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Showing content with the highest reputation since 09/18/2018 in Posts

  1. 6 points
    ThatHurtsMyHead

    Describing CH to non-believers

    Maybe a bit of comparison on my Kipp Scale, for those that have a different interpretation: I've broken my wrist before. It was 10 at night and I didn't feel like going to the emergency room. I decided to go to bed and go in the morning. I went right to sleep like a baby 15 minutes after breaking it. Slept fine got up. Put my wrist in a tshirt sling and went to the emergency room. My kipp level was maybe 3 out of 10. I've de-gloved 2 fingers on my right hand in a sailing accident. The index and middle finger had the meat pulled right off the bone. My middle finger bone was sticking out like a skeleton you see at Halloween. Of course both fingernails were peeled off as well. We were docking a large boat and my fingers got caught in a cleat. I yelled up to the guy on the bow not to dilly dally, that he had to take me to the emergency room as soon as the boat was tied up. I grabbed a hand towel from the galley and ran back on deck spewing blood everywhere. I finished securing the stern and port of the boat before showing my friend what happened. He drove me to the emergency room where they reassembled my fingers. Oh and without any anesthetic. I'm immune to the anesthetic they use for nerve blocks. My peak pain through the entire event was maybe a 4. My pain tolerance is VERY high due to my years with CH I can only assume. I've had 3 kidney stones. Passed one of them. Kipp 5 to 6. Other two had surgery to remove and were maybe Kipp 3 tops. To say my pain levels with a CH K10 are worse than an amputation without anesthetic is a no brainer. My K10's are much worse. Everyone is different, but pain is pain. Support for our CH family here is what's its all about. J
  2. 6 points
    MoxieGirl

    Doctor vs Patient

    This popped up on my Facebook feed today, and I thought it apt. MG
  3. 6 points
    Personally I'd switch doctors if one laughed at me.... Internet based cluster headache communities helped save my life. I have no time for self important gasbags who believe they know it all.
  4. 5 points
    Hey batch, I meant what I said you do a great service to the community. I have directed many people to D3 and your work. It was just the opening statement that got me. Keep up the good fight. Brian
  5. 5 points
    jon019

    Fog = Shadows?

    ….a clusterhead's gut is better than many a doctor's head....and CERTAINLY better informed...….
  6. 5 points
    Psiloscribe

    Gammacore/electrocore

    Just a few comments on the gammaCore device. As was mentioned by someone earlier in the thread, I think the first inclination on the device should be of the positives it brings. The cost is more a product of our broken and complicated medical system than of it's current cost. The Vagus nerve has long been discussed as it's potential involvement in cluster headaches. So it was a logical choice in research. The company did spend millions on this research and it has an important role to play in the overall need for more research into clusters and helping find another piece of the puzzle. Even research that eliminates possible routes to successful treatments and an eventual cure help paint the picture and help us all zero in on discovery. So, the most important part of this particular story, to me, is the basic research and someone, anyone, investing money into searching for something that helps us as a community that has for so long been completely ignored. The eventual effectiveness of this or any treatment is secondary. Of course we all would hope that this research finds is help but some things will be more of a help than others. Its most important that they keep searching, keep researching. The FDA approved this device because they understood that even of only 30% of the people using it were helped, that's 30% of an entire community that needs help. That's 30% of a community that can find a new option that helps that they didn't have before. I'm extremely happy for those 30%. It should also be important for the rest of us in that there are people looking for things that can help us. That alone should give hope to 100% of the community. Clusterbusters has been trying to help the community since 2002. In many cases its been helping people one at a time. That take s a lot of time and dedication from a lot of people. We appreciate anything that helps just one of us. This is a very close knit community and we know that helping just one person, helps the entire community. When individuals or companies or even government agencies try to take advantage of the community and anyone in the community, we have and will take a stand and try to protect each of us. We have been following this research for many years and we have heard many reports of people getting better results the longer they use this device. Yes we've also heard many stories where it was not helpful at all. Its a similar story for so many of the treatments we choose or have available. We will stay on this and follow up on its success and failures. With the cost being the biggest hurdle for people to try it, we will continue to fight to get insurance companies to cover its cost. As everyone knows, Clusterbusters has always offered help and advice regarding things that people can't get a prescription for from their doctor. We also know that a large portion of our community relies upon staying within the rules and only using prescription medications and treatments. We fight just as hard for all of them and try to move the entire medical community forward to find help for all of us. People should be able to choose whatever treatment works best for them and they should be able to afford that treatment. As simple as that sounds, there are many barriers that we need to tear down. Peace out~ Hope everyone has a great 2019 Bob
  7. 5 points
    Jimmy Martinez

    Happy Holidays and thank you

    I've been able to get tremendous help and support from the people on this forum. Thank you. Please know that for the rest of my life, I'll be praying earnestly for everyone to be healthy and pain free. And for there to be a cure. Season's Greeting to all, Jimmy-
  8. 5 points
    Batch

    Oxygen supplier

    Freud, Fair question and thanks for the kind words. I'm a 74 year old retired Navy Fighter Pilot. I was flying Navy fighters like the F9-F8 Cougar and F-8 Crusader, a.k.a., Mig Master before they started the first Top Gun class... I've a degree in Chemistry and at one point, was considering a career in medicine... I got a ride in a Navy trainer aircraft (T-34) my Junior year at the U of W, Seattle and that sealed the deal... The thought of flying Navy fighters appeared to be be a lot more fun than another 6 years of school so I joined the Navy to fly in 1965... I'm also a long time CHer (first CH attack in 1994), chronic since 2004. I've over 3000 hours flying Navy fighters and all of that flight time was spent breathing 100% oxygen from takeoff to landing (usually aboard an aircraft carrier). I can assure you, I was sucking down 100% oxygen at flow rates that support hyperventilation during high G-Force dog fights and combat maneuvering... like getting shot at by bad guy SAMs and AAA. I'm a patent holder for the demand valve method of rapid CH aborts method of therapy. I also have 15 years training in aviation physiology with most of that training in oxygen breathing systems. I'm a member of the American Academy of Neurology as a cluster headache researcher and I've had the opportunity to meet with some of the top neurologists in the world experienced in treating patients suffering from cluster and migraine headache. Bottom line... I'm here to help CHers avoid the terrible pain we all know so well by providing information outreach on safe and effective methods of controlling CH (oxygen therapy with hyperventilation as a safe and effective CH abortive and vitamin D3 therapy as a safe and effective CH preventative). I started doing this in 2006. You can find my web page at VitaminDWiki at the following link: http://is.gd/clustervitd 'Hope this answers your question. Take care, V/R, Batch
  9. 4 points
    eileenbunny

    2019 Patient Conference

  10. 4 points
    G'evenin ya'll! Many good points here! As Chf stated, much has changed in the years since we both became involved with clusterbusters.......all of the information in the busting files is based on the anecdotal evidence and surveys from the first few years.....and we've now added another 10 years of folks experience and anecdotal evidence with no new surveys or significant rewrites to the original information. I've spent many, many hours cleaning up the corruption caused to the numbered buster files by the migration from the original yabb powdered board....however, it's not possible to pin them in numerical order so I've pinned just the "Clusterbusters Files Content" page with current links to the numbered files. I'm also going to meet with Bob W at the conference to discuss updates and changes to the board along with staffing..... I ain't no sprang chicken, Spiny is recovering from surgery, we've completely lost bejeebers, Jeff (That hurts my head) isn't here as much as in years past, and everytime I talk to Bob W he's headed to another conference or presentation on our behalf so we are rarely graced with his presence. At any rate, please continue with suggestions in this thread and I'll use it for notes when Bob and I meet up. DD
  11. 4 points
    ThatHurtsMyHead

    Describing CH to non-believers

    The reality is everyone has a different pain level from their CH. They also have different pain tolerances. I'm one of the people that have attempted suicide due to my CH. When I get a K10, it IS a K10... I've passed kidney stones and they were a walk in the park compared to my K10 attacks. I've beat my head on the floor till I've passed out. Because some people with CH don't really get K10's doesn't mean others don't. I wouldn't downplay any description. Otherwise you shouldn't complain if someone just tells you to go take an aspirin when YOU have an attack. (see the comparison?) I've spoken with people that can't understand why some of us use indole ring hallucinogens to treat our CH. They've said. "CH isn't that bad. Just wait till the attack passes". "Why would anyone take an illegal substance to treat their CH. It's not that bad"... The examples go on and on. To those people... I seriously question if you really have CH. I KNOW how bad mine was before I started self treatment. I'd never go back to that world, or I'd be outa here if I did. I think healthy debate is healthy. Let's just not downplay someone else's description just because your pain isn't as bad as theirs. You might wake up one day and find your pain IS as bad as theirs and reassess your own Kipp scale. (I certainly hope not though). Cheers, J
  12. 4 points
    Hey Freud, Fair comments about my post to JH. Too much bravado and not enough factual data... I've fixed that with an edit. Take a look and let me know if it passes muster. Regarding the online survey data, I've kept my reporting of that efficacy data as objective as humanly possible. I'll be happy to show you the survey database this coming September at the Clusterbuster Conference in Dallas, TX. Credibility is everything when talking about efficacy of a CH intervention like Vitamin D3, so I'm not about to risk that credibility by making false, misleading or exaggerated claims. I've too many neurologists, headache pain specialists, vitamin D3 experts, CHers and a growing number of migraineurs following my work. A few neurologists have even been kind enough to provide peer reviews and feedback... Two of these neurologists are CHers so are taking this vitamin D3 treatment protocol to prevent their CH. For reference and for those who don't know me, I'm a 74 year old retired Navy fighter pilot with over 3000 hours flying Navy fighters. I have a dated degree in Chemistry circa '67 from the University of Washington, I've been a CHer since 1994 and diagnosed as chronic by neurologists at NIH in 2005. I'm not a doctor so I don't diagnose, prescribe or treat CHers or migraineurs. What I do is provide information outreach on safe and effective non-pharmaceutical CH and MH interventions (O2 and Vitamin D3). That information is based on feedback data from thousands of CHers I've been collecting since September of 2006 on CH.com with my first posts on the benefits of oxygen therapy with hyperventilation as a CH abortive, on 10 December 2010 when I began posting about my experiences preventing CH with vitamin D3 and the cofactors as well as detailed data from the online survey of 293 CHers following the anti-inflammatory regimen CH preventative treatment protocol to prevent their CH. This survey went online over the Internet in January of 2012. When asked for suggestions or answers to CH related questions about this treatment protocol, I generally provide answers based on what many other CHers or I have found. I also suggest CHers and migraineurs see their PCP/GP or neurologist to discuss the anti-inflammatory regimen and to obtain the essential lab tests for serum 25(OH)D, calcium and PTH. I don't sell anything, nor have I taken one cent in renumeration for any of my posts about the benefits of vitamin D3 in controlling CH and MH here at Clusterbusters, over at CH.com or on Migraine.com... My wife will attest to that fact as she does our books. She frequently points out that I've spent an average of $2,500 a year (out of pocket) since 2006 providing information outreach to CHers and MHers on the benefits of oxygen therapy with hyperventilation as well as the benefits of vitamin D3 and the anti-inflammatory regimen in preventing CH, MH and in promoting improved health since December of 2010. I even spent two weeks in early 2018 posting in Facebook CHer and Migraineur groups. I got booted off Facebook after a couple posts on the effectiveness of the anti-inflammatory regimen in preventing migraines. It appears Facebook's Big Pharma sponsors didn't like what I posted so had me blocked. I've been paying $100/year to keep online survey running since 2012 and my annual dues as a member of the American Academy of Neurology (AAN) as a vitamin D3 and Cluster Headache researcher have cost me $260/year since 2013... My annual travel, lodging, meals and registration costs to attend conferences, meetings with neurologists and to make presentations on the effectiveness of oxygen therapy with hyperventilation and the anti-inflammatory regimen since 2009 have averaged $2,000/year. I've made two trips to Switzerland, two trips to Norway and one trip to Germany to attend meetings with fellow CHers at CH conferences and to meet with neurologist like Prof. Dr. med Ottar Sjaastad in Haugesund Norway, Prof. Dr. med. Arne May at his headache clinic at the University of Hamburg Eppendorf (UKE) Germany and Dr. Todd Rozen, MD, FAAN at his facilities in Wilkes-Barre PA. If you'll check the fine print in the ICHD-III beta website, you'll find Dr. May and Dr. Rozen are in the working group responsible for trigeminal autonomic cephalalgias. Dr. Rozen was kind enough to stop by my poster presentation on results from the online survey of CHers taking the anti-inflammatory regimen at the 2014 AAN Annual meeting in Philadelphia, PA. The reason for the Cowboy getup is simple... I grew up on a horse and during my poster presentation, I didn't want anyone thinking I was a neurologist. What most people don't know is I've been quietly going down the rabbit hole in search of answers that will help me define a more detailed pathogenesis of CH and MH as well as determine how and why vitamin D3 and its conutrients/cofactors are so effective in preventing CH and MH. I track all vitamin D3 RCTs as well as cluster headache and migraine RCTs on clinicaltrials.gov and weekly editions of the AAN journal Neurology. This research has taken me into the realm of molecular biology and gene mapping. There are quite a few neurologists doing this kind of research using anti-CGRP monoclonal antibodies as CH and MH prophylaxis, but none using vitamin D3 as a CH or MH prophylaxis. I'm a member of PLOS - a nonprofit publisher innovator and advocacy organization, the Cureous journal of medical research, and Researchgate where leading edge studies and scientific papers like this are published. That said, there are a growing number of physicians now trained in the Coimbra vitamin D3 protocol for preventing multiple sclerosis. Dr. Coimbra has treated over 2000 of his multiple sclerosis patients with his vitamin D3 protocol and his patients have a 95% complete remission rate. So why am I doing all this? It's clearly not for the money... It's also not an ego trip seeking credit for the many findings made public about the safety and efficacy of oxygen therapy with hyperventilation as a CH abortive or the anti-inflammatory regimen as a safe and effective CH prophylaxis... That credit goes to the thousands of CHers who took the leap of faith to try these two CH interventions then took the time to provide their feedback. That feedback is what motivates me to keep doing this as I know the terrible disabling pain of our disorder and that the good news is it doesn't need to be that way. By the way, I'm a strong supporter of CHers using psilocybin or seeds as a safe and effective CH prophylaxis. The data I've collected to date from CHers here at Clusterbusters indicate the vitamin D3 protocol and psilocybin treatments are not mutually exclusive. Although the data is largely anecdotal due to small numbers, It appears these two CH prophylactic treatments have a synergistic effect when taken together. Take care, V/R, Batch
  13. 4 points
    Bilal

    My D3 Regimen Log

    It's been almost a year since I last posted. I guess it's true that you tend to take your health for granted. Fortunately, I've had the luxury to do so this year. I'm glad to report that ever since I started the D3 regimen I've been completely pain free. No more headaches, and not just CH. I don't recall having any kind of headache in almost a year. I've been thanking God and the fine people of this site that directed me to this regimen whenever I can. To those of you still undecided, please give the D3 regimen a chance and stick to the guidelines. And to the people on this forum that helped me, from the bottom of my heart, THANK YOU.
  14. 4 points
    jon019

    Cluster rules

    ….it won't kill you...no matter how many times you wish it would....
  15. 4 points
    Dallas Denny

    My how time flys!

    Just realized that the forums 9th Birthday slipped by me last week!! The board went live October 27th of 2009 with just a handful of active members the first few months!! What a long way we've come since those early days! So, a belated Happy Birthday to the Clusterbusters forum and a big Thank you to BobW and DJ for giving us this space! Dallas Denny
  16. 4 points
    Thanks, Denny. i suppose yale has recognized that it has to do something to make up for having me as one of its graduates.
  17. 4 points
    Rose

    O2 prescription

    Good morning everyone, had a good visit with GP yesterday. (Never had luck with neurologists). I have prescription for O2 in hand! She says if it isn't everything they need to fill the scrip, we'll keep working til we get it right. Can't ask for anymore than that! Not in a cluster cycle at the moment, but could be at anytime. Trying to stay ahead of the pain! I have swore off prednisone, and am looking for something to add to my ammo. Cannot tell each of you how very much I appreciate your help...this site is truly a life saver! Thanks for your quick responses! BTW...I will be purchasing the ClusterO2 Kit from this site as soon as I have that lovely tank in hand! Have a great day...Rose
  18. 4 points
    jon019

    O2 prescription

    ALL the above ^^^^^^^^^^…..and I'm not sure that private insurance "has" to cover it... but they WILL.... provided ya play the game! Of the 8 insurance companies over my career, 7 of them refused initial request for O2 as CH treatment. Totally bizarre when the alternative triptans are so damn expensive (tho ALSO limited by them). Just one more entity that doesn't understand CH and doesn't seem to care either. Sermon over... OXYGEN saved my sanity, if not my life....I seethe when I see refusals and the completely inexplicable federal veto. I got it EVERY one of those 7 times...because I HAD to...…….. If they won't: Appeal immediately by writing and phone...keep copies of ALL communication and persons talked to. Do not accept the bullshit line that "we don't accept oxygen as treatment for CH." It's in the lit as the referenced by CHF and THMH....and that would mean they are practicing medicine without a license (i.e. the droid in the basement with the green eye shade and the mission to deny everything). Call 'em on that one...anything in writing or verbally from an identified rep is golden. Be sure you have a prescription...and send 'em copies of either or both of the lit above. I REALLY hope you have an advocate Doctor....who cares and is willing to fight the insurance company....and hopefully pissed at incompetence. You'll need a "letter of necessity" describing his/her diagnosis and treatment plan (O2 of course)....and woe be the UNLICENSED insurance jockey who disputes that. (one of my fav memories is the blistering letter my neuro sent...it really worked). If you are working.... seek help from the HR person to go to bat for you. Better yet...besides that person, find out who is the broker that sold your company the policy. Request HR put you in contact....THAT person is really considered the insurance company customer...they'd prefer you go away...but they WILL listen to this person. Meet and greet and give 'em all the above..... Game on...don't get mad...get busy. It got to be sorta fun after a while...and a great distraction...stress being a prevent for me...hoping this will save you a little.... Best Jon
  19. 4 points
    CHfather

    O2 prescription

    Another thing to suggest to your doctor is that s/he look in any standard medical reference guide (the doctor should have some online one), where oxygen is the #1 recommended abortive. This is all oh so true. In my opinion, O2 is not prescribed for reasons that have nothing to do with its efficacy (which is unquestionable), or even the insurance issues (though they definitely state this as a reason, as CHChris says). It's because most docs have no experience with patients using high-flow oxygen, and there are unsure about how to prescribe it and what to do with a patient who is using it. So you have to persist. Even that is not always sufficient. Government insurance programs (Medicare, Medicaid, VA) are not allowed to prescribe O2 for CH. This is an irresponsible abomination. I think any private insurance has to cover it (could be wrong!) but it can take a lot of work to get them to do so. Maybe you want to call your insurance co in advance to get an idea. If your doc gives you the insurance "excuse," you might say you want to get the prescription anyway and you'll pay out of pocket if you have to. Regarding suppliers -- as CHC' suggests, you should call them after you get your prescription and make it clear what CHC' says: a large tank and a small one, with regulators for each (they use different regulators) that go up to at least 15 lpm, and non-rebreather mask. You do not want a "concentrator," which makes O2 out of room air. I haven't heard of docs prescribing tank sizes, but maybe it happens, and that would be good. The supplier is going to make a lot of runs to your dwelling to replace tanks if they give you only a small one or a couple of small ones. There is also a ,mask very strongly recommended for people with CH, which you will have to buy yourself: http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit And you might want to get higher-flow regulators. We can discuss that when the time comes. Fingers crossed that it will be as easy as it should be, and not as hard as we have come to expect it to be.
  20. 3 points
    Moxie Girls first rule of Cluster Headaches: No two people's clusters are the same, and just as soon as you figure yours out, it changes. MG
  21. 3 points
    Ok, I'm so excited I have to tell someone about this.... A company spammed the message board yesterday. I sorta got ticked off as It wasn't your regular viagra, trojan virus etc type of garbage. This looked like a legitimate company embarking on a very deceitful tactic of spamming message boards. Sooooooo.. I decided to play with them.. They had (yea had, as in past tense) an interactive help desk chat on their website. I got on their chat (a LOT of times) and just harassed them with garbage, and telling them to stop spamming message boards, but was a general pain in the A$$ off and on for a few hours.. I also started spamming their online email with requests to... Yep you guessed it, to stop spamming message boards... I was considering writing a macro that would spam them night and day (just to give them a taste of their own medicine. This morning I thought I'd go out and ping them another message... Guess what.. They have their email and web chat turned off now.. ha ha..... They might have blocked my IP, but I sorta doubt it, as their website is NOT very secure, says they don't know much about web stuff. These are the guys if you're interested: https://www.fieldengineer.com/contact-us-form Funny, that I feel so good about giving them some of their own medicine back... J
  22. 3 points
    Hi all, Just wanted to give you guys an update. I went to the nurse practitioner today (her name is Dr. Sandra Lee by the way) and I brought the printouts for the Oxygen therapy and the vitamin D3 therapy. She was all for me trying the vitamin therapy (and apparently had used it for some of her migraine patients) so I am going in for lab work tomorrow to get my baseline results so we can get the dosage correct. She also said before I even mentioned it that I should be on Oxygen. I was like “YES! Finally!” Unfortunately, laws prevent nurse practitioners from prescribing it, which she admitted was stupid, but then told me she was going to talk with my primary doctor and plead my case to him. Well she called me a few hours later and said she convinced him to do it, so I finally am getting the Oxygen! I was so happy I started crying on the phone. So I’m hoping between the Oxygen and vitamin therapy that life will become much more mangeable! Never underestimate the importance of finding the right doctor. She is getting a thank you card for sure!
  23. 3 points
    I was at the Clusterbusters conference and heard the presentation about BOL-148. I reviewed my handwritten notes, so I don't have all the details. Essentially, a man named Carey Turnbull, a retired energy broker and psychedelic medicine advocate is funding the continued research of BOL-148. Again, I apologize for not having a lot of details on this, but apparently this man is spending a lot of his own money (millions) to continue the research. I am not on the FB group, so I don't know what was posted there. I had never heard of BOL-148 before this presentation. It sounds very promising though, and it seems this gentleman is determined to get this stuff into research trials. I'm sorry I can't be truly helpful, I was drinking from a firehose at that conference, and didn't absorb everything. But I heard the presentation, and I know a lot of people were very excited about the future of the BOL-148 research, including some people who have been around for a while.
  24. 3 points
    Siegfried

    After Cluster Headache - Help Please!

    Hi A-Z, If you consider triptans for your shadows (especially if they are long-lasting) you can have a look at the ones with a long half-life which are a better fit for this type of pain. The two in that category I am thinking of are Frovatriptan and Naratriptan. They also tend to have less side effects than the fast-acting ones. Just pay attention not to mix different triptans together. All the best ! siegfried
  25. 3 points
    jon019

    After Cluster Headache - Help Please!

    Yo AZ Yes, my CH is diagnosed/confirmed. My doctor prescribed me Diclofenac Sodium / Misoprostol along with Zolmitriptan when there is full CH attack, took both at once. It worked a little but i had no other options. Now i take Diclofenac Sodium / Misoprostol for headaches apart from CH. Well...that's GOOD...ya know what you are dealing with. Why no OXYGEN is a puzzlement tho! At least a try. If Doc says no...or DOESN'T know...get another Doc. It is the first line, first choice, most medically accepted (for decades now) abortive that works near miracles for many. Easy to use, relatively cheap, fast, NO SIDE EFFECTS. Without O2 I would have feared for my sanity and perhaps my life. The first time you use and feel the hit drain away like water you will know... and regret any delay... See these links: http://www.clusterheadaches.com/O2/index.html https://clusterbusters.org/forums/topic/1433-10-oxygen-information/ Re Zolmitriptin. Is it a tablet or the nasal spray? I had wonderful abortive results with the spray (5 mg)....5-8 min effectiveness....18 hr "free period"..99% effective for break throughs after O2, energy drinks, sometimes verapamil failed. Very expensive...just like Sumatriptan. I mighta paid ANYTHING at times tho...……… Me too mostly depressed. As i felt positive to SSRIs, took them for a few months 2 years back. Seems a clinically-depressed case But a physician Doc not a psychiatrist prescribed me SSRIs. SSRIs are good to certain point after that no! their side effects i didn’t like. Now thinking to take Magic Mushrooms to fix my mood and to stop Shadows. Interesting enough there are several antidepressants that have been used for preventive CH treatment. Not much success from what I gather. Amitriptyline was the one I tried...totally ineffective and life altering side effects (getting out of bed was my major accomplishment for the day) YMMV...…. Re MM...you are in EXACTLY the right place...check out the "Files" section. I have no personal experience with that method..... I was introduced to Verapamil after my last CH pain, however, i took them as a try and a preventive med. But very bad constipation problem and leave them. So, i didn’t know much about Verapamil effects What dosage? Did you do a prednisone or methylprednisolone taper first (to break the cycle while the verapamil kicks in...10-14 days). The reported "sweet spot' for clusterheads is 480 mg/dy in divided doses. I used (depending on cycle) 480-1040 mg dy of the immediate release type (the extended release version works for some but fewer than immediate release). Also known as "concrete dust" it definitely can cause constipation. I always made sure to drink LOTS of water and increase fiber intake (Metamucil works too) and did not have any problems...but we're all different... On Verapamil packet it is written Calcium-Channel blocker and Beef contains high amount of Calcium, it can be any connection between CH and Calcium?? Beef is actually relatively low in calcium (tho high in protein) compared to many foods like dairy, some leafy green veggies, soy products, nuts, seeds, beans, canned bone in fish, fortified cereals and juices, et al….see: https://www.healthline.com/nutrition/15-calcium-rich-foods Verapamil does not play well with calcium….should separate intake by several hours… No i have not tested myself for Lyme disease. Might want to think about that if you have other symptoms besides CH trigger after beef intake…or even just that as inflammation from an allergic reaction is DEFINITELY a Ch trigger… Diclofenac Sodium / Misoprostol narrows nerves. In my expirence blood thinner things like Garlic make me down: mood and body. Taking blood thinner myself for another purpose….have noticed no effect on CH or mood….would be interested in others experience. There have been reports of Coumadin being effective for CH for some…so go figure Want to know more from you good-people The D3 info from Batch above is PRICELESS….I’d go for it…. Boring life i am living. With CH…aint nothing boring… Best Jon
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