Bejeeber

Hi Sweet, I do think it would be worthwhile - you could very well abort even the bad ones with a high enough LPM. Personally I tend to think of 15 LPM as a minimum for a starter set up (this may require getting a higher flow regulator than a given O2 supplies company will have on hand). Then again since you've been having some success with the machine, you may just find 12 LPM [of 100% O2 from a tank] to be effective..... You're on the right board for discussion of BOL-LSD trials, but I'm afraid I'm not up on the latest there.

It's probably plenty clear enough that you intended for that to read "1.5 units" but hey I'm not above persnickety nit picking over decimal places. I know another chronic feller who has consistently aborted hits for years with the 1.5 mg dose, four aborts per shot, just like you, ClusterChuck.

Sorry, I don't have a clue about that thumbs no workee phenomenon preceding an attack, but if you have a decent neurologist, it sounds to me like one the first things to bring up at the next visit.

NO, I can not.Â

That one is brilliant. I would insert "pain meds" or "pain killers" in there because I think those clearly telegraph the message. Maybe even insert the word mere in there also: Taking mere pain killers for clusters is like trying to swat a pterodactyl from the sky with a flyswatter! And the more I think about the painting CHf posted the image of, the more I think it, combined with a super punchy slogan below it, could be the ultimate branding.

The branding thingy is a good idear! And I like CHf's idea. This branding example is most excellent IMO: But wuh-ohhhhh, what have you unleashed now Cindy???!!! Cluster Headaches; Whose brilliant idea was it to call the most severely painful condition known to mankind a HEADACHE???!! Cluster Headaches; I'm not particularly fond of them at all! Cluster Headaches; NOT really any better than a poke in the eye with sharp stick! Cluster Headaches; Take that silly shotgun out of your mouth, "busting" may get rid of these with a lot less icky mess! Cluster Headaches; Sufferers are finding one of nature's mind blowing substances can keep them from wanting to blow their entire HEADS clean off! Cluster Headaches; Take 1.5g of dried mushrooms and call me in the morning

Austral, while I too of course completely understand and relate to the desire to stop at nothing, I appreciate your cautionary note and your advice to do some research and some risk weighing when considering this and all other CH treatments.

The water guzzling thing always seemed a bit sketchy and unsustainable to me, was never inspired enough to try it.

I had my remaining 2 wisdom teeth removed to help with my CH. It didn't work at all of course, and the world is littered with extracted teeth from hordes of CH'ers who hoped to find relief through dentistry, but failed. This is about the most classic wild goose chase I can think of related to CH. I even got hit when driving home from my teeth extraction appointment. I remember well those dry Santa Ana winds in Californy - good for air quality in the valleys, bad along the coast.

Whaaa??!! That is thoroughly AWESOME. Finally your way past due karma for helping so many CH'ers on Nat Geo has kicked in. [smiley=thumbup.gif] These new botox jabbing locations you've innovated are becoming interestinger and interestinger. Maybe your neuro oughta do a medical journal write up or something. Or maybe Dallas Denny and some other Texans 'round there oughta try the same treatment from him. Aw DAMMIT I just remembered Denny moved and is Oklahoma Denny now. "Oklahoma Denny" doesn't have the same kind of ring to it.

What CHf said! it is common indeed for the trigeminal nerve, which is the one affected with CH, to also light up those upper teeth at times. Countless headbangers - including myself - have had teeth extractions etc. done, believing a dental issue could be causing the CH symptoms, only to eventually realize it's the other way around.

I love the absolute hell outa that shirt. 8-) [smiley=vrolijk_1.gif] I had to crane my neck all sideways to get the right perspective on the photo, but it was a very small price to pay.Â

The freshness/potency guarantee that psychoactiveherbs makes for HBWR there is definitely good to see. I'm looking forward to seeing them officially do the same for RC.

Yes the Jeebs-O-meter is pegged indeed. [smiley=thumbup.gif] 8-) [smiley=thumbup.gif]

From what I understand, your doctor is right in the sense that when the shots are administered in the usual, conventional location(s), they are known to be ineffective for CH, but reputedly can work for migraine.

You've.....pioneered a new treatment....and it's seriously actually working. That's not exactly something that happens every day. Dam snazzy! [smiley=thumbup.gif] [smiley=thumbup.gif] Big big Kudos to your doc for recognizing the critical nature of your CH, getting you in there immediately, and being willing to do what it takes.

I think I too would be looking to the experts in natural treatments related to cortisol production. We've seen how the pharmaceutical based medical establishment can fail us in the CH prevention department, while the natural busting substances can aid us so powerfully. I would hope there may be some similar results to be found in nature vs meds for adrenal/cortisol recovery. So sorry to hear how the meds approach has completely failed Mika. :'(

To me the study CHf links to involving the 5 US test subjects is quite impressive, ESPECIALLY since they were intractable cases, mostly chronic, that nothing else was working for, and "all but one patient (S1) had experienced symptoms for more than 10 years". I think that is a big deal since these sound like exactly the types least likely to succeed with our currently available busting substances, yet they had remarkable results with BOL-148 (less remarkable for the one guy who chose to keep boozing it unabated). My thinking is YES, it would be reasonable to hope for top notch results. I hope I'm not just being overly optimistic. :-? If you could find a BOL-148 prescribing doc, you'd be blazing a trail and reporting back invaluable info regarding what could be expected from such a venture.

That is incredibly sick about Chris Hanna's facebook site. I went off in an obscure topic here about spineless, cowering OUCH UK's refusal to support a UK study on BOL-148 (by the UK's most prominent researcher in the field) because "it's illegal" (which it probably isn't). I thought that was about the most despicably gutless and shameful display I've witnessed in CH-ville. In the starkest of contrast, there's the Texan individual who risked it all on not just national, but international TV to discuss and demonstrate what works (mushrooms) for so many of us, despite the fact that he could be promptly arrested and incarcerated for doing so. That daring act and powerful Nat Geo segment continues to lead untold but definitely large numbers of CH'ers around the globe to some potent relief they wouldn't have known of otherwise. Now here's the Hanna facebook site luring in CH'ers in crisis, then going all out to make sure they don't get accurate, potentially life saving answers to their questions about busting. Is it delusion, extreme sadism, pitiful cowardice, pathetic willful ignorance, or all of the above that's behind that atrocity of a facebook site? The world's gone CUCKOOÂ . Is this the same pariah facebook site that has actually banned our Bob Wold and Kaboom?

I remember ya Whooligun! Thank gawsh about the AVM shrinkage! [smiley=thumbup.gif] But wait a minute...that sux'n bloze about the CH. I bet you'll knock the CH down and quite possibly even knock it out with the fungi. Pullin' for ya. Several headbangers around here who benefit from fungi have been keeping a tranquilizer such as a valium or xanax on hand just in case of any trip induced anxieties.

Yep, youbetcha, so I wouldn't be surprised if the doc's diagnosis there is right on. Heck if anything could bring on ye olde panic attack, I would think it would be the CH ordeal you were experiencing! Well I and some others who've had 'em for 30+ years have noticed increased severity, plus longer lasting attacks and cycles, but some of us have been lucky enough to have also benefitted from longer remissions. This can become a moot point when the busting is preventing entire cycles (plus even those who haven't yet gone into full remission via their busting efforts tend to report lessened severity). 8-) Sounds like you just wrote yerself a prescription for an O2 rig at home, and toot sweet! 8-) (whether it be thru a doctor, or welding O2 without prescription). Regarding Argentine dosage: Let's let some more knowledgeable headbanger(s) around here answer that one definitively. I think, but am not positive, I've heard it said that the strain, whether it be Agentine or whatever doesn't make that much difference, in which case 1.5g to 2g powder dry per busting session could be your ticket. Someone in high cycle as you are now often needs to do multiple busts 5 days apart to completely extinguish our pesky McBeast O'Buddy.

Yeah thanks MG - I've saved that info and chart to my cluster files where I go first if I need to try something different.Â

It doesn't sound like CH to me either, but regardless, there's something valuable to be learned from veteran CH'ers here, and that is don't just see "a neurologist", as in a garden variety neurologist. Definitely hold out for a headache specialist type neurologist, as the garden variety sort typically have woefully inadequate training regarding headache disorders, and misdiagnosis sux.

I like what CHf has said - but hey I always like what CHF has said. 8-) Conversely I HATE hearing about your current O2 situation Vickie so I'll pipe in too. I'm afraid I have historically been the same way, 25 LPM isn't enough. I also learned that this need for flows above 25 LPM is fairly common. If I had my last cycle (back before I was busting) to do over O2-wise I would've gotten a demand valve system. When you get into the high flows, sucking the O2 tank dry can be a serious, recurring issue indeed, but the demand valve only releases the O2 on inhale, shuts completely off on exhale, conserving the O2 in a major way. Plus it'll simply supply as much O2 as you can inhale, period, with no need to mess around with LPM settings and krap. If for some reason you can't get the demand valve and have to keep investing in cruder regulator/mask systems, well with advice from other CH'ers I was able to cobble together a rig using a 60 LPM flotec regulator (which I would often set to 45 LPM), and I replaced the reservoir bag on my mask with (I'm not kidding here) a 32 gallon trash bag that could handle my intentional hyperventilation. Crude, a hassle, inefficient and unsightly as hell, yes, but it got me plenty of O2.

I think it's a little Cindy. Good to see ya back here Mr. McDanBerry USA. 8-)