a facet injection could possibly bring some CH relief since it did for him.....?

Glad to see the good advice you're getting here B-man, and I believe this is one of the particularly pertinent nuggets: Here's to a good strong beast walloping tonight.

Birthday and birthnight greetin's to the inimitable Dr. R! [smiley=birthdays.gif] [smiley=beer.gif]

Well I packed some SPUT powder caps, but didn't end up needing 'em on my travels. A 1.7g Vit M dose the night before leaving on the trip landed a brutally vicious uppercut on the beast. It knocked him back very nicely, and when activity returned after 5 days, it stayed relatively minor, with some possible help from my efforts to keep it tamped down with RC and one energy drink. My luck holds for the moment.Â

Thanks leslie. I shoulda mentioned that 2g of this same powder gets me to the state of some mild visual hallucinations with eyes open, and lots of more prominent hallucinations with eyes closed.

Thanks fellers. I do have a super sensitive/accurate weighing scale, so now I'm also going to ask for opinions on what fraction of a gram of powder might make for a good SPUT? .2g?

I don't have a Small Piece to put Under the Tongue to abort any post bust hits while traveling, but I do have a little bit of powder. Heck I guess powder will work even faster than a solid piece.... So it'll be more like a small pinch under the tongue I guess. Anyone done this? Any ideas about how to best implement this version of SPUT? Empty a partially filled gel cap under the tongue while sitting in the airplane seat?

Wow Domino you are rockin' the house. 8-) Love seeing these kind of stories, and also this bit about how you resolved the situation with your (sadly typical) neuro who, since you were in a severe crisis situation was willing to squeeze you in after NINE months.

Sorry to bring this up, but I'm afraid that can interfere with busting, and may account for your lack of results. :'( Is the 25 mg steroids helping you at all (it doesn't seem like it is)? Would be nice if you could continue to taper off of it so the RC could work to full effect. Yes, everything I've read....well everything I remember...says it's OK to do so.

Here's a little story about a man named Jed Giussepi: Giussepi just retired from 30 years as a patrol police officer. He would bring his (small) E sized O2 cylinder and demand valve with him in his police car every day when in cycle, and had tremendous success being able to pull off the road and abort attacks within 5-10 minutes. Moral of the story: The demand valve system can not only provide a more effective O2 treatment but can also help preserve the precious O2 supply with the smaller portable O2 cylinders when on the road.

I'll go with slap back / good sign. At least what you're describing is consistent with what others have found to be slap/good. 8-) Wow sorry you had to experience a Kip 10, but glad you were able to knock it down with the O2.Â

I'm no expert on that but I've seen another expert type here say that sleeping doesn't make a difference. Does that count? ;D I am intrigued by the thought of being able to sleep right through a Vit M bust, that would certainly make the process more convenient during the work week! Best o' luck with tonight's knock out punch. 8-) [smiley=thumbup.gif] (knockout of the beast that is)

It may feel unwieldy to figure out the first time, but it then fortunately becomes very easy. In fact, although it took some nerve to stick a needle in myself the first time, I would now continue to inject this way instead of using the auto injector even if I was taking full doses! Injecting under the skin in the abdomen, to the side of the navel, is practically painless, and it's an easy area to access and manage when self injecting this way.Â

Agreed with all of Jerry and CH's assertions. Wondering how many mg his triptan injection doses are? Last time I used them here in the US they were 6 mg, which is at least 3 mg more than is necessary (seriously this is true even for hard core high cycle CH'ers). If he has to resort to aborting with the triptan while acquiring a demand valve system, here's the tip that outlines how to inject lower doses, which I hope for one thing would lessen his side effects: http://www.clusterheadaches.com/imitrex.html

Hi Siouz76 - sorry I forget how much of the high flow non-rebreather approach you've adopted... Funny thing with me is that regular old low flow rebreather O2 worked for me in the first years of my CH. But of course that didn't last. I gave up on it, then eventually a couple decades later I found out about the high flow 100% O2 thingy. Even then, when I get to high CH cycle I have to CRANK the 'ol regulator up to 45 LPM(!) or so, then go at it with hyperventilation and a 32 gallon reservoir bag! If there's a next time I'll be getting a demand valve O2 system (an absolute no brainer IMO when it becomes difficult with a basic regulator to get the O2 to work). A side benefit with the demand valve is that you will conserve your O2 in a major way as it only release$ the O2 on inhale. I recall Batch, the originator of the D3 CH regimen, saying that the D3 regimen optimizes arterial PH, enabling O2 to work more effectively. Plus many CH'ers find that an energy drink or shot at onset helps with the O2 abort. So to sum up, my ideas for improvement in your O2 results are: 1) Demand Valve system with hyperventilation 2) D3 regimen 3) energy drink/shot at onset

I bet if you bust with mushrooms you'll find them to be extremely effective for treating the PTSD, as others including myself have. 8-) If it was me weaning off meds I suppose I'd be trying to research the most reliable medical info about how it's ordinarily done for each drug, and what withdrawal or other symptoms to look out for. In fact I have weaned off and even ON (not recommending the ON part!) CH meds without doctor supervision. I think the only 2 I've been on that you mentioned are lithium and verapamil, although I was on such heavy drug cocktails at one time I don't remember anymore all of the drugs involved. Plus as Jeff said the high flow 100% O2 (often with a caffeine and taurine loaded energy drink for an extra push) has been a Godsend for many CH'ers for aborting CH attacks while detoxing from meds and preparing to bust. I sure hope the O2 will do the same for you, and then down the line we'll be reading reports of your busting success!Â

Pos1964, That sounds like some good consensus type info that Spiny dished out there. And about the Trader's Melatonin, I haven't been on any melatonin as I've been in the highly enviable (and luck luck lucky - thank you busting!) position of not having any full on CH attacks to deal with since we last discussed the fact that Trader's has what is likely some good stuff. I might just put it on my shopping list for this saturday's Trader's run to try in lower doses as a general sleeping aid now that you've reminded me though (thank you), not that my results for sleep will give us much of any data on how it works for CH attacks. And it'll be good to have on hand just in case higher dose usage becomes called for!Â